Pulmonary embolism treatment using Clot dissolvers

[Kooko]

Any one had treatment the pulmonary embolism using clots dissolvers or all using Blood thinners (anticoagulants)?

[Katinka46]

Hello Kooko

Welcome to this forum.

I am by no means an expert on PEs but I can tell you what I understood. I am not sure what clot dissolvers are. I thought that bodies were very good at getting rid of PEs. Just occasionally and rarely there is permanent damage. I thought blood thinners and anticoagulants were preventative, and were prescribed to stop any more clots forming. I believe that in some very critical cases if the clots were seen and identified very early it was possible to go into the blood vessels in the lungs and remove them.

Please tell a little more about your history

All the best

Kate x

[Kooko in reply to Katinka46]

Hello Katinka46

Thanks a lot for your help

In 6/9/2020, I feel a little pain in the left side of the chest so I afraid it may COVID 19 so I do some blood analysis and found CRP-9 and D-Dimer:2460. So I go to the doctor he ask to do CT on lungs and the result is pulmonary embolism. Then dupler on right leg they found DVT. The doctor give me Clexane 80 injection twice daily for 10 days the now Revabixaban. So I need to know is there any cases like me tamed blood dissolver to solve the clots permanently

[Katinka46 in reply to Kooko]

I think it is very early days in terms of knowing if there is any damage. As I said bodies are very good at dealing with clots and 98% of people who get PEs make a complete recovery. You are on the right treatment. In my case there is permanent damage but that is rare. You may well be on anti-coagulants for a long time, maybe for ever. Are you still in pain? Did you cough blood? Are you very breathless? I'm afraid some of these symptoms may continue for a few weeks, but you must go back to your doctor and tell him or her your concerns.

All the best and let us know how things go.

Kate x

[Kooko in reply to Katinka46]

Thanks a lot for your support and advice

Thanks God, I still in pain. But no cough blood, Some time when I do something or move much I feel little breathless.

Doctors say pain and feel of coughing is a normal side effect for the PE

Sure I will keeep in touch because you really support me 🙏🙏🙏🙏

[Katinka46 in reply to Kooko]

This is a very supportive forum. As I said it is still early days for you in terms of the PEs resolving. It can take a few weeks or even months. But do keep going back to your doctor. Most of the members here have more usual lung airways diseases. There are some, like me, who have or had PEs. And it is very rare for there to be permanent damage. I’m afraid you will have to be patient! Not easy.

All the best

Kate x

[Kattria in reply to Katinka46]

Twelve years ago my husband was taken to hospital with breathing problems. Did x-ray and said he had a lung infection. No D Dimmer done. Put in antibiotics and kept in. Was dead next morning with PE no goodbyes. Apparently clot had went from leg to both lungs. He was 56 and never chest problems ! Totally useless hospital and doctors. Now I always tell people to ask for A Dimmer if they have pain, breathing problems ! Some doctors fob you off but you can insist ! Sorry I think anyone has a right to get the best treatment 😥

[Katinka46 in reply to Kattria]

I am so sorry that you had this tragic event. It is inexcusable. As you say a D-Dimer blood test is simple to do and if it is elevated then it indicates that the body is fighting a blood clot. Blood thinners should be given immediately and a CTPA scan must be done to look at the blood vessels in the lungs. Again this is something that all hospitals have access to. If the clot had travelled from his leg then there may well have been swelling and discomfort there. Did you make a complaint to the hospital? That can be a soul destroying process, as I know. The medical community’s first instinct is to cover things up, “lose”, crucial documents and test results.

Happy to hear more if you would like to contact me via the private messaging system on the forum.

Kate xx

[Kooko in reply to Katinka46]

Sure 🙏

[Hidden]

Hi in October of 2016 I underwent seven and a half hours of surgery to remove my right kidney due to cancer ,I followed all instructions after being discharged including injections to prevent blood clots,in march of 2017 i was rushed to hospital with what was originally diagnosed as heart failure, after spending the night worrying about how this happened, a doctor came and said he wanted to do a scan,only to be told I had blood clots in both lung's the right lung being the major one of concern I was put on rivaoxaban, I was told this was for a short period ,after many hospital and GP visit's they decided to leave me on them,long term, I have never had any problems with them I have had yearly check ups with my GP and anticoagulant nurse, since last February I have also been on clopedogarol and for the first four months aspirin after talking to the nurse she told me that as long as I contact my GP or the hospital with any problems that I have and report any changes concerning my health so they can monitor me there is nothing to worry about, there main concern was what had caused the clots so long after my surgery as they normally occur with in the first two - three weeks, so if you have any concerns please speak to someone.

[Kooko in reply to Hidden]

Thanks a lot

But what I concerned about, doctors don’t have any answer