I think you do a great disservice to patients with overlapping copd diseases and they would probably resent you saying they felt neurotic which i imagine in most cases they don't.They just want to maintain thier health and if at all possible get better and prolong a better quality of life
Your research study dated 2005 is inconclusive and very generalised and obviously us lung challenged people are going to be susceptible to any weakness mentally and physically throughout our bodies and minds.
i seriously think it is time you approached the medical fraternity with a little more grace and favour and with a combined approach to your healthcare you would achieve great things.
Grace and favour THATs good’’en ... some how I don’t think so.
But I might if heart lung doctors start working together.
For years I have been left feeling nurotic by doctors when I went to doctors with overlapping copd conditions AND had to fight all the way to see gut doctors MSK doctors.
That’s with out issues with benefits when clearly can’t do out SO guess am all graced favoured out AND now am something they have created.
I understand why specialist doctors don't venture outside their speciality but I agree with you that it is painful. A few phone calls between specialists might solve a lot. There definitely needs to be more discussions between specialists and their differing fields. When you need to go to different doctors it's like the left hand doesn't know what the right hand is doing and you're stuck in the middle.
I certainly have to agree with Skis. How dare you tar me with the same brush as yourself! You still have a lot to learn. There are many here with overlap conditions, it comes with the territory , that just get on with living their lives to the best of their abilities.
Looking back over your past posts it seems like you are forever berating the medical profession for one thing or another, quite unjustly. If you think that you can do better then why do you not enter the profession yourself? Currently doctors in the UK may train for up to 16 years before qualifying. 5 years for their degree (or six if you intercalate and take a useful subject like, say, History of Medicine), 2 years for a post-graduate foundation course, and then 3 to 8 years in specialist training. Not to mention the excessive hours they are expected to work. You really need to have some respect.
This is an open, public forum, one that all your doctors/consultants/registrars can visit and read as well. How do you think that they are going to react to your posts? It only takes one of them to pick up on those posts and to recognise you..................! Let's just say, you are doing yourself no favours.
2grays a Do hope the read it AND it rings a cord with them ... am not 100% but I think BLF was formed by heart surgeon and lung doctor working together.
So that shows you what can be done IF others would too
All I know JAS is that Pete (sarcoidosis, COPD, ILD, osteoporosis, heart disease and chronic back problems plus sepsis and cellulitis) has received very good treatment on the NHS and is grateful to still be here after last years hospitalisation with sepsis.
The NHS is under extreme pressure but is doing its best. Yes things go wrong and it can be a bit of a postcode lottery but generally everyone is trying hard to provide good care.
We have a way to go on dementia and our hospitals are ill equipped to care for dementia patients but I live in hope that one day improvements will be in place.
Do agree Hospital doctors do save life’s especially after poor gp Care In my opinion
Pathology of lung disease and it’s overlapping conditions are well documented SO why is it such a struggle to acquire preventive care medicine when you first present with condition.
As much as I love hospital’s be nice if things was tackled befoure become emergency
I would like to tell you about the treatment I have had from my consultant ,when I was first referred she suspected I had bronchiecstasis, so I was sent for a ct scan ,results were mild emphysema some bronchecstasis,and a small nodual ,nodual was checked agian 12months later she was happy it was benign, at one time I lost my voice ,she sent me to ent to have my throat checked ,turned out it was the braltus I was using ,another time I complained of acid making me cough, she sent me for endoscope, of late my feet and anckles have been swelling quite alot ,as my next appointment was over due by four months I rang her secretary said I was worried about heart desease, her secretary said she would pass message on to her,the next thing I had an appointment for a heart scan which turned out to be ok ,what more can I ask for I have been well lookedafter by my lung consultant, I no all consultants are not all the same due mostly yo over work ,the only complaint I have is the waiting list ,she say see you in four months ,it is always eight or nine ,that is not there fault that is another story ,I have had my new appointment through at last for the 19 August so glad as I think my lung conditions has progressed,I am so grateful to have been looked after so well
You spend so much time complaining about the medical profession with whom I have a lot of contact, and I agree that some are better than others, but on balance I would say I get very good treatment. The NHS and an absolutely brilliant cardiothoracic surgeon saved my life in 1961, and later my obstetrician looked after me so well that I had two healthy sons, although I spent an awful long time in hospital. The obstetrician refused to let me go home after second son, as he couldn’t face the thought of my having any more children! I agreed wholeheartedly, but how lucky I was with his care, especially when I read the advice that is given today. The lung disease came much later, the first doctor who saw me was very good and set me on the right course. My former cardiologist was very kind and careful. The new consultants I have since we moved are kind and very good in Bristol. I see an eye specialist and gastroenterologist at Newport. The hospital is rather old but the care is good. None of this is to say that over the years there haven’t been things to grumble about, and over the years I have made a couple of specific complaints, one of which resulted in the consultant in question being sent on a bedside manner training course! Finally my excellent GP sees me every six weeks or so to make sure that I am keeping reasonably well. My biggest problem is that the Welsh and English NHS don’t communicate well as their computer systems are incompatible, so you have to be proactive, as you are anyway. I wish I didn’t have so many things wrong with me, but at 76 I know I am lucky to be here and enjoy what I have. I hope that you learn to cope better with all your problems, but the only thing you are really doing is making yourself miserable.
I do think you are right to highlight the need for specialist doctors to work together. The GP system of referral to discrete specialists sometimes means that multi - faceted conditions do not receive the benefit of inter disciplinary discussion.
My recent visit to ambulatory A&E where such discussion did take place led to changes for ongoing treatment.
Our NHS works wonders despite problems caused by the failure of successive governments to forward plan for the, statistically obvious, demographic needs of an ageing, long-living population. It is certainly time there was a detailed look at the basic NHS structure including the role of GP practice within it and the importance of public health factors such as nutrition, physiotherapy and exercise.
I was diagnosed with CTD NSIP last year. Have now also got a diagnosis of lupus. I see the rheumatologist and the ILD consultant at the same time when I go for review.
Although I do not always like what they tell me,I am satisfied with my treatment.
At the moment am having loads of scans/ tests to check out my symptoms. I’m very happy with the way I’ve been treated,all the staff I’ve encountered have been helpful and will always answer my questions.
I would really like to reply to a lot of these posts the majority I find very helpfull and reassurant but I do not understand a lot of the termanolgy of difference medical conditions . over the years I had worked in unventilated areas that contained asbestos installated pipework, in 1984 I had a bad chest and the ..me I am a 80 year old retired Plumber / heating engineerGP said it was Asthma and i suffered with breathing problems for a few years until 3 year ago during a Asthma review the practice nurse said i had Copd however i was referred to a GP who sent me for a scan and i was found to have asbestos I have had 2 bad hospital admissions in the past 12 months for all i see a consultant at least twice a year . i am now on home oxygen and this post is really to praise the NHS and everyone who has ever treat me .. I know I have went on a bit and hope I havn't bored anyone
but i am not very good with computers and letter writing regards ,Jimmy F
We don't worry about your letter writing jimmyF,you don't have to be a rocket scientist to be on here and i for one am pleased they are looking after you.take care friend.
Best wishes Ski's and Scuffs whose a cat and can't even talk.
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