Rebecca's story was featured in today's newsletter. I can empathize with her as I have NTM. (None tuberculosis mycobacterium ) and also bronchiectasis. Like TB it is the most debilitating disease; no two days are the same. For nearly 4 years now I have been taking TB medication with no success. I am now on the last line of treatment taking inhaled amikacin as part of the therapy. The drugs are highly toxic and have all kinds of side effects that have to be managed or tolerated.
I would be interested in finding out how many people have this rare disease. I have come across no one near me.
Good luck to Rebecca and thank you for telling your story.