Hi all, had my Brompton consultant appointment last week plus full lung function tests and CT scan. Very happy that my FEV1 has risen from 33% where it was last year when I had the two lots of pneumonia to 37.4%. So small but significant improvement - my FEV1 doesn't waver much so this seems reliable.
BUT: during my time with the consultant, she said that ambulatory oxygen doesnt do anything to extend wellness or mortality. At which point, rather than being shocked, I remembered seeing a research paper posted here, Im pretty sure, by 2greys. Since Im very borderline - e.g. can lift weights easily without oxygen and sats go up, but need it for walking, biking etc - I asked her, well, can I experiment then? To which she replied yes. But a bit disturbing not knowing where this information comes from and hard to argue with a Brompton consultant.
So, 2G - as well as searching for ambulatory oxygen in the search box, Ive been right back through your posts, both up to 2 years ago (what an amazing body of research you have there!). Im sure it was easily within that time but I cant find any post about this. I dont think I imagined it but it could be that ive gone so bug-eyed from too much gazing at the screen and missed it. Please could you let me know if you did post such a paper? My oxygen nurse is concerned about this news and wants to take research evidence to her team's monthly Best Practice meeting. If I cant find evidence I'll get back to the consultant and ask for the reference but thought I'd check with you first. Many thanks.
And hoping everyone is as well as possible. x