CT Scan: Hi everyone, I had my latest... - Lung Conditions C...

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CT Scan

The_Gardener profile image
3 Replies

Hi everyone,

I had my latest CT Scan on Sunday, I was second on the list and was all finished by 08.30. I will get to see the results when I next meet my consultant in mid November.

I also finally got the follow up letter from my last visit to see him in September. His current diagnosis is still NSIP suspected extrinsic allergic alveolitis, a big long name to say I have become allergic to something I have inhaled but they don't know what.

He also put some of the figures in from my last lung function test which was done when I was trying to reduce my steroids, which didn't go well. FEV1 of 39% with an obstructive picture and DLCO of 54%. I guess I should be feeling worse than I am with figures like that.

He has also confirmed that if the CT Scan results don't show anything obvious then he will refer me to the ILD Multi-discipline Team at the local Teaching Hospital for review.

So it is still all a waiting game but at least I don't feel too bad at present now that be prednisolone is back up to 10mg a day.

Take care everyone

Colin

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The_Gardener
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sassy59 profile image
sassy59

Hang on in there Colin. Thinking of you. Xxxx

Corin1950 profile image
Corin1950

Sounds like things are moving forward albeit slowly . At least you’re getting a clearer picture of what’s going on and it does sound very complex.

Take care and best wishes

Corin

Anemone1905 profile image
Anemone1905

Hi Colin, I hope that you are okey and that you have finally got a diagnosis. I took more than 15 months for the doctors to find a diagnosis for my lung disease. I have heard that it usually takes a long time because it is such a complicated matter. All the best, Susanne

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