Hypersensitivity : My husband takes... - Lung Conditions C...

Lung Conditions Community Forum

55,061 members65,848 posts

Hypersensitivity

Terence65 profile image
16 Replies

My husband takes Beclometasone in inhaler form . He uses in the morning,two puffs. He has been told to use again in the eve. He reacts badly . He can’t sleep , moods changeable, all very distressing. Is there anything else that he can use . He was given a steroid once for a chest infection and reacted extremely badly for weeks after stopping them !

Written by
Terence65 profile image
Terence65
To view profiles and participate in discussions please or .
Read more about...
16 Replies
Bkin profile image
Bkin

Oral steroids are not the same as inhaled steroids.

I have been taking Beclometasone inhaler for over 16 years. My prescribed dose is 2 puffs am and 2 puffs pm also.

However (personal choice only - not recommended by any meduic so may not be appropriate for your husband)

These days I only tend to do the 2 puffs pm if my breathing has become more difficult or if I have a lung infection. I may just do the 2 puffs am and 1 puff pm.

Your husband may need to go back and discuss with his doctor the symptoms he is experiencing with the inhaled steroids. It is unusual to get same symptoms from the inhaled steroid as the oral steroid. There are alternative inhalers that may suit.

Oral steroid dose must be taken as prescribed by his doctor, there is no messing with those as they can cause bad side affects if not taken as prescribed and under no circumstances just stopped if the doctor has instructed a tapering off.

Hope your husband finds something suitable.

Best wishes

Terence65 profile image
Terence65 in reply to Bkin

Thank you for replying, the doc has said it’s such a small amount in the inhaler that it shouldn’t be a problem. It is though , I know without being told if he has upped the dose ! Interested to know what he can take instead as he won’t take the second dose , due to side effects. I also think that he is depressed because of the meds also . Back to doc it is 😊

2greys profile image
2greys in reply to Bkin

I have to agree unusual to experience the same with both inhaled and oral. Beclometasone dipropionate is in my Fostair inhaler (2 puffs twice a day = 800 micrograms/day) without side effects other than the usual bruising.

Oral steroids are a totally different kettle of fish though that I will only take as a last resort. As with your husband, I get those side effects of insomnia (take as early as possible) and mood swings (Jekyll & Hyde pills).

So yes, he must tell his doctor what is happening with his inhaler, there are a few alternatives to Beclometasone. It might take a little trial and error with different inhalers, we are all different when it comes to side effects, there is no way to tell the difference.

Terence65 profile image
Terence65 in reply to 2greys

Thank you for your reply . Do you think that if he started gradually upping the dose , that he would desensitise and not get the bad reaction?

2greys profile image
2greys in reply to Terence65

"Do you think that if he started gradually upping the dose." I doubt it.

"I also think that he is depressed because of the meds." All the more reason to go back to the doctor.

I do not want to worry you, but steroids can be a mind bending drug and it is not unknown to create thoughts of suicide, usually only with oral steroids though. Given he is experiencing these kind of side effects then a word with his doctor should definitely take place soon. Still very unusual for an inhaler, does he gargle and spit it out after taking the doses? I am wondering if he is ingesting some it unintentionally.

Terence65 profile image
Terence65 in reply to 2greys

No he doesn’t gargle, I’ve just read that he should ! He was seriously concerning on the tabs , calling random people, changing his will, trying to buy land etc . This isn’t that bad , but not great at all . Thank you a lot for responding. Definitely a doc appt , I will see if I can go with him x

knitter profile image
knitter

One of my steroid inhalers gave me terrible nightmares ,i asked for a change , now only get a bad dream now and then .

I would certainly discuss your husbands difficulties with your health professional..

Terence65 profile image
Terence65 in reply to knitter

Thank you for replying, definitely going to speak to his doctor 😊

Ergendl profile image
Ergendl in reply to Terence65

All the best. Hope that gets it sorted for you both.

Terence65 profile image
Terence65 in reply to Ergendl

Thank you 😊

SJCJ profile image
SJCJ

Hey Terence65

there are other inhalers out there! Pts are normally given beclometasone (currently Clenil) because it's cheap. A really good alternative is fluticasone, trade name Flixotide. It's available in either powder form (accuhaler) or a pMDI (aerosol) for which I would recommend a spacer device.

Then there are extra-fine particle beclometasone inhalers - but I would go for Flixotide in the first instance.

Hope that helps

Terence65 profile image
Terence65 in reply to SJCJ

Thank you I will ask at doc appt next week

Karenanne61 profile image
Karenanne61

I was told oral steroids can cause 'steroid psychosis' when I began acting strangely in hospital. I was on lots of meds for lung problems. After a chat with the duty psychiatrist I was discharged with a plan to gradually reduce the steroids. So yes, they can alter cognitive function and I would think a doctor's visit/call is needed promptly.

Terence65 profile image
Terence65 in reply to Karenanne61

My husband only took the tabs for 3 days . The problems went on for weeks after . Very frightening for all . The inhaler definitely not anything like that bad , but not pleasant. Sorry to hear that you had it 😔

Karenanne61 profile image
Karenanne61

It's all very frightening when you don't know what's happening. I hope everything gets sorted quickly and some semblance of calm can be restored.

Terence65 profile image
Terence65 in reply to Karenanne61

Thank you 😊

You may also like...

hypersensitivity pneumonitis.

Hypersensitive Pneumonitis

My new friend, The Nebuliser.

but it just feels like a bad new chapter in my life having a nebuliser to use daily. I feel like a...

Over 2 years of steroids will it stop?

done me some good? I have not had any bad chest infections and for some reason my heart conditions

Issue but no diagnosis

steps. He was admitted to hospital in May after very bad episode, was in for 3 weeks and had...