Wythenshawe hospital

[skylas]

Who as ad a double lung transplant for severe emphasema at wythenshawe hospital

[simplesprout]

What do u wanna know sky ???

[skylas in reply to simplesprout]

Hi I wish u well on your last post when u were coming home from hospital I've just looked n I'd sent it to the wrong person x r u home now n how r u feeling x they put me on lung transplant list last week for severe emphasema I wanted to no loads but just a few for now please ha x u no when u got the call n went in did they put any needles in your neck or the epidural or anything else in while u were awake or do they do that when your asleep n from getting to hospital to goin to operating room how long was the wait x n did they do any tests again x

[simplesprout in reply to skylas]

When i got the call it was 5am on a saturday morning, by the time i got to wythenshaw it was just before 7 and to be honest its a bit of a blur. But i was taken straight to xray then back to the jim quick ward. There was a bit of waiting around till about 9 and i was then told the lungs were good and the op would be happening. Into a gown and groin shaved tthen into a pre op room with the guy that knocks you out.

The surgeon came and introduced himself had a brief chat and then all i can remember is someone trying to get the viens in the back of my hand to stand up to put a line in. All the time they were fantastic and talked to me about my dogs to take my mind off everything. The next thing i know i was waking up in icu on sunday morning with tubes and wires and being very hungry LOL. Ask away if u have more questions i know when i was on the list i did....x

[skylas in reply to simplesprout]

Aw thanks so much for replying x I'm goin bed now but I will b bck in contact with u with more questions lol x r u home now how r u doing x

[simplesprout in reply to skylas]

Yeah had my transplant on 1st june was home on the 19th june and just to let you know took my dogs on a 3 mile sponsored walk today easy lol x

[skylas in reply to simplesprout]

Omg that's great u want to change your name now from simplesprout to superman lol x

[Blackbird6 in reply to simplesprout]

That's really good to hear well done for getting there 💞💞

[simplesprout in reply to Blackbird6]

Thanks blackbird

[HungryHufflepuff in reply to simplesprout]

That’s amazing, so wonderful. What a great recovery, and a great achievement today. Very best wishes to you simplesprout 😊

[simplesprout in reply to HungryHufflepuff]

Thank you hh

[Lemon7 in reply to simplesprout]

Fantastic. Hope you continue to go from strength to strength. Best wishes to skylas too.

[skylas in reply to Lemon7]

Thanks lemon 7 x have u ad a transplant or r u on the list x

[Lemon7 in reply to skylas]

No I haven't. I am diagnosed mild copd early this year. Just want to wish you well for your treatment.

[skylas in reply to Lemon7]

Aw that's so nice thanks so much x take care n keep well as u can x

[Izb1 in reply to simplesprout]

How fantastic is that simplesprout, well done you x

[Hacienda in reply to simplesprout]

Followed your progress Hun, Remember how quickly it all happened from going on the List to Transplant, Amazing, just like yourself, Onwards & Upwards. Love n Hugs. C. XXX

[simplesprout in reply to Hacienda]

Thanks H, hope your doing well.

[skylas in reply to Hacienda]

Hi how u doing x

[Hidden in reply to simplesprout]

What a brilliant outcome, pure determination. 🙂

[simplesprout in reply to Hidden]

Cheers don, keep rhyming

[skylas in reply to simplesprout]

Hi me again x u no when u woke from the op n still were on the ventilator how long were it until they tuk it out n cud u feel it I mean wascitvpainfull x n how long did u have your chest drains in for n same again were that painfull comin out x I no everyone's different I am just asking x ps bet your dogs living g all the walking u doing now x ps how many tablets r u on a asay n how often do u go for check up at hospital x

[simplesprout in reply to skylas]

Hi sky, the tube was removed pretty much as soon as my nurse realised i was properly awake and to be honest i cant really remember much about it, so i dont remember it being painfull or uncomfortable. The drains are a different matter, i had 5 and there is no set time that they stay in. They tend to take them out on different day's and they are uncomfortable. My first one was taken out after about 5 days and the last one after ten days. You can always ask for pain medication prior to them being removed. If you are sensative to pain they will give you morphine, but you have to ask. One thing i will say is make sure your bag is packed....my call came after i was on the list 8 days and i didnt expect it so soon LOL . I wont surgar coat it and say its a pleasent experience but for me it was worth it. There really isnt a set routine because every person is different and responds differently to the op. Anthing else ask away....

[simplesprout in reply to skylas]

Sorry got side tracked and didnt read the whole message you sent. At first you will need to go clinic once a week for the first month then once a fortnight, now im every 6 weeks but they can phone you and ask you to come im at any time just to check whatever. Tablets, well at first they have you on about 40 a day( not kidding) but over the time your in there its reduced.im now on 15 a day and from what im told thats not a lot. If you have read caspiana s blog she pretty much nails the way some of them make you feel. Shaky, sick,and its a fight to keep the weight off because of the steroids. But hey , its a great excuse for putting the pounds on.

[skylas in reply to simplesprout]

Aw it sounds like your doing so well yea I've put on loads with all the steriods I'm on them most of the time now just to get about a few feet if not I'm bed bound x thanks for replying x il b in touch x take care x

[simplesprout in reply to skylas]

No problem, here to help 😊😊😊😊x

[skylas in reply to simplesprout]

Hi how u doing now x any problems x

[Damon1864 Volunteer]

That's a fantastic achievement well done, you have a lovely weekend and take care of yourself 😊 Bernadette xx

[simplesprout in reply to Damon1864]

Thanks bernadette

[simplesprout]

Thank you so much

[seyre]

Hi. I suffered from emphysema and had my transplant almost 6years ago. I was very weak and on oxygen in a wheelchair, when I got the call it was doubtful as to whether it would go ahead but my consultant said I was a fighter and the op went ahead. It was successful but I was very weak and in hospital nearly 3 months with few blips and getting my strength back. The staff were absolutely fantastic and have my full admiration. I am now enjoying life to the full thanks to them. Don.t hesitate to ask me anything at all. Good luck

[skylas in reply to seyre]

Aw wow what a great out come x how come u were in hospital so long what were the problems x how life for u now x

[skylas in reply to seyre]

Hi how u doing x have u got any problems x

[seyre in reply to skylas]

Hi. I have a slight problem with my kidneys and some skin cancer but all manageable. I have regular check ups. Compared to how i was these problems are incidental and i have no regrets at all about my transplant. It's all a small price to pay for having the life I have. I wouldn't be here today otherwise.x

[skylas in reply to seyre]

Aw wow hope they sort your kidneys n skin out without to much to go threw x n I'm glad u say it was worth it to b where u r today x gives me hope x have a great Christmas let me no how kidneys n cancer r goin xxxx

[seyre in reply to skylas]

They Don.t worry me unduly, I know that I am in good hands. Enjoy Christmas x

[seyre]

I had 2 rejections, bowel problems and very weak. They showed so much care and patience and got me where I am today. I have a good life enjoying all the things I did before I got ill. As I said before I have nothing but praise for the staff at wythenshawe they gave me a life. X

[skylas in reply to seyre]

Aw that's great news they sorted yourc2 rejections r u still havin problems with your bowels now or any other problems x yea when I did my 3 day accesment they were great x take care x n keep as well as u can x cheryl x

[seyre]

No my bowels are fine. You need to take care in the sun. Keep as fit as you can while waiting and look after yourself. Please let me know how you get on. Good luck x

[skylas in reply to seyre]

Aw thanks so much yea I try do exercise bike every day n am waiting on getting oxygen x thanks for message x u take care to x cheryl x