Hi has any one on here been given doxycycline,I have had such a bad reaction to it over the bank holiday , swollen tongue ,airways closeup , upset stomach it’s been awful .
Doxycycline : Hi has any one on here... - British Lung Foun...
Hi petrie, I had a similar reaction to you was told to stop straight away and I was lucky enough to have antihistamines at home that I just kept taking ( they were prescribed) as I have bad reactions to many things. My advice would be to stop them right away call your gp and let them know just how bad your reaction has been. My gp has put it on my records now that Iv not to be given them again I hope your gp does the same. Unfortunately I’m only left with one antibiotic I can take clarithromycin and I’m on it now almost constantly. I feel so sorry for you as you must have been really scared especially with all those symptoms ☹️ I’d like to know how your doing I’m presuming youv got an infection is you were given these antibiotics. Please take good care of yourself I really wish you the best 🌹🌹
Hi sorry iv took so long to get back to you, I took 4 piriton tablets then about an hr later another 4 I also had to go on my nebuliser as I felt as though I was really struggling to get a breath I used it twice with a 4 hour break inbetween . I lay on my bed and just tried not to move to try and relax my body this started early in the morning and continued until about 1am I took the same dose of piriton again later that night. The swelling on my face eventually came down and I was starting to breath easier. I called my dr the nxt day and my hubby told them what happened I was still suffering some effects of the tablet and at last stopped being sick . My gp left me a prescription for piriton and I was told to drink plenty of fluids. I have to say I was terrified and my hubby never left my side thank God . I hope your not still taking the tablets and I hope you are starting to feel better take care and please let me know how you are 🌹🌹🌹
Hi Petrie21, I've been put on Doxycyline several times for bronchiectasis flare-ups and not had a problem. I've been very lucky I suppose. This is the drug that is particularly good fighting the bacteria "Haemophilus Influenzae" that caused my last couple of flare-ups (found from several repeated sputum tests). I had been on something else previously, given by a locum doctor, which was not working at all. I'm in Australia and when my usual doctor returned from the UK, where he practised before coming to Australia, he told me the reason the other drug given by the locum wasn't working was because it's the wrong drug for the Haemophilus Influenzae bacteria. I was told their first line of defence for this bug is Doxcycline. It seemed he was correct as my flare-up cleared up quickly on Doxcycline. I hope you're feeling much better now and your doctor has found the drug best suited to your needs.
There is excellent authoritative guidance in the UK for doctors treating bronchX. Actually this indicates that the 1st line of defense against Haemophilius influenzae is amoxycillin (beta lactamase negative) or amoxycillin with clavulanic acid (b.l. positive).
Doxycycline is second line defense (along with ciprofloxacin and ceftriaxone).
Maybe you have had b.l.negative bugs but have developed resistance to amoxycillin over the years (many do) and that's why the doctor has gone to 2nd line defense. Normally amoxycillin resistance is overcome by taking amoxycillin+clavulanic, but I don't know whether this would be the case for haemophilius influenzae b.l. negative when there is a recommended second line defense available.
Up to you how you take this piece of info. If it were me and I found I was on a second line defense drug I might consider discussing the reasons with my medical practitioner - particularly if she/he was not a bronchX specialist (even generalist pulmonologists often see few cases of our condition and are non-expert). It's a mantra oft repeated here by the 'old hands' (and me) that you need to be under the guidance of a bronchX specialist unless your condition is mild.
However, with a nod towards balance, I have only just noticed that the latest version of the guidelines I refer to here seem to have weakened somewhat to a recommendation that "specialist clinics should be considered in patients requiring hospital follow-up". That may reflect the real-politik in the UK that the burden on the NHS and capability to deliver in the face of an increasingly diagnosed condition needs to be factored in. A less cynical view is that the guidelines are consistently based on empirical evidence and there have been no studies to establish whether or not specialist-guided patients have better outcomes than those treated by general practitioners or generalist pulmonologists.
I digress! I recognise that you are in Oz Cara, so quoting UK guidelines at the docs may be counter-productive anyway :-). Please do take this as just an attempt to pass on info to you and others, not me trying to be a clever-clever barsteward, challenging your comment that doxy is 1st line defence.
[Brit expat now retired to Thailand]
* 'British Thoracic Society Guideline for Bronchiectasis in Adults'. Can be downloaded from internet by searching on the title. It's a hefty tome meant for docs not we hoi palloi, but flick through the bits under 'good practice points' and 'recommendations' and I guarantee you'll be hooked.
I am put on a two week course of doxycycline the odd time. They are horrible to take and make me feel very sick. But they are effective and sometimes they are the only thing that works for me. I have never had a swollen tongue with them however and it worries me that you have. You need to ring the Drs fairly urgently if tongue still swollen as that sounds like a significant enough allergic reaction. Let us know how you get on. ❤️ X
If your condition is bronchiectasis then there is good UK expert guidance on the range of microorganisms (bugs) we get and first line and second line recommended defense drugs. You would see that there are many alternatives to doxy and that doxy is only the first line defence drug for one of the six common bugs.
The guidance and how to get it is in a reply I made to Cara4116 earlier in this thread.
Since bugs are bugs I guess the bronchX guidance may be applicable to receipt of those bugs in other conditions too, but I'm not a medic so take it as info for possible consideration in discussion with your medical practitioner.
Glad you are regaining control. Good luck in isolating the antibis that will work for u without putting u in an ambulance's way!
I'm taking 200 mg doxycycline per day in 2 100mg doses, only been taking it for 5 days so far of a proposed 3 month course foo severe blepharitis, I have developed dry skin patches on lots of areas. legs torso arms etc and to put it delicately my foreskin has become very dry and urinating is difficult *won't open properly)and it won't retract to clean in shower for example, well it will but it's very sore to do so, wondering what to do, it's not made any difference to my eyes so far and 3 months seems a long time to endure theses symptoms.