some advice required: I have IPF. I... - British Lung Foun...

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some advice required

johnboy_10
johnboy_10

I have IPF. I have been having panic attacks, at shower time or bath time, leading to severe shortness of breath. The Doctor, via the respiratory nurse has prescribed morphine, is anyone taking this, if so, when do you take it. When you are breathless or before going into a situation where you may or will become breathless. It may sound like a silly question but I don't want to take it willy nilly. my istruction was 1ml up to four times a day. I don't want to take any more than I need to. I am also on oxygen as required 24/7.

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I take it 2ml up to four times daily when going in a shower about half a hour before I go into shower so it gives you time to calm yourself down but everybody is different 1m is not much to take of oramorph my respiratory nurse to take 2and half ml four times daily but as I say everybody is different try I to start if not enough take little bit more till you get the right one for you

johnboy_10
johnboy_10
in reply to jimmyg23

Thanks jimmyg I'll give it a try this morning.

I usually take some about 15/20 minutes before I have a shower

Thank you Spacecat, I'll try it for the first time this morning.

Hi, my uses slow release patches. They’re brilliant for a low level constant release. Prevents the panic attacks but doesn’t seem to make her sleepy or any other adverse effects. Best wishes

johnboy_10
johnboy_10
in reply to jasm

Thank you, sounds like a better idea.

jasm
jasm
in reply to johnboy_10

It’s made a huge difference to her, so much better than oramorph. 1 morphine patch lasts 7 days. Arthritic fingers don’t allow for correct oramorph dosing so they prescribed this instead 12 months ago. The patch is a lot easier, it’s about 1 inch square and goes on the shoulder area. She wears it in the shower etc. Good luck, I have no idea why they’re not offered automatically.

You can also use your oxygen in shower found that information on here when my husband had severe COPD. Just take care to not get water into nose. Sadly my lovely hubby lost his battle over a year ago.

Thanks Marjorie, Sorry to hear about your husband, I already wear my oxygen and have what I call my top up stroller on standby. My problem was anxiety panic attacks because of a bad previous experience in the shower. I have overcome this now with the help of the good people on this forum and a little help from my respiratory nurse and doctor

I passed this on because it was something no one ever told us and worked for us. Good luck and thank you for kind words.

Gladwyn
Gladwyn
in reply to Marjorie31

I'm so sorry for your loss. Thanks for info re wearing oxygen in the shower.

Hello John, 👋

The steamy shower is terribly for people with lung disease. I used to leave the door open and have a fan in the shower it helped me get air and made the shortness of breath just a bit more manageable. I'm sure you already have your oxygen in the shower too. I hope you have a chair your can sit down on in the shower room and after you get out. A towel robe helps too with drying yourself without too much exertion. Best wishes to you,

Cas xx 🙋🐕

johnboy_10
johnboy_10
in reply to Caspiana

Thank you, I did exactly that , left the shower door open for the first time yesterday, it did make a big difference; so did the oramorph.

Gladwyn
Gladwyn
in reply to Caspiana

The fan is a great idea. Thanks 😀

Morning Hun, Some great advice here. I too have my Oxygen on in the Shower, Window open slightly, It is a Wet Room so bigger than most Bathrooms, I also have a Towelling Bathrobe to step into, saves the Exertion of drying. as for Oramorph, I did have a Bad reaction to it, I probably took too much, maybe I should ask for Patches. Have a Relaxed Sunday. Stay well. XXX C.

johnboy_10
johnboy_10
in reply to Hacienda

Thanks, good advice

i take 2.6 ml every 4 hours when needed i did start on 1ml sometimes i only take 2 lots.

Thanks, I've only used it once, it worked for me.

I too have this problem its very frightening because no one tells about it, i had, a nurse visit ne last week she said it was do to tackycardia she gave me some tablets Lorazepan half a one to put under my tongue about twenty minutes before any action for example standing up sitting up eating going to the toilet1 or 2 constipaion is a real problem. I have an ekectric bed

My best postion legs the as high as i can get them, sleep like a baby. Opposite to sitting well up the bed.

My post is only advice not an order. Oramorfh works as well but difficult to manage when. You have the shakes and it doesn't last as long as lorazepam.

Thank you, I will bear that in mind.

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