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Pulmonary rehabilitation

Lucychloe64 profile image
29 Replies

Hi, and good morning everyone, my husband keeps being asked to attend pulmonary rehabilitation, over the past 18 months has said no, due to his anxiety, this week he's agreed to give it a go, has it actually helped anyone? X

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Lucychloe64 profile image
Lucychloe64
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29 Replies
Hacienda profile image
Hacienda

Hi Hun A Quick Reply as I'm due at My Rehab in Half Hour. Yes, Brilliant, On my 6th Course. Tell him he has been missing so Much. It really does help. Good Luck. xxx

Lucychloe64 profile image
Lucychloe64 in reply to Hacienda

Thanks x

Roysieboy profile image
Roysieboy

Hello Lucychloe. I have been to Pulmonary rehab for the last 2 years. I got 6 weeks on the NHS, going for 1 hour twice a week and I must admit it makes me feel a lot better. After that, where I go they run a maintenance class once a week for 1 hour and they encourage you to do the exercises at home, this class I have to pay for, but because I feel it does me good I think it is worth it. While you are there they do an assessment at the beginning and one after 6 weeks to see if you are benefiting from it. You meet a lot of people who are in a similar boat to your husband, some are better off and some are worse off. You also learn a lot about how to control the problems you encounter because of your condition. I would strongly urge your husband to give it a try, but go with an open mind. If he decides to go, I would like to wish him the best of luck. They say that exercising is the best thing for getting your lungs working. You just do what exercises you can while you are there. The people who run it are very helpful and have always got time to talk to you about managing your condition, if you want to talk.I have got COPD which I have had for 2 and a half years. Best wishes to you both with whatever you decide to do. 👍🤓🏋️‍♀️

Lucychloe64 profile image
Lucychloe64 in reply to Roysieboy

Thanks xx

Alice70 profile image
Alice70

Helped me so much ,I didn't realise how much until I stoped

Lucychloe64 profile image
Lucychloe64 in reply to Alice70

Thank you for your comment x

hypercat54 profile image
hypercat54

Yes. All of us I should think! As his partner you should be entitled to go as well if that would help with his anxiety, but do check first. x

Lucychloe64 profile image
Lucychloe64 in reply to hypercat54

Thank you x

peter06 profile image
peter06 in reply to hypercat54

Partners are encouraged to go and watch and even help if needed, I start my course this coming Friday

Lucychloe64 profile image
Lucychloe64 in reply to peter06

How long did you have to wait, for a place on a course xx

peter06 profile image
peter06 in reply to Lucychloe64

Think it was about six weeks, they seem very organised at Wokingham

Petrie21 profile image
Petrie21

It helps so much exercise is the key he will learn so much .

Lucychloe64 profile image
Lucychloe64 in reply to Petrie21

Thanks

Ergendl profile image
Ergendl

Transformed my life. I found out I was overbreathing at PR and was helped to overcome that. It started me out on the road to getting fitter, which has improved my breathing no end and my FEV1 scores from moderate to normal. And I've met some great people, some of whom helped me set up my singing for lung health group around that time. So glad I went, so glad I asked my GP for a referral, so glad people on this site recommended PR as something I should ask to go on.

Lucychloe64 profile image
Lucychloe64 in reply to Ergendl

Thanks that helps no end, xx

garshe profile image
garshe

I am on a course at the moment. I also suffer anxiety abd panic attacks. We are half way through the course 3weeks and my anxiety is now manageable. We get breathing and relaxation exercises also 1hour of cardiovascular and other excersises.its a fantastic course. The talks are so helpful also. My fitness has increased immensely. I wish I could stay on the course forever as I am so Positive these days and so much more energy. Being able to c9ntrol the anxiety and panic attacks us a blessing. Good luck.

Lucychloe64 profile image
Lucychloe64 in reply to garshe

Thank you for your reply, that's certainly encouraging, xx

RichmondBlue profile image
RichmondBlue

I can only speak for my own experience, but I’ve found the rehab exercises a great help. The staff were superb, kind and helpful throughout the series of sessions.

I presume it’s the same around the country. I had twelve two-hour sessions, two every week for six weeks.

I’ve found a local community gym to continue with the level I’d reached at the rehab unit. They also care for members with breathing difficulties and gave an introductory course of eight free sessions. But even after that they are very reasonably priced.

Lucychloe64 profile image
Lucychloe64 in reply to RichmondBlue

So glad I asked this question as my husband seems more relaxed about going, x

CornishBrian profile image
CornishBrian

Pulmonary rehab is the best fun you can have without taking your clothes off. It's brilliant. You soon feel part of the small group and within two or three sessions you begin to feel some of the benefit and just keeps getting better. It rebuilds your confidence, shows you what you can achieve and gives you a real understanding of your condition. Never mind hubby, you are going to have to get yourself fit to keep up with him. Seriously, support him when he goes and make sure he goes for the first few Session's and leave it there. If he uses the excuse that he's too poorly to do it, my FEV 17% and I tried it for the third time. Excellent. My first time, there was an elderly lady, in her 80's, who had just had half of her jaw removed through cancer and completed the course carrying an oxygen cylinder.

Lucychloe64 profile image
Lucychloe64 in reply to CornishBrian

That's so encouraging, certainly sounds like a possive thing, I'm sure my hubby will be fine xxx

Please convince him to go. He is lucky to get on to the rehab programme. Where I'm from it's a 8 /10 month wait at the moment and I'm desperate to get on it. I also suffer from panic/anxiety attacks which are holding me back from functioning properly with my copd. I know were all different but try and get him to go it will really help him as others on this site will tell you. Take care if both of you. Mx

Lucychloe64 profile image
Lucychloe64 in reply to

Thank you so much, I been given so much feed back, also I have noticed there a lot also suffering with anxiety band panic attacks, depression etc, so I feel better knowing he's not alone in this, xx

mikest profile image
mikest in reply to

Hi Dog12 when you eventually get a place on the rehab course, I would urge you to buy a set of weights and keep doing the exercises at home.

in reply to mikest

Hi mikest nice to meet you. Great news for you that things haven't changed too much over the years. I'm desperate to get on it to meet other people in same boat. Feel if it wasent for this site isolated. Can I ask what hou take for your vopd as I'm struggling with my dr, to get any kind if meds that work. Only using ventolin inhalor at the moment but ha bing lung infections every few weeks which are draining me terribly. Just get over 1 the on comes another 1. Have a lot of mucus problems and clearing it, I take carbocysteine for that . Just got a rotten cough g night and morning and sire all over today. Sorry to moan so much today feeling a bit lousy. Mx

mikest profile image
mikest in reply to

Hi Dog12. For the last 30 months or so I’ve been using Relvar and Incruse (both prescribed by my local hospital). When first diagnosed, I was given Spiriva. I also have a salbutamol inhaler but hardly ever use it as it doesn’t seem to help me. Over the years, my shortage of breath has increased, but nothing I can’t handle. However, if I have a flare-up, I have a permanent supply of the antibiotic doxycicline and the steroid prednisalone. Before i switched to Relvar and Incruse inhalers I was averaging around eight or nine flare-ups a year but that has been reduced to two or three. I do not suffer much from mucus and take nothing for it. At the pulmonary rehab course, I was shown the technique for shifting mucus, which was a great help. Good luck for the future, which is is probably much brighter than it sometimes feels.

Mike

in reply to mikest

Thanks mikest. And yes probably you are right that the future is brighter than I think. Just having a biting a hard time with all these infections and constant cough and excessive mucus getting me down. Need to get my head in gear a hit better but thank you again fir letting me have a misn and telling me what you are on Mx

mikest profile image
mikest

I went for pulmonary rehab seven years ago and still do the exercises five days a week. My COPD was severe and is no worse now, so my advice would to go for it

coral12 profile image
coral12

Hi there.i got flu in feb followed by pnuemonia was in hosp for 9 days.i got asked to go to pulmanory rehab.course for 8 weeks.i am on my 6th week in.its very good sociable.1 hour excersize an 1 hours talk on differnt subjects every week .loads of nurses an phsios to help u. Im gona miss goin .really enjoyed.me and another lady. Is bein refered to a gym. So thats good .iv got asthma.bronchiostasis. an sayer james syndrome.i also suffer anxierty.an panic attacks

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