Introducing my self to say hi, - Lung Conditions C...

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Introducing my self to say hi,

Dollybow profile image
70 Replies

Hello just joined, I have sever emphysema, I've had it for years but just kept it to my self till I ended up with Numonia in June 2017 then July 4th went in to hospital and had surgery on my left lung, they took the top part away,I felt lots better, I don't know any one with my condition and it can be a very lonely place, so just want to join this community to chat about things Thankyou for reading ❤x

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Dollybow
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70 Replies
sassy59 profile image
sassy59

Hello Dollybow and welcome to you. This is a very caring, friendly community and I hope you get more replies soon. Xxxx

Dollybow profile image
Dollybow in reply to sassy59

Hello sassy59 Thankyou looking forward to talking to people and finding out more about people's tips and illnesses and help or just a chat 😊x

sassy59 profile image
sassy59 in reply to Dollybow

I’m carer for my husband Pete who has sarcoidosis, COPD (bronchitis) and back problems. At the end of last year he also had severe sepsis.

We enjoy being together though and are fortunate enough to have family nearby so life’s good.

Wishing you well. Xxxxx

Dollybow profile image
Dollybow in reply to sassy59

Hi sassy59,I look after my self the best that I can I'm actually doing really well at the moment, I don't have family near buy to help, but I have few friends that do, your so lucky to have each other, and glad life is treating you both good, also wishing you both well, and we keep fighting because we have too,😘xxxxx

megshafer profile image
megshafer in reply to sassy59

Hi! Sassy, hope you and Pete are doing very well, and enjoying the spring.

Take good care both of you,

Meg xo💕🌸💕

sassy59 profile image
sassy59 in reply to megshafer

We’re doing well thank you Meg and enjoying beautiful weather at the moment. Long may it last.

Hope you’re as well as you can be. Take care xx 🌼🥰

CELAT06 profile image
CELAT06

Hllo Dollybow, welcome to our very friendly, informative site. Here you will find lots of kind people who can give you advice, have a laugh with you and share moments in their lives. X

Dollybow profile image
Dollybow in reply to CELAT06

Thankyou so much celate06, I am so glad to have joined this site,and it's good to talk and have a chat, I don't know any one personally with my illness who understands, but now ive found this site I can maybe make friends and suport others aswell, Thankyou 😘x

Welcome Dollybow, I'm sure you'll meet up with people with a condition similar to yours and certainly plenty of others ready to chat. 🙂

Dollybow profile image
Dollybow in reply to

Hi Don-1931 thankyou so much 😊x

powderpuff profile image
powderpuff

Hello Dollybow, welcome & lovely to meet you :)

Dollybow profile image
Dollybow in reply to powderpuff

Hello powderpuff, lovely to meet you too! 😊x

SquirrelsHolt profile image
SquirrelsHolt

Dollybow glad you've found this great forum. There are members of all ages,all types of lung problems and all of these are able to give advice through experience but we also love a poem,a rhyme or two,a rant! and pets and gardening also get a good look in. I'm certain you'll find your feet and fit in just wonderfully.

Looking forward to chatting with you soon.

Dollybow profile image
Dollybow in reply to SquirrelsHolt

Hi SquirrlesHolt, what a lovley welcome, yes chatt to you soon 😊x

Damon1864 profile image
Damon1864Volunteer

Hello Dollybow so lovely to meet you, we love having new members. I'm looking forward to chatting with you and hearing how you are getting on. Take care of yourself and have a good night 😊 Bernadette xx

Dollybow profile image
Dollybow in reply to Damon1864

Hi Damon 1864, it's lovely to be hear,and Thankyou, will chat soon,😊x

hypercat54 profile image
hypercat54

Hi Dollybow great to meet you and welcome to the site. We think of ourselves as a big HU family who are always there for each other. x

Dollybow profile image
Dollybow in reply to hypercat54

Hi hypercat54 good to meet you, the people who have welcomed me seem really nice, think I'm feeling part of the group already! Thank you 😊x

Badbessie profile image
Badbessie

Well hello Dolly as the old song goes. I also have emphysema. I have personally found the site a great help in many ways. Hopefully you will too. Welcome to our happy little band.

Dollybow profile image
Dollybow in reply to Badbessie

Hi Badbessie, Thankyou,for your kind message, emphasema too, gosh I have found the right place, finally 😊x

sak50 profile image
sak50 in reply to Dollybow

I too have severe emphysema, so welcome to the site. People are great here and have helped me no end . Just reading the queries means you generally get questions answered before you've asked them!! Welcome!!

Kittykat2 profile image
Kittykat2

Hi Dollybow

Think you will find some lovely caring people on here as I did.

They help all they can and lots of lovely posts and pics to look at too .Rhymes from our Don so a nice mix of stuff .

Welcome 🌹 x

Dollybow profile image
Dollybow in reply to Kittykat2

Hi kittykat2, Thankyou for welcoming me look farward to seeing those nice pics and stuff 😊x

HungryHufflepuff profile image
HungryHufflepuff

Hello and welcome. You'll meet so many friendly people here and get huge amounts of support and advice and laughter and poems 🌈

Dollybow profile image
Dollybow in reply to HungryHufflepuff

Hi HungryHufflepuff Thankyou for your welcome 😊x

jmsutt profile image
jmsutt

Welcome Dollybow! It is a very friendly and helpful community. Glad you are here. J

Dollybow profile image
Dollybow in reply to jmsutt

Hi jmsutt, what a lovely thing to say, Thankyou 😊x

Caspiana profile image
Caspiana

Hi Dollybow . Welcome to the forum. It's nice to meet you. xx 🌞🍀

Dollybow profile image
Dollybow in reply to Caspiana

Hi Caspiana, it's lovely to meet you aswell Thankyou for the welcome 😊x

coral12 profile image
coral12

Hi welcome.dollybow. i have severe asthma . bronchiolitis obliterans an sayer james syndrome .so not same as u. But lots of people will be along to reply.were all in the same boat with bad lungs.i was in hosp in feb for 9 days with flu which turned to pneumonia.now on pulmonary rehab course. An bein refered to gym.were all here to talk anytime x

Dollybow profile image
Dollybow in reply to coral12

Hi Coral12, Thankyou for your welcome, pneumonia is just awfull isent it? I hope your feeling a lot better, it can still be in your system for months after the intravenous antibiotics,you will gradually gain your strength with Rehab, it's really good for you 😊x

coral12 profile image
coral12 in reply to Dollybow

Thankyou for reply .u take care. Come on site anytime

megshafer profile image
megshafer

Hi! Dollybow, I had a CT scan to check for gallbladder problems....gallbladder was fine...but, they found mild emphysemous changes. So, far, so good. On this site you find the most wonderful, kind, caring people, alot of knowledge. Alot of talented people also!

Welcome,

Meg

Dollybow profile image
Dollybow in reply to megshafer

Hi megshafer, I hate haveing scans,lol so you have mild emphysema,I once got told by a Dr to stop smoking when I had mild emphasema,and it should not get any worse, but I never listened, I haven't smoked for 3 years now,glad your gallbladder is alrite, and thanks for the welcome 😊x

Izb1 profile image
Izb1

Hi Dollybow and welcome to the site, there are lots of people on here who have emphysema and am sure will give you lots of tips and advice. Hope you are keeping well. Irene x

robert1957 profile image
robert1957

hello dollybow please research magnesium deficiency and symptoms of magnesium deficiency also vitamins d3 k2mk7 good luck

Dollybow profile image
Dollybow in reply to robert1957

Hi robert1957,I will look everything up and Thankyou 😊x

davecarol2 profile image
davecarol2

Hello Dollybow nice to meet a new member . regards Davy boy xx

illawarra profile image
illawarra

Welcome Dollybow. You have come to the right place to get support, knowledge, friendship, fun and caring. I don't have emphysema, I have bronchiectasis and other issues but I know there are folk here who will be available to help. Glad you are feeling better since your surgery. Keep as well as you can. Best wishes from Oz.

Scottish65lass profile image
Scottish65lass

Hi Dollybow, I’ve only recently joined, but people have been so welcoming helpful and informative xx

Ozzy16 profile image
Ozzy16

Hi Dollybow i am Ozzy 76 years i also have severe emphysema and i know how lonely it can be i have friends but as you when it's bad no one can help i haven't had surgery as i think the doctor thinks i am too old but hey ho life goes on and every day brings something new so keep your chin up and look on the bright side all the best and welcome to the site

Hi welcome to the group I’m glad you feel much better after surgery

ScouseTaffy profile image
ScouseTaffy

Hello and welcome to Facebook for people with lings and brains xx

Ergendl profile image
Ergendl

Lovely to meet you, Dollybow. No longer alone here. :)

Penny326 profile image
Penny326

Hello Dollybow and welcom, I dont put much on here but I read a lot of everyone else's.

I have COPD bronchietasis and heart failure apparently, didnt have a clue until they told me ha ha.

Also all my organs are reversed, it does have a name but I've forgotten, some syndrome, anyway it means I'm all right. 😃😃😃. See what I did there!!!

Whitechinchilla profile image
Whitechinchilla

Welcome Dollybow to your newly found extended family.

So many members have said so much theres not much I can add except I hope that joining here improves your life for the better, as it has done mine. Once you have joined here I guarantee you will not feel lonely anymore.

Good wishes.

Aingeful profile image
Aingeful

Welcome to the site Dollybow! It has helped me a lot. I have Idiopathic Pulmonary Fibrosis and don't know anyone in my immediate circle with it . Its useful to discuss it with other sufferers here. I am glad that you are managing to cope,that's all we can do?? I see the Chest Consultant on Friday so am hoping things are still "stable" ! ( my writing changed to Italic for some reason,sorry!!) :-)

Dollybow profile image
Dollybow in reply to Aingeful

Hi Aingeful,Thankyou for your welcome,we cope because we are all brave and have too,I hope your consultant appointment goes well on Friday, lol that made me giggle that your writing changed like that haha! 😊x

FlossyF profile image
FlossyF

Hi Dollybow, welcome. Liz x

Dollybow profile image
Dollybow in reply to FlossyF

Hi flosseyf, Thankyou for your welcome 😊x

pegbl profile image
pegbl

High Dollybow, welcome to the site, you will find lots of friends, advice and laughs on here but most of all people who are sympathetic as we all suffer with lung problems in one way or another. XxxPeg

Dollybow profile image
Dollybow in reply to pegbl

Hi pegbi, Thankyou for the welcome, I'm sure I am going to find lots of advise and friends and things on hear,I hope your well 😊x

Offcut profile image
Offcut

Firstly Welcome. As someone that has multi conditions it is important that you are not alone and there are plenty of peeps on here that has or has gone through many issues that you may have or might have in the future. All in all we are a good bunch of people!

PMA

Be Well

Dollybow profile image
Dollybow in reply to Offcut

Hi offcut, Thankyou for the welcome,every one has been so good at excepting me as a newbie, I hope your well 😊x

Valsha profile image
Valsha

Hi, another newbie here. Everyone is very welcoming and you will find lots of support I am sure. Very best wishes.

Dollybow profile image
Dollybow in reply to Valsha

Hi valsha,your a newbie too? I feel really welcomed from the start, hope your day has been good and Thankyou for your welcome 😊x

revagayle profile image
revagayle

HI & welcome. I also have emphysema. Several years ago when I was first diagnosed I was on the internet & found some very scary information, However I came across this site & it changed my world. The people on here brought me out from a dark place. I cannot say good enough things about this group. Good luck to you.

Dollybow profile image
Dollybow in reply to revagayle

Hi revagayle, Thankyou for the welcome, I also was reading scary stuff,and thought I was given a life sentence, and wouldent face it, but all of a sudden pneumonia came, then last year half my lung removed, now I'm at peace with it as I'm living and every ones different, I try my hardest I never give up,but never meet anyone in my situation, or our situation lol, now I'm not going to feel so alone, hope your haveing a good day 😊x

Nicholatracy profile image
Nicholatracy

Welcome to this positive, informative and friendly site. All kinds of knowledgeable people belong to this site. 🐞

Dollybow profile image
Dollybow in reply to Nicholatracy

Hi Nicholatracey Thankyou for your welcome 😊x

Collie4 profile image
Collie4

Welcome. Lots of friends here to talk with.

Dollybow profile image
Dollybow in reply to Collie4

Hi collie4 Thankyou for your welcome 😊x

Dedalus profile image
Dedalus

Hello and welcome Dollybow

Dollybow profile image
Dollybow in reply to Dedalus

Hi Dedalus, hello and Thankyou for the welcome 😊x

Bettz profile image
Bettz

So glad that you had the lung reduction surgery and that it helped you so much! Hope to hear more good news from you.

Dollybow profile image
Dollybow in reply to Bettz

Hi Bettz, yes it did really help,I felt like I had a knew lung, but it went down a bit but I'm still so much better than I was,Thankyou hope your well 😊x

Bettz profile image
Bettz in reply to Dollybow

I'm glad that you could have the lung reduction because everyone can't - my problem is scattered throughout the lungs rather than just the top. Sometimes the damage is just at the top and then they can do surgery to remove that. It's not lucky to have lung damage but lucky to be able to have the surgery and have it help! God Bless!

Tricity125 profile image
Tricity125

Hi. Dolly bow This a good place and welcome. Why did they remove part of lung Iam. Tricity125 waiting on. A lung Trans I've. A1AD. Genetic Empysema. 53. Had since 42. Well. Take care. And bye.

Dollybow profile image
Dollybow in reply to Tricity125

Hi Tricity125, I had the top half of my right lung removed as it wasent doing anything it was just laying on the bottom half of my lung and I was finding it difficult to breath,also my emphysema isent genetic,they told me lung transplant list for 10 yrs time that will be 8 by now lol,I found out I had it when I was 42 but they just said it was copd then,dident really know a lot about the lungs back then, Thankyou for welcoming me 😊x

Hacienda profile image
Hacienda

Welcome Dollybow, You will by now see how Popular our Forum is, Here to Help and advise when we can, more so to be a Friend and to have a chat and get to know most of us. Enjoy every day Hun. Love n Hugs. Carolina. xxxxx

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