Clinical trial: I have COPD /Emphysema... - British Lung Foun...

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Clinical trial

Rab1313 profile image

I have COPD /Emphysema and would be interested in taking part in a clinical trial ... I’d be interested to hear from anyone that has done this

11 Replies

Hi

trials4us.co.uk/ongoing-cli...

londonclinicaltrials.com/cl...

Rab1313 profile image
Rab1313 in reply to stone-UK

Hi many thanks for your input much appreciated ....take care Rab

Hi I have the same condition as you I went on the Celeb trials in Jan 2018 and I ended up having LVRS ( lung volume reduction surgery ) in October 2018 with great success .I'm doing well don't have to see my consultant for a year ,but I still have to have lung function tests every 3 months for their records. I believe they monitor you for 5 years .My trials have finished now i had them at the Royal Brompton Hospital in London and im sure if you get in touch they can tell you if there are any more trials being done .Good luck .

Babs xx

Hacienda profile image
Hacienda in reply to Alfiebax2

Morning Bab's, I remember when you were Struggling, at the same time as Skis and myself. Today, I am so Pleased you have got through that terrible time and with LVRS have come through to being so Strong & Positive. You are a Great Advocate for us all Hun. Wishing you all the Very Best for your Future Plans. Love n Hugs. C. xxxx

Alfiebax2 profile image
Alfiebax2 in reply to Hacienda

Thank you my darling I too hope all my struggles are over and my second Life begins 👍😄 I also hope that you continue to have good health and less struggles . I don't know about me being a great advocate , I think you and skis were there before me . 💐 I send you big hugs and love 🤞 for all our futures .❤️❤️❤️❤️

Much love Babs ❤️❤️❤️💐

Hacienda profile image
Hacienda in reply to Alfiebax2

Thank you Babs. ❤🌹❤😚😚😚xxx

Rab1313 profile image
Rab1313 in reply to Alfiebax2

Hi Good morning thanks so much for your response... the LVRS is my dream ,really happy for your success just what I wanted to hear .wow I’ll be in touch with the Royal Brompton Hospital,fingers crossed

Rab xx

Alfiebax2 profile image
Alfiebax2 in reply to Rab1313

I wish you luck and although it's a hard journey if you are a fighter like me,I've always refused to let my condition rule my life , you will befine 4 weeks post op my surgeon was amazed at how well my recovery was and discharged me from his books after 3 months the Brompton are a fantastic hospital.Please be aware that you have to meet certain criteria for to have the big op of LVRS both physically and mentally . I'm almost 72 years old and feel honoured I was able to have the op .

Good luck in your journey. XX

Rab1313 profile image
Rab1313 in reply to Alfiebax2

Hi again

I’ve just googled the Royal Brompton and read up on the CELEB Trial it is exactly what I was looking for , I emailed the contact and I’m eagerly awaiting a response.I’m 68 and like you a fighter I believe I’m both physically and mentally strong and hopefully I meet the other criteria ,can feel a spring in my step already

Thanks again

Rab xx

I’ll let you know how things progress

Alfiebax2 profile image
Alfiebax2 in reply to Rab1313

I'm so pleased I could be of help .The Celeb trial people are fantastic and I hope you are successful in your goal to help your breathing .Please keep us informed on how you get on

Babs xx

Just received an email from The Royal Brompton and the trial is near completion but still open.She’s included a link for my Respiratory nurse/Doctor to read through re my meeting the criteria an be referred

So far so good I’ll be talking to my respiratory nurse tomorrow and we’ll go from there,fingers crossed again I can be referred

I’ll keep you up to date have a wonderful day

Rab xx

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