Do you know anyone who as idiopathic pulmonary fibrosis ( lung disease)

[Fincham10]

Hello im new here,

i'm interested to find out, if anyone out there as a lung disease called idiopathic pulmonary fibrosis, as my father had the lung disease.

[sibkev]

i had it before transplant dude what you wanna know

[Eilyfoley]

Have IPF and was diagnosed nearly 2 years ago. Are you on medication?

[Tweetie13]

I have IPF I was diagnosed 2012

[Izb1]

Hello Fincham10 and welcome to the site. I have bronchiectasis but Im sure there will be plenty of people who have IPF that will reply x

[cazza34]

What needs r u on

[nozosoph]

Hi, I contracted Idiopathic Pulmonary Fibrosis (IPF) after a chest infection end of 2014. IPF and COPD are both chronic and disabling lung diseases and cause different forms of physical damage to your lungs. The word IDIOPATHIC means that the medical people do know what was the cause of the illness.. Pulmonary Fibrosis is damage to the lungs and makes breathing more difficult. Hope this has helped you, best of luck for the future.

[nozosoph in reply to nozosoph]

Sorry made a mistake missed out the word not. Should have been . IDOPATHIC means that the cause of the disease is NOT unknown.

[Fincham10]

Hi my father had idiopathic pulmonary fibrosis, and had been suffering for years, we found out, our father was exposed to asbestos from his jobs, he did in the 1960s, as he worked for Liverpool Corporation and British Railways, Liverpool Lime Street , Central Station, also worked for other organisations, like Iron Foundary etc that had asbestosis, and we didn't find out about this, till after our father death, i'm sure theres others out there, with the same lung disease, of what my father died of, an

unsure how they have got a lung disease, or maybe already died, and there families may not be aware of the bigger picture, as to why there love one have died or maybe suffering from a lung disease of the one our father died of.

We immediate family got answers , of why our father died but it was too late,

[mogs302 in reply to Fincham10]

If your father got it from asbestos, his pulmonary fibrosis is NOT idiopathic since "idiopathic" means "origin UNknown."

[DeeSending]

Hello Ficham10,

Yes, there are lots of us with IPF or PF depending on whether the known source is or not. I have had it for approximately 7 years along with a bunch of other chronic illnesses. There is loads of good information on this website, the Mayo Clinic and Centre for Excellence. Despite the doom merchants it does not have to be a sudden death experience. Getting excellent specialist medical support is vital. Get at least three opinions. It has taken me four goes to get to a holisitic management team. As for me, once AI recovered from 1 year of organizing pneumonia, an auto immune linked disease, I started walking. A little at a time. Build up the strength. I now walk 3 kilometers and hope to get back to 6 kilometers a day in the next year. Slowly slowly catchy monkey.

Keep talking to everyone. The support on this site is fabulous.

Cheers

Dee

[mogs302 in reply to DeeSending]

How old are you? Congrats on your determination.

[DeeSending in reply to mogs302]

Hello Mogs, I’m 68. I look forward to my 70th birthday.

[DrARDS in reply to DeeSending]

Can you recommend any PF specialists in the UK (Or aboard)? I want a second/third opinion for a family member. Thanks

[Lauren19751]

My mother has it