Can’t get Diagnosis: Since May 20 I... - Lung Conditions C...

Lung Conditions Community Forum

55,051 members65,842 posts

Can’t get Diagnosis

Muckie profile image
5 Replies

Since May 20 I have had breathing difficulty. It feels like the right lung isn’t fully filling. GP initially sent me to A&E tests X-rays , ECG bloods all checked nothing identified.

Since then I have had ultra sound on gall bladder, heart , MRI scan of heart with dye injected, nothin found.

Pills to reduce acid as there was a burning sensation under the right diaphragm.

Still have breathing trouble, but improves when lying on my back.

Recently I have noticed a dull pain behind the breastbone and now the muscles alongside right shoulder blade is sore and hurts when breathing.

I’m struggling to get any involvement from my GP, he’s hiding behind Covid, only making calls, he has not examined me once. I don’t know where to turn, I’m worried in case this is something more sinister but it’s been going on for 9 months.

I know I need to go back to GP, but he’s not interested his priority is elsewhere.

Can anyone offer advice or recognise this? I don’t like looking at this over the web, but I’m getting desperate.

Written by
Muckie profile image
Muckie
To view profiles and participate in discussions please or .
Read more about...
5 Replies
hypercat54 profile image
hypercat54

Hi sorry to hear you are struggling and I was wondering if you have had a CT scan? This would show more than an x-ray. I will leave anything medical to the more experienced members but will say you really need a spirometry (a breathing test) but these are suspended at the moment due to covid.

Muckie profile image
Muckie in reply to hypercat54

Hi,Thanks for the reply.

I had a breathing test recently at the spire hospital, I have PMI so use it to reduce waiting time. It was initially over video, then the consultant realised it was quite ridiculous , so invited me down to see him, , he concluded no wheezing, breathing was fine he could find no reason .

I have not had a CT scan, he was going to arrange it but after I chased it again, he called me to see if I was available xmas Eve if he could set it up.

I said yes, last I heard of him.

One other thing, my breathing appears to be worse when room temperature rises above 21C.

Sounds Asthmatic but I was given a pump which makes no difference.

Muckie profile image
Muckie in reply to hypercat54

Managed to batter down the GP’s door today, even got him to examine me. Sadly he found nothing obvious, lungs work fine, except they don’t.

Bloods in a few days and a fresh CT referral which was taken into the Spire personally by me.

If they can’t do it, I’ll have to either find someone else or jump on the NHS queue.

Watch this space

Muckie profile image
Muckie in reply to hypercat54

I had a CT scan, I have a face to face consultation tomorrow, but he told me on the phone there is some kind of lesion on one rib.He wants me to have a bone scan.

No idea if we are close to finding the cause and how treatable is it.

Guess I’ll find out tomorrow

Muckie profile image
Muckie in reply to Muckie

Well I didn’t find out. Lungs are excellent specimens and working well.

There is no reason for my breathing issues.

Which doesn’t explain why I am struggling to breath on one side for 9 months and it’s no better now.

Losing the will

You may also like...

Bronchiectasis diagnosis

Trying to get diagnosis for what you know you have

Issue but no diagnosis

again in 4 months!! I’m at a loss what to do next, Cardiology have ruled out any heart issues....

Getting up at night to go to the toilet

to my bed I am so short of breath it will take 10 minutes to get my breathing under control...

Recent COPD diagnosis

(emphysema) after being admitted to hospital with breathing difficulties during a chest infection....