PPFE

[SarahLotus]

My daughter has been diagnosed with PPFE

is there anybody else with this condition on here ?

[Hidden]

Sure I did post some time ago on ppfe

I think it’s name for ipf but not indopathic type but prognosis is same as ipf

I think this Blfrunner who sometimes post on here and think he might have what you talked about but am not sure BUT am about name of post

[Moolies]

Hi sarahlotus have you heard of thoracic surgery? Apparently on occasions this is done and good outcome I know there is a place in America great story about a woman much older who now has a lease of life but each case is different but it made a good read it was positive and I wish Daughter all the luck🙏

[Kcn3]

Hi my 24yr old daughter was confirmed with ppfe last week.

How are things with your daughter. Made any progress?

[andersBE]

I have PPFE Sarah, and I am stable...fell free to ask me anything.