John had, at long last, his consultant meeting on Wednesday. We need to have a translator with us so unfortunately I was not allowed in and had to wait outside. Really annoying as this consultant spoke perfect English. Anyway he was very thorough, Apparently John’s lungs have only deteriorated a little since last X-ray and he thought it could be the heart so he has asked for ECG, another in-depth X-ray, more blood tests and a sputum test. Once these have been done he will see John again with results. So hope he can sort it out as John’s breathing is still very bad. Carole xxx
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Johnsel
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Morning Carole & John. The Consultant has been very Thorough and the results will show any problems. I had an ECG which showed my Left Heart Ventrical was Blocked & not allowing the oxygen to get through. Nothing was done about it, so I have to accept it. After my two Procedures of Lung " Valves" My Consultant said it was not really Viable to do any more Procedures, maybe John can have "valves" inserted. ? The consultant may suggest this. Good Luck to you Both , Love n Hugs. C. XXX
Good news about John's lungs Carole and a very supportive consultant who seems like they are pushing all the right buttons to get to the root of John's breathlessness so that should be of some reassurance to you both.
Hi it's good to hear that the consultant did so many tests hopefully now John will get the help needed. You both have a good day and stay safe 😊 Bernadette xx xx 🌈
Very good that John is getting the tests he needs. Hopefully they will find a solution to his issues and he will feel better very soon. I am relieved. Please keep the updates coming. Much love to you both.
Johnsel hi, just read your post, your husband comes across as a fighter ,l have l P F , they gave me Ninedannib l stuck it out for 10 weeks the side effects for me were to much, so lm off them, now my life is in the hands of the gods, l hope lm as brave as your husband . god bless take care Rodders1941
Hello Rodders sorry to hear you had bad side affects from Ninedannib and had to stop them. John has been taking them since January with no side affects except his breathing has got much worse! which isn’t supposed to happen. How long have you been on Ninedannib? and how is your breathing? John is not that brave, he does suffer with depression over his illness and has no interest in anything anymore you keep strong and positive and keep fighting please don’t give up. Carole xx
Carole ment to tell you lv been on Ninedannib ll weeks , as l said lm off it now and l feel much better, lm coughing more, but l intend to hammer the exercise, see if it does any good, your hubby and l are just unlucky, some people take it for years and have little side effects , l lost a stone in a month my wife is a ex nurse and she advised me to stop takeing it,she was shocked at the side effects
Carole l got mixed up on my computer ment to say tell your husband thers still fight in us old godgers yet , get him to stand up and sing ther always be a england, it will cheer him up no end take care Rodders 1941
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Update - I saw rheumologist today 
update 
in hospital 
