Not a Good Result: After all my... - British Lung Foun...

British Lung Foundation
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Not a Good Result

After all my Positivity and happily advising all to be the same, I came down with a Bump Yesterday with My Consultant. As we all Know our Disease does not get Better, Only we can Control it. My Lungs have Got Worse and as I was Borderline for the valve Procedure last Year , though they went ahead, this Time they do not think my Lungs would be able to take another Procedure. Amy said, Take all the inhalers/meds you want, they are just to assist you not Heal you, She said I am the one who has kept myself going through Being Positive, Exercise, not smoking , Generally Taking care of myself. I am to have an Echo Cardiogram and a 6 minute Walk when they send me new Appointments. They will Discuss my procedure at their next meeting on 12th July. I felt Heart broken, I cried a little, as my family are planning to come over for August. This Morning I've picked myself Up, Dusted myself Down and will continue to stay ahead of this dam COPD. I'm off to my Breathe Easy Class for 10am, I will meet up with my Lovely mad Bunch and we will have a Laugh trying to Exercise to Hip Hop & House Music compliments of our 70 year old Temporary Instructor Graham. Love to Everyone and Stay Positive. XXXX

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So sorry that the news was not a lot better, you certainly deserved better, but you already knew there was no prospect in of healing so nothing new there. Not only have you looked after yourself well, you have encouraged many many others to do the same and that is a big positive. πŸ™‚ Hugs 😘xx

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Thank you Don, Yes, I am doing that, This Morning is another Day, I shall do my very Best, just a Hic up, Stiff upper Lip and all that. I will battle on and Look forward to your Very Welcome Poems, Rhymes, Sketches, Pick me up dotes. Love n Hugs Dear Don XXXX Carolina .

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Oh what a bummer. I am so sorry. You are always the one who inspires others to look after themselves and make the most of every moment and I know that you will carry on being positive. To help a bit I have brought cake!🧁🍰 xx

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Thanks LP,Ha Ha , Hope it's with Prosecco, we had that at our last Class on Monday, for a leaving Do. A Girl going back to Liverpool. I shall carry on, It was a Good feeling hoping I would get New Valves, Onwards & Upwards, It's the only Way. Love n Hugs. xxxx

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πŸ₯‚ x

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So sorry you had to be told that caroline, but you are doing everything possible to help yourself. On with the lippy girl go shake it all about ,how I wish I had a magic wand,. JaneπŸ’„x

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Thank You Jane, Yes I once had a magic wand in a Good Job I once had. I will carry on as Before, may Try a Bright RED Lippy, Just to fire me up again. Love n Hugs xxx

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Being upbeat and putting on a smiling face is very tiring for me also at the minute, don't know whether its all the rain or the pulmonary rehabilitation and I'm only on the 3rd session tomorrow, would it be ok to ask, if living in a warmer climate makes you feel better? Jane

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Sorry your not so good Jane, I have two more Rehab classes, I will miss them. The rain is a Bummer, But if I could(in Hindsight) I would never have left the warm climes, (more so for leaving my family) Yes, I do think it would be Better, though not The Heat of summer would never Breathe. Can't live in the Past, Here and Now is the place we are. have a Great Day Hun. Lots of Love. xxxx

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Thinking of you dear Jane. Xxx 😘

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I'm really sorry to know you didn't get the good news to match your positive attitude. When they discuss your procedure next month, does that mean there's still hope for you to have something done, either new valves or something else?

πŸ₯‚ Here's some virtual prosecco for you.

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Hi Hun Again. They will Look by the Ecocardiogram this time. which they did do the other week with the Bronch. I think I may have expected too much, but, we all Hope for Things we can't have. I will carry on the same, and Drink your lovely Gift of Prosecco, as I said to Jane, I just may change my Lippy Colour. Ha. Love n Hugs. xxxx

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What a bummer dear Carolina but, you know what, you’re going to breathe easy today and you’ll be welcoming your family in August.

You’re a real inspiration to us all on HU and I’m sending lots of love and hugs your way. Xxx πŸ˜˜πŸ’–πŸ’

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Thank you Carole. Yes I shall carry on to stay as I am, It's another day. Love n Hugs to you Both. xxxx

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Sorry to hear your news and hope you keep being positive and keep you and the rest of us going. You will look forward to seeing your family in August, so something to look forward to. You have a good positive look on life so keep it up. 😊 xx

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Thank You Hun for your supportive Words, Means a Lot. Love n Hugs xxx

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Sorry to hear that take care

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Thank You Shortlungs, I have Long Lungs, But will keep Positive with Them. xxxx

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Morning love, sorry to hear that you didn’t get the results you wanted. I know your positivity will shine through eventually, as it always does, these things hit us hard, but knowing you, your warmth and cheerfulness will surface and you’ll be back up again. You’re always there for others so I hope you can get a little comfort from our support and best wishes. Take care good lady, love and gentle hugs. 😘XXX

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Thank you Huni. Love & Hugs Back XXXX

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What a bummer, but look on the bright side, the news could have been so much worse and devastating. Keeping your chin up and to keep going is all you can do, it's all any of us can do.

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Hi Hun, Yes, I have said this in my Reply To Ski's just Now. Take care "Bird Whiperer" Love n Hugs xxxx

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So sorry you were given that news. Must be very deflating and disappointing as I know you have strived to get your lungs fit enough for the Re plant. Hope things improve enough to get that second chance eventually you never know and I can see you are not a quitter . Keep on keeping fit / fighting. Good luck with the meeting on 12th July . Cx

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Thanks Chris, Yes I'll carry on, you never know what's around the Corner. I will always stay Positive though . Love n Hugs xxxxx

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You and other lovely people on this site helped encourage me when I was newly diagnosed with copd and looking for information and advice. Your attitude to this illness will, I'm sure, keep you going strong. Life is so unfair sometimes. Keep looking after yourself and all the very best to you.

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Thank you so Much Hun, I remember when you first Joined us, I do hope your Feeling Better now. I will stay Positive. Take care Lemon. Love n Hugs xxxx

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Just finishing rehab course. Doing ok. You take care and Love N Hugs to you too.

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Sending you love......... and you already sound more positive.

You are an inspiration to many on here β€οΈπŸ’•X

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Hi Hun, Yes another day to stay Positive, I got up this Morning with more Inspiration. Love n Hugs, Stay Well as You can. xxxx

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My lungs are long too but just call myself shortlungs keep being positive

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Nice one Hun, You stay Positive also. Love n Hugs xxxx

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So sorry not the news you expected sweetheart. Love your amazing spirit and positivity. Good luck for 12th. Please let us know how you get on.

Love cx

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Hi Hun, Read you Comment this Morning at my Class, Now home and replying to all the Lovely Messages of Support. I will certainly keep everyone Updated. Love n Hugs Stay well C. xxxxx

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Dear Carino,not the news you wanted to hear but somehow i feel sure that with a bit of tweaking here and there and with all the exercises you do and your endless positivity there is every reason that you will at least remain stable for a long time to come.

Seeing my consultant next month after another scan and i am sure that we will have much the same conversation,i guess for us the valve procedures perhaps came too late or we are in that unlucky 25% who don't receive a lasting benefit.

Anyway my lovely,i would still seek a second opinion on your ability to fly as i am absolutely sure given your lungs are still in better shape than mine that with ambulatory o2 it is doable and of course if all else fails it's boat,rail and/or car that will get you back to the motherland and that rich warm health giving sunshine.

Pensando positivamente para ti mi amor

Besitos....Ski's and Scruff's xx

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Hola Carino Buen Dia. Yes, it was News I didn't want or Need. se la vive, what will be will be. I have just got home from my Ex. Class, finished it with Tai Chi. So Onwards & Upwards as per usual. I will remain the Positive Person I am and Get on with it. I will Tweak Here & There according to Each day as It comes. Si Carino, me voy a pais de me Corazon cuando puedo. The family & I planned for them to come here in August, That is on Hold, not because of myself, My Daughter is caring for her Step Mum Wendy, and since her First Chemo with her Lung cancer, They have now Found shadow on her Breast, so a Biopsy has to be Done. There for the Grace of God I say. There is always someone worse off than Yourself. So, I am putting everything on Hold at the Moment. I did mention to Amy again about Flying , She Turned her Head as to say No. I don't fancy all that long Drive , done it many times when Fit , not now. Well my Dear Skis & Scruffita, I wish you every Positive Result next Month for your Scan, I hope you will do Better, and if Not, we will sit at Home or Garden when the Sun comes Back, I'll salute you with my Vino & you with your Cerveza. Arriba Abajo al Centro y Dentro. salud Mucho Besos y Abrazos. xxxxxxxxxxxxxxxxxxxx

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My dearest Carolina,

Oh goodness me. 😒 I truly hate this kind of news. It must have been devastating to hear this especially because you have waited so long for this appointment and worked so hard at keeping fit. You said they will have a meeting about your case? So that means there is room for discussion does it not? Please do not lose heart. You are doing so well and you inspire me with your fortitude. Keep us updated my fear friend. I am holding your hand.

Sending loads of love. xx 😘🌞🌼🌻

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Hello my Dear Lung Buddy, Thank you for your Lovely Words of encouragement. I was Disappointed and upset. Today though is another day my Friend, there are lots of other friends on here who don't get a first chance, let alone a Second. I shall carry on Exercising and Staying Positive for my Lung to carry on Breathing at it's Best. Maybe their Meeting will be in my favour, Although Amy didn't sound that Positive herself. As Long as your Holding my Hand along with Ski's , I'll get by very well. I shall always send words to those who are scared or Need advice. You too my Dear, must always stay Positive for when That Glorious Phone call comes to you. I always think of you daily, and Look to see your Name whatever you are saying. Love You Cas. Big Hugs & Kisses to You & Chom. Love n Hugs Dear Friend. xxxxx

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*BIG, BIG HUG* xx 😘😁

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😘❀❀❀πŸ’ͺπŸ’ͺπŸ’ͺ😘😘😘

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Sorry to hear that your news was not what you had hoped for.Thinking of you,stay strong xx

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Thank you Comino, I will do my Best and will stay strong, I'll keep my Positivity as we all should. Love n Hugs xxxxx

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So sorry that it wasn't the news you were hoping for. You're an inspiration and give encouragement to many. Put your bright red lipy on Carolina. Sending you love and hugs. πŸ’„πŸ’…πŸΈ

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Thank You Majt, I will wear my Red Lippy Tomorrow at Rehab, I'm the only one that Does, It was a Disappointment, but I have Been OK Today, Onwards & Upwards Hun. Love n Hugs. xxxx

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Go for it girl.πŸ˜‰πŸ˜‰πŸ˜‰

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That's the way Carolina I like my lippy on to. Little things make you feel so much better just had my highlights done today and I feel more like my old self. That's it Onward and Upward Carolina I am wishing you well. πŸ˜˜πŸ’•πŸ’•

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πŸ‘ΈπŸ’…πŸ’‹πŸΈπŸΎGot to have Pleasures Hun. Xxxxx

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πŸ’…πŸ’„πŸΈπŸ’‡πŸΉ and πŸ• little fur babies. xxx

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Hi Carolina so sorry to hear your news but know with your positive attitude you will overcome this and carry on exercising and fighting this horrible disease. I really hope your family will have better news and will make the visit in August because this will make you feel so much better. Love and hugs from sunny Spain. Carole πŸ₯°πŸ₯°

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Good Morning Carole, Thank You Hun. Yes, I am off to my Rehab this Morning, Life go's on and I have My family to Look Forward to. xxxx

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Thats the spirit girl, bright red lippy, knock them dead. Just love your spirit. Fingers crossed for the 12th, they may come up with something else to try. I do hope that things change for your family and they can come over in August. Sending love and hugs xx

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Awww, Thank you Hun, A Great Lifting Comment. Take care of yourself and On with the Lippy. We Ladies have to Pout now & again. Love n Hugs xxxx

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Sad to hear the decision about your treatment. So glad you have your great support network to help you pick yourself up. All the best.

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Thank You Erg. Love n Hugs xxxx

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So sorry about your news . Try to keep up your positivity - not so easy when you've had a knock back. Stay focused on your family visiting soon. Sending you hugs Anita x

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Sorry to hear your disappointing news, Carolina. You're always so positive and supportive to others and I hope you won't see this as a major setback. Take good care of yourself

Love

Corin

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Keep your chin up, your an inspiration x x z😊😊😊

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Your positive outlook helps so many , keep on pushing against everything. Know you will enjoy seeing your family xxxπŸŒžπŸŒΈπŸ’

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I am so very sorry to hear that. I had been hoping they would/could remove, clean and reinsert them and you would improve, perhaps not as much as when first inserted, but some improvement.

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Hacienda I am lost for words.

Of everyone who posts here you are the one who is so consistent.

Always positive, always encouraging others, always supportive and always genuinely kind, compassionate and understanding.

Your strength of character is already showing through in this post.

That is what will carry you through this. That and your family.

Plus this huge extended family who are so clearly wishing only the very best for you as can be seen in every single post.

Now it is OUR time to give back to you.

We ALL send you the most sincere good wishes and tons of love and you will have to settle for virtual hugs, though if we could change that believe me we would. En masse.πŸ˜‰

You have conquered this so far.

NO reason for that to change now.

And if you need a change of lippy colour just let me know and I will dash out to the pharmacy and choose a long lasting one for you.πŸ˜‚πŸ˜‚

With love.

Just as you give to all of us.☺️

May your god be with you Hacienda.xxx

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You are so inspiring, l take my hat off to you, but I also believe in a positive mental attitude can get you through most things we have to face. Love and best wishes xx

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Oh ,lovely Hacienda ,your news brought a tear to my eyes and a lump in my throat. 😭 We know this disease is progressive and in our remaining years,personally I don't think that a miracle cure will be found. Funnily though,even just by getting to know each other on this forum,you make a picture in your mind of the person behind the name. I have you as a fighter,a half full glass lady,knows her own mind and never sitting on your Laurels with a sympathy face on.! A few tears after the Consultant's words had sunk in,is absolutely fine and so is being disappointed. COPD has no friends and isn't particular whom it strikes .........however, I feel this time Hacienda will give it a run for its money- by run,I mean a marathon!!

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TY SH, Love your Comment, Lifts me up. Yes, have to stay Strong. Love n Hugs. xxxx

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I'm quite lost for Words for all these Beautiful Sentiments posted to me, I am in awe of you all. I love you and regardless of my Plight I wish for you all to Carry on with being Positive and above all "Happy" I plan to do so, Thank You Each & Everyone of you. Love n Hugs. XXXXX Carolina.

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What a disappointment ! I'm so sorry I hope the news will be better at your next appointment .

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I'm sorry you didn't get the result you wanted .Your such a positive lady and I know you will keep smiling take care of you πŸ’žπŸ’žπŸ’ž

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Thank You BB. I shall carry on and Fight on, as always Hun. Love n Hugs. xxxx

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Sorry for the poor results. Good for you for picking yourself back up. Keep pressing on, never giving up hope. I wasn’t suppose to improve ever but I have. I push myself everyday. My body thanks me. I’m rooting for you!πŸ˜ƒπŸ™πŸ»

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Thanks Bobbi6, Good for you , another Strong gal amongst us. Take care Hun. xxxx

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Oh don’t cry hacienda you are stronger than that lift yourself up and has you say we can control it and if anyone can it’s you Take care xxx

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Thank You Christina. I am now Good and Tomorrow is another Day. A Good one Cos I think the Sun will peep out. Love n Hugs xxxxxx

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So sorry you didnt get the results or reply you wished for and I have nothing to say you havent heard before but you have like the song says " picked myself up dust myself off and start all over again "( dont quote me on those lyrics but you get my drift) I was turned down for endobronchial valves and LVRS so I know how you pin your Hope's on these treatments , I even looked at the coils they use in Europe but all to no avail , apparently I'm passed those treatments even though my specialist used the word " robust" and otherwise healthy what ever that means , I hope your ok ,your post seems to suggest that , good luck with your hip hop class ( try some northern soul dancing ) tomorrow , as always breath easy and take care .

Dave

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Thanks Dave, Great Words. Yes, I did Yesterday, Picked myself up, and Today did it all over again. Tomorrow another day. Onwards & Upwards Hun. XXX

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How awful I am so so sorry ...I don't know you but am so sorry

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Hi Jann, Glad your catching up on Posts. As you see, we all Comfort each other, and it is so Inspiring and I feel the Big Hugs enfold me. I am Good this Morning as I hope you are, Another day to make ourselves Stronger . have a Great Day Hun. Love n Hugs . XXXXX

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Hello Hon. I am sorry to read your post. I feel for you very much and now you're in my thoughts so much more. I really don't know how to use this site and I miss reading everyone's posts. You deserve so much more, and that your COPD would get easier to handle. You're in my thoughts and I hope your weekend is pleasant. I can hear the birds in the garden a d t he sun is popping up now and then. BIG hugs xxx

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