Good morning everyone I hope you’re day is going well as possible, my problem is that after spending 2 years of getting every scan possible I was told I had a lot of blood clots on both lungs only for the specialist respiratory dr to say he didn’t believe the results. I have posted about this in the past so don’t want to go on about it all again. My last appointment with him was feb this year we’re i was basically sent away without having gotten much truth from him. Now I went to hrt clinic for check up she was the second dr to be horrified at what had been going on she told me she wasn’t at all happy at taking any HRT . Anyway trying to shorten the story I was told to continued on HRT until she found out the truth about all scan results and why the dr didn’t believe the results. I received a phone call from my GP reception telling me they had received an urgent message from this lady dr from HRT clinic saying at the moment I DO have a pulmnory embolism and I had to stop the medication immediately. She told me she was so sorry for being the one to deliver such bad news but my dr had sent an E mail for her to call me . I was told all the respiratory drs comments and findings had been over ruled as there was some other specialist who took the case to find out what the truth really was. She also told me other stuff that I cannot remember at the room started to spin then I had a lot of black dots in front of me so whatever she said went over my head. I just remember the poor girl calling my name and asking if I was ok she apologised again for being the one to tell me but my GP got a Red Alert whatever that means. The day passed in quite a daze to be honest. I knew that dr was constantly back tracking I’m so angry today I feel he’s played with my life!! I now know that along COOD I have a. OE and I do have thrombotic lung disease. I should be on some kind of blood thinner at the least. I called my GP this morning as my hubby and I would like to know what is to happen now and have a few questions for him , unfortunately he’s still on holiday and won’t be back until Friday . The lady I spoke to said she’d put me on top of the call back list for Friday. I don’t know why but I’m absolutely terrified. Iv no one to talk to and I’m so so glad I can come here for help and support. It’s really the fact that rather than the 2 respiratory drs admitting they were wrong they’ve tried to bury this and as I said played games with my life .
Sorry for the long post I’m still shaking with fear and I’m afraid to sleep although I’m now totally exahsted after not sleeping all night . If anyone can give me any advice at all then please help me I apologise again for the long post. I just need some guidance. Thanks for listening. I wish you all a good day but I do know everyone is struggling with their own problems. Take care everyone 🌹🌹🙏
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Shazrab
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Hi Shazrab so sorry to read what you are going through. I don't know how I can help but only sympathize with you. It must have been a shock and I don't know what that doctor is doing sending you away with no answer. You have been treated appallingly. When your doctor gets in touch you will know.more. Surely the results gives answers to what is wrong with us and no doctor would dismiss the facts.
Hi Shazrab.. Dont appologise for the long post, its understandable you feeling the way you do, makes me so angry that drs will play with peoples lives. Makes you wonder half the time if they even qualified as drs or have escaped. Im so sorry to hear what your going through ,i dont understand anything about what they diagnosed you with so i cant help you with that but what i can help you with is to have a listening ear. It dont matter about long posts ,what matters is you talking to us about how you feel, it always helps to off load knowing we are there for you,so off load all you want ok? sending loads of hugs...
OMG you poor soul & how frightening. I wonder if should go to A&E ? At least you’d be doing something whereas this way you’re understandably climbing the walls. Also it’s such a serious matter that another GP in the practice should have looked at immediately. Maybe ring them and explain that they don’t seem to understand the gravity of it & you MUST speak to one of the Drs immediately. If you feel strange at all, just ring an ambulance. And yes please keep us posted. Love Brenda ❤️❤️❤️ Xxx
Hi Shazrab, I think your fear is justified and down to the unknown. Once you know exactly what is wrong and what treatment you can have then you can deal with it. I would want all this in writing, that way you can digest everything and be treated for it. It seems today that we are all left fighting to have our conditions dealt with. Have a pad and pen next to the phone when you speak with your doctor so that you can write it down. Or if he wishes to see you, take somebody with you so they can help remember what is dicussed. You now need answers and urgent treatment for your condition. I wish you all fhe best, pleae keep us updated x
Hi there Shazrab and your post made my jaw drop.....totally unacceptable. How could the medical people leave you with so many unanswered questions? How do they think for just one minute that you can continue like normal,looking after your husband and children with something as huge as this,hanging over your head. I'm shocked and upset to hear another account of GP's and Consultants not stepping up to the mark and leaving patients in limbo so to speak. You've got every right to take things further now and use every bit of strength you have to demand the Practice Manager at your GP phones you with your file to hand. Please keep us informed and stay strong dear lady,stay strong.
hi shazrab, i too am recovering from a PE end of jan. Can i just ask if you are on a blood thinner now? If not please go to A&E at the very least they can give you the thinner. I hope you get this all sorted and quickly. Best wishes to you, debbie
That's really shocking. It's astounding. Don't apologize for your post! This is such a supportive community, I know I'd be lost without everyone here, it's good you feel able to come here for advice and support Too. You sure don't seem to be getting any help from the doctors! Thinking of you 💐
I usually log on in the morning but today this is the first chance I have had and I can barely write for the tears. No one should be treated so badly, no one. I am assuming you are in the UK which prides itself on an amazing NHS. This is just beyond my comprehension and sadly I have no medical advice I can offer but as with all of us on this forum I feel for you and from the bottom of my heart I wish you well, with improved health and the far superior care that you deserve. You are in my prayers and I send you the very best of good wishes,
Do post soon when this is all resolved and you are back in a really strong place so we can celebrate with you.
Apols for sounding so sentimental but your story is truly heartbreaking.
I would like to thank everyone for their support I really don’t know what I would do without you all ♥️ . When I received the news from the receptionist it was the first time my hubby had left me alone I felt sorry for him as he is feeling really guilty. He was desperate for me to go down to A&E but I didn’t go . So an update.. my GP called me I went to answer the phone and dropped it my arthritis is playing up now so the joints in my shoulders, elbows and bottom of my back we’re stuck !! A real nuisance, hubby was in kitchen and never heard the phone but he did hear me shouting on him 👍 he called the surgery back so let’s say at the most ten minutes later Guess what my GP was finished for the day and won’t be back until nxt week. He left a message with the receptionist to tell me iv not to worry he will speak with me nxt week also he has received all but one of the scan results and would like to talk to the Dr from HRT clinic personally to try and see what his nxt step will be . After I was told this by the receptionist the surgery was closed for 2 hrs but my hubby went in and spoke to the head lady as he wanted to know why I wasn’t even left a prescription for an anticoagulant to thin my blood. She was very apologetic and said the girl who told me I had a PE had spoken out of term and had no right to tell me it was the Drs place to speak to me. They had a long conversation but still nothing really came of it . The other GP in the practice doesn’t want to call me because he doesn’t know everything regarding my case. So I’ll wait until nxt week and I’ll give him to late Wednesday morning if he hasn’t called I’ll call him. I’m absolutely drained I slept most of yesterday day and night and then suddenly a sweep of fear, anger came across me late last night. I suppose I’m like everyone else I don’t want to be I’ll i want my health back I felt sad as it was my granddaughter birthday party she was 4 and I missed it . My hubby read dr google and now thinks I’m going to have a sudden death ☹️ He’s terrified of leaving my side even though I’m sleeping. I think I better stop moaning I could honestly go on all night. Again I thank you all for listening and thanks for your kind reply’s. I wish you all the best of health and I’m told the suns been doing some nice work so for you who can I hope youv been relaxing in the ☀️ sun . Take care everyone best wishes and prayers for you all 🙏🌹🌹♥️
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BACk IN HOSPITAL AGAIN
”Till we meet again “ 
newly diagnosed with copd
steroid withdrawal again!
Let down again
