Cystic fibrosis

[Sjpcf]

Hi all. Just wondering if there's anyone with c f on here. ?

[Mandy6513]

There are cf groups on Facebook. X

[cofdrop-UK]

There is a lovely member here who has a daughter with cf and is very knowledgable. Hopefully she will be looking in and will reply.

A very warm welcome by the way 🙂

Cx

[Sharp5Flat13]

I watched one video of a young lass with cf about two years ago. She demonstrated a vest that would expand (by air) to an extremely tight fit and then on command would vibrate at a given frequency. I think I remember correctly that she said she had to do this daily to break up the mucus lining her lungs.

[Erin001]

Hello, my name is Erin and I am a brittle asthmatic with acid reflux and enough meds to combat my condition x

But I'm sure their will be someone on here with the condition.

However, even those without the condition we may have some knowledge because often their are similarities between conditions, symptoms and treatment. So don't be afraid to ask questions we may or may not be able to help but we will try if not we will just give you some mental supportive advice. We don't want anyone to feel alone and want to make sure everyone knows there voices are being heard and they will get help eventually xx

Also there are these YouTubers you may of heard of: who are an American couple who the girl is battling with CF and she is brilliantly minded and motivational the channel is called 'The Frey Life' and the lady's name is called Mary and she has a husband called Peter and an adorable service dog called Oliver who is a standard poodle. Whether you have CF or not their YouTube channel is brilliant, they are fun, they like to educate about life with complex medical issues but there channel isn't solely about CF but is does show you the life with it and seeing someone going through a similar condition (I know that every CF individual is different, but it always feels better to know there are other people around that are going through similar battles to you)

If you have any questions feel free to ask. Healthunlocked is a friendly bunch of people, if there are anyone you feel is being unkind just report it. We all tend to look after one and other. Anyway so when someone is being slightly closed minded or being rude we may intervene just to say look there is another side to your view. There are moderators and admin who will ensure your time here is enjoyable and not ruined by nasty people. So don't be afraid to ask questions, share your story or even have a rant we don't mind even if it is not medical related (eg a joke, people often post pictures of their pets and other things) whatever you want to post about feel free to do so.

Kind regards,

Erin x

[sammy12345]

Hi sjfcp. Sorry, it's a bit late compared to when you posted, but hi! Yes, I have CF. Do you too?