Oxygen

[Dion3844o1]

Hi everyone not been on for awhile but I'm on oxygen now at home I don't no much about bit only it's O2??and I'm on 2?? I feel absolutely gutted I knew this pulmonary fibrosis would get worse but it's how quick that worrys me now x

[sassy59]

Good to see you Dion and hope the oxygen helps. Just want to send best wishes to you. Xxxx

[stone-UK]

Hi

A link for you explaining oxygen therapy for pulmonary fibrosis,

lungsandyou.com/lifestyle/s...

Treat like any medicine, it will improve your quality of life.

Fact sheet.

lungsandyou.com/static/docs...

[Caspiana]

Hi Dion3844o1 .

I understand completely. I've been on O2 for two years going on three. It can definitely feel like defeat of some kind. 😞 When you say oxygen at home I'm assuming you use oxygen when you go out as well? It takes getting used to but eventually it becomes part of your routine. Please don't get down hearted. We can still lead fulfilling and good lives. We just need to adjust a bit. Sending hugs and happy thoughts,

Cas xx 🌞🙋

[Oshgosh]

Sorry to hear you are struggling. Have you got a respiratory nurse? Perhaps they coul£ helpyou ? Have you asked about ambulatory oxygen. Would be good if you could get out a bit. Look after yourself .

[Hacienda]

Hi Dion, Welcome Back.. Like Caspina says, you will get used to it, But need it explaining to you. Do you have a Pink Emergency Respiratory card? They are The Team to contact where there will be Oxygen Nurses, A Home Visit would help you. 02 is Oxygen. I am on Home Oxygen, have been for 4 Years and I have a Mobile Oxygen Pack( Inogen 1) without it I couldn't go anywhere. I am on it 16 hours a day. Today, I have the Oxygen Nurses coming to do a Home Visit to Assess my Oxygen Intake. Very Good NHS Service. At the Beginning I took my Husband with me to all my Appointments as I would get a bit anxious, he would remember all, which helped me, Suggest you do the same with a Family Member. Good Luck Hun. xxx

[Dion3844o1 in reply to Hacienda]

Thankyou x

[Titchykath]

Hiya I’ve been on oxygen since 2015, the 1st year was tough as I did not cope well. But now I am going for walks , yes I am slower. Go to a gym , do walking netball ( I get told off because I run when I shouldn’t , rules of walking netball, you must not run ) 😂😂, I do pottery, art, have joined a book club. If I didn’t have PF I would have been in work full time and only enjoying weekends off. So my story shows how life can begin on O2 . Enjoy it’s not a bad life . I do get tired and fatigued, so not always a bed of 🌹’s💛👱🏻‍♀️💛

[Dion3844o1 in reply to Titchykath]

Thankyou x

[Dion3844o1]

Hi when did you get diagnosed with pf? I was thinking the worst,only thing now is for me to be treat for it as I can't ATM due to continuing infections I'm back at Leeds next week and the Dr was talking about chemo last time I saw him he was just waiting on results from a CT scan x