End stage COPD palliative care

[Elizjohn]

My Dad has end stage COPD and is now being treated at home as palliative care. I just don't know what to expect and I think that's what I'm struggling with. Dad's oxygen sats are currently 77-81% with no oxygen. I have oxygen for him but it's only to make him comfortable as he is at risk of type 2 respiratory failure. He's exhausted and restless but eating/drinking small amounts. Could he carry on like this for quite some time or should I be prepared for the worst?

[Badbessie]

I am so sorry that your father as reached this stage. It must be very difficult for you to see him like this and be so limited to how you can help him. I wish I could give you an answer. My wife's grandfather lasted a fair while. He seemed to have bright periods and then fade and then suddenly passed. It is a horrible time for you and in reality all you can do is make him as comfortable as you can and be there as much as you can. I am sure all our thoughts are with you at this difficult time.

[Elizjohn in reply to Badbessie]

Thank you, it's such a difficult time. I think the uncertainty is the hardest part and trying to be prepared mentally. I'm just going to focus on keeping dad comfortable as best I can.

[Adirock]

It's so hard to know what to say except thinking of you and your dad and so sorry for what must be an awful time for you both ❤ xxx

[Lemon7]

Just wishing you all the very best taking care of your dad. Hope you get lots of support with this.

[clematis5932]

Be prepared. You both may be lucky enough to have a lot longer. My husband died four weeks ago, two weeks after being told he was now to only get palliative care. Like your dad my husband was tired, ate and drank very little. Everyone is different though. Tell him you love him and when the time is right he will go. x

[Elizjohn in reply to clematis5932]

Thank you, so sorry about your husband. Dad knows he is very loved. I keep reminding him that he is still the head of the family. The agitation and confusion can be hard sometimes especially since I have young children of my own.

[clematis5932]

Elizjohn I agree with you that it is very hard, we have been through all the agitation and ,confusion, and yet he was able to do exactly what he wanted to stay at home and not be in hospital. Thinking of you and your dad xx

[skischool]

Wishing your dear dad and you strength during this difficult time in your lives,nobody apart from his consultant/doctor could give you a reliable answer to your question and all you can do is to make him as comfortable and happy as he can be which you are obviously doing with great love and affection. x

[Izb1]

So sorry to hear about your dad Elizjohn, just be there for him and tell him how much you love him x

[Corin1950]

So sorry to hear how ill your father is. It must be so difficult for you but I’m sure you’re doing everything you can to make him comfortable and feel loved.

Thinking of you both

Take care

Corin

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