Was at Wythenshawe hospital yesterday for my blood gasses to be checked. I retain carbon dioxide and use a NIV (bipap) machine. Feeling a bit down today as my carbon dioxide had gone up from 5 to 7 and oxygen levels had gone down. Now need to try and use the full face mask for more hours usually this is used for sleeping and nasal mask for the rest of the day. Quality of life over quantity of life is really hitting me now it’s nofunbeing tied to machines 24 hrs a day.
Sorry about the post just really trying to get my head round everything.