I've recently been diagnosed with Pulmonary Fibrosis at quite an advanced stage from what I understand. I have had one appointment with my lung specialist where I was diagnosed but now my 2nd appointment has been cancelled til further notice due to the current situation.
I just feel cut adrift on a stormy sea, I have been off sick since diagnosis in January.
I have questions, concerns etc that I now can't voice til whenever. I believe my condition puts me in the high risk category (Interstitial Lung disease) yet I havent yet received a letter to this effect so beginning to feel that my self imposed 12 week shielding is OTT and I'm panicking. I think I'm being very factual and logical, in the mean time my wife has still got to work so we are aware of the risks there as well.
Do you think I'm overeacting or are my concerns real or just perceived?
I would just add that my first appointment was not good (being told you are more ill than you thought) and now I've had time 'to get my head round it' I am ready to move forward and deal with it from an understanding point of view and that's how I am I deal with things head-on preferring to know rather than being handled gently.