My Weird Symptoms How Do Yours Rate? - British Lung Foun...

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My Weird Symptoms How Do Yours Rate?

Freddyfrustrate
Freddyfrustrate

1 - Whole body aches

2 - Low Energy consistent mild infections

3 - Not able to do long shopping days due to feeling rough for days after

4 - Mild pain in the front of the chest, rarely bottom of lungs in the back, when breathing.

5 - Clearing throat/airways feels like phglem is stuck, no production, just moves it.

6 - Sleeping during the day fully out of it.

Quarterly Patientslikeme results show 78 entries

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22 bad days, i.e. paracetamol. sleeping during the day, recovering from infection.

18 good days i.e. able to swim live normally.

5 V Bad days, i.e calling Dr or being fully man down or on Anti Biotics.

Nuetral days 18, i.e. able to function below average sluggish but ok.

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My Diag is COPD or rather Asthma - yet I do not have reversability, my Fev is normal.

Diet is as good as possible. Stress up and down.

I take Flutiform - A daily antihistamine - Tiotropium.

I am getting worse. Sometimes I wonder if the drugs are making me worse than they are better!

11 Replies
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i am the same keep getting inhalers changed still trying to do 20000 steps a day now going on copd trails to see if inhalers are making me worse

Hacienda
Hacienda
in reply to Shortlungs

If I could do 20,000 steps a day I would have done the London Marathon. My Peak is 4000 maybe once every Month, The oxygen keeps me going along with my Inhalers. I do a lot of Exercise Classes, The Gym, and starting Rehab Tomorrow, I have worn a Fit bit for over 1 year and record every day steps. Please tell me how you manage this amount of Steps with a Lung Condition. I really want to improve on my Steps. Thank You. xxx

Shortlungs
Shortlungs
in reply to Hacienda

just keep pushing i think it is more my heart as i am worse sitting down doing nothing and the wheezing gets worse I have been told I have emphysema that was 3 years ago but still try to keep going

Shortlungs
Shortlungs
in reply to Hacienda

Have been following your posts you are some strong woman hope I can keep strong

Hacienda
Hacienda
in reply to Shortlungs

Thank You, Keeping Positive and keep going like yourself Hun. xxx

Shortlungs
Shortlungs
in reply to Hacienda

hope i get on the trials see if it makes me a bit better as they are to see if steriod inhalers can give you more lung infections i have been worse since starting trimbow inhaler have had 6 infections in 6 months

Hacienda
Hacienda
in reply to Shortlungs

That is a lot of infections. I take Steroid inhaler Symbicort 400, plus 2 others, not Trimbow, never tried it. They help me, since I've been taking Azithromycin I have'nt had a Bad infection, ask your Consultant. Best Anti Biotic there is. Good luck with trials.xxx

Shortlungs
Shortlungs
in reply to Hacienda

Thankyou will try and keep going was up at my caravan for a couple of days and was still able to dance even though i wss breathless

20000 steps is crazy - this is showing good lung functon congrats. I would not be able to do that not due to fitness but more about being bed ridden for days after words. I tried about 9000 in one go in London - gave up and called an uber.

Do my symptoms seem to resonate with anyone? I have no wheeze per say - yes its hard to breath and there is a uncomffortable feeling but only during virus type symptoms.

Are there any studies about inhalers causing more issues - or anyone coming off them to see what is better or worse.

Hidden
Hidden

Freddy, you have not said what strength Flutiform You're taking,

I think you should ask your doctor to send you for a X-ray of you're lungs just to see how bad they are, you should also have a full blood test to see that kidneys,liver, and blood count are ok,if you are a low dose of Flutiform you may need a higher one.hope this is some help.

Alan43

Heart? Have you had a blood test taken for pernicious anemia? (B12 deficiency) you have the list of symptoms. Which could also be some low Vitamin D. Also, Spiriva and antihistamines both can make you tired, especially taken together. Just a thought as I looked at your list. Your Jack Russel is cute....happy dogs!!

Meg

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