Oxygen therapy update

[Looseloafers]

I would just like to say to anyone dithering about having oxygen therapy like I was please please go for it! I can’t believe the difference it has made 😊😊😊 luv Sue x

[cazza34]

I know I was not sure but what a difference it makes

[Caspiana]

Yay!! That is great news Sue. xx 😊👋

[sassy59]

Very pleased for you Sue. Xx 💞😘

[Bkin]

Wonderful, so glad for you Looseloafers So encouraging.

[Oldspark]

It's keeping me alive, 24/7 on a concentrator and oxygen cylinders. I definitely couldn't get past a day without it.

(Advanced interstitial pulmonary fibrosis)

Keep breathing

[pegbl]

Really pleased for you. Xxx

[Hidden]

That's great news! Welcome to the club!

[mary1956]

Hi, I too am in a real dither re O2, but have accepted that I need it. Desperate to be able to go for walks again. Is it possible with oxygen.

[Looseloafers in reply to mary1956]

Go for it Mary I was given a pack to carry on my back with a cylinder in but find a large handbag cross over my body is more comfortable and the oxygen makes a big difference x

[mary1956 in reply to Looseloafers]

Thanks for replying so quickly. Out of interest, how long would oxygen last in a small bag, at I guess a fairly low dose?

[Looseloafers in reply to mary1956]

My cylinders is 2lt and lasts 4 hrs give it a go it definitely helps x

[stayinga in reply to mary1956]

absolutely you will get your freedom back with a small cylinder of compressed oxygen such as paramedics use strapped in a bag on your shoulder

[mary1956 in reply to stayinga]

Thanks for your reply. I’ve been given pulsed oxygen (INOGEN), but I think I may Soon need a continuous supply In a 2 litre cylinder.

Appreciate your reply

[mary1956]

Thank you.

[Seams13]

I'm new to using oxygen and was wondering if you, or anyone else, could help me with a query I have, please? Is it possible to use something that will help my inner nostrils to stop drying out? They feel as though they're burnt, they are so dry. Please, can anyone help me?

[Looseloafers in reply to Seams13]

Sorry I use oxygen but have not had any drying if anything my nose runs. I’m sure someone will have the answer

[WendyWoo50]

I’m so pleased oxygen has changed ur life.

Do you mind me asking for ur advice?

I have been really struggling lately (as I explain in my posts) my INR has not been in rage for months (2.5 - 16.8). No fun as I’ve no chance of feeling well.

My oxygen levels over the last 24 hours have been 89 - 93% except when I had just mopped floors when it was 95 (for 5 minutes)

I wonder if low readings would contribute to the pains in my muscles etc. I’m at the end of my tether with the pain. Thank you for reading this. Keep well. X

[Looseloafers in reply to WendyWoo50]

I don’t know if oxygen therapy would help you your levels are quite good mine go down to 70s sometimes but you should ask your gp to be referred. Hope you get help soon xx

[stayinga in reply to Looseloafers]

70 is too low for safety.... you need it up in the upper 80s minimum