Sarcoidosis sufferer

[Susanjb]

Hi! I’m sue, 67 and I have Sarcoidosis. I’d like to get in touch with other sufferers especially those in the West Midlands re: Consultant.

I’m struggling at the moment but enjoy respites from this horrible disease. My hobbies are reading, writing, theatre and cinema and my gorgeous grandchildren.

[Spacecat1]

Hi. Susan I have heard of your condition but Afraid dont know much about it hope someone on this forum is able to help. Which hospital are you under I'm with good hope for copd which I now have a chest infection stay warm y the way which part of the Midlands are you from sutton coldfield xx

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[sassy59]

Hi Sue, in the south east but hubby Pete was diagnosed with sarcoidosis in 1991. He has other health issues too but still going strong. I’m his wife and carer.

We enjoy short breaks away and our three grandkids.

Glad you’re doing pretty well. Take care and hope to chat some more. Xxxx