Am a newbie

[Kylabreath]

Am new to this site am very lucky that a friend told be about it.

I have LAM and have had it for 7years now was completly unaware i was ill until i had a spontaneous collapsed lung on New Years day 2014. Had lots of tests and went to the QMC in Nottingham where the LAM centre is and they tryed a drug that they hoped would slow the disease but sadly it appeared i had, had LAM for 10 years before i was ill and diagnosed so the drug treatment sadly did nothing.

So am now on the list for a Double lung transplant and was listed in March 2015 and have had to false calls in 2015 but nothing since. I visit my transplant centre every 3 months which is the QE in Birmingham have a great team who are just so supportive to myself and my family but have lately been wondering if my time will ever come. But as my partner said you have to be in it to win it.

So with loads of love and support am hangin in there and waiting for my gift to come.

Am very much looking forward to making new friends on this group and having advice from people in the same situation. Not being able to breathe is certainly one of the scariest feelings in the world and i think until it happens to you no one truly knows what it like.

Look forward to hearing from you all. X

[Hidden]

There is no QE hospital in Nottingham. It will be either QMC, or Nottingham City Hospital.

[Kylabreath in reply to Hidden]

Thanks thats what i ment have been to so many hospitals lose track of them all.

[Hacienda in reply to Hidden]

Hi Hun, I heard there was a LAM Centre at City Hospital. Yes QE Transplant is in Birmingham. xxx

[Hidden in reply to Hacienda]

NCH is where I end up when my pseudomonas flares up. Brilliant hospital for ALL chest complaints from cystic Fibrosis, Bronch etc. The cancer department there is superb too. I have Bronch.

[Hacienda]

Hi Hun, Welcome , I am happy to be that Friend. Learn lots, and you can Teach us as we all help each other. We have a Few Friends with "LAM" they will come along soon. Love n Hugs xxxxx

[powderpuff]

Welcome Kylabreath😁, nice to meet you.

[peege]

A warm welcome to this British Lung Foundation forum. We're a supportive bunch whatever lung disease we have.

There is a LAM patient here that I can think of so I'm, sadly one left recently but may return.

All the very best to you for the future Kylabreath 😃

[cofdrop-UK]

A very warm welcome to you Kylabreath 🙂.

europeanlunginfo.org/lam/ab...

Love cx

[Caspiana]

Hello Kyla. Welcome to the forum. I am also waiting for a transplant. 😁 So glad you found us. xx 🌼🌻

[HungryHufflepuff]

Hello and welcome 😊

[ledge]

Welcome Kylabreath. I hope you find lots of love, support and laughter by joining this group. Good fortune be with you

[Gingerapple]

Hello Kylabreath, Welcome, it's nice to meet you. 🌺😊

[Izb1]

Hi Kylabreath and welcome to the site x

[illawarra]

Welcome Kylabreath, Welcome to the group. I hope your transplant comes soon. So glad that you have lots of love and support. Best wishes from Oz.

[kimmi61]

Hi Kylabreath 😁

[Comino2]

Welcome to you xx