All going on!

[Rachelmcc80]

What a crazy time! I have been poorly with a nasty virus for three weeks and had two weeks off work (most unlike me), luckily I’m not the poorly person in our household.

Meanwhile, my very sick partner who is on oxygen 24 hours a day and still manages to work for a living , trudges on! I Woke up on Thursday morning expecting to celebrate my birthday with Paul and my kids ( age 12 and 13) only to find Paul is feeling really unwell. After a quick call to the transplant team it was decided to get him to the hospital to be checked.

The hospital staff were amazing and acted very rapidly to take care of him and try to find out what’s wrong. They admitted him and started administering antibiotics as a precaution, thinking maybe he’s caught my virus, although test results are inconclusive. Worryingly they seem to feel that Paul’s shortness of breath is more due to a progression of his illness (ILD, fibrosis and sarcoidosis).

On the way back from the hospital on Thursday night, Paul called me th say he’d just had a call from th QE hospital to confirm that he’s now officially on the lung transplant list!

Talk about a crazy day! It was sad to spend my birthday in the resuscitation department without my kids, and watching Paul struggling, but I could not have asked for a better gift that getting such positive news from the QE.... life has some funny ways!

Anyway, here’s looking forwards to the next stages... getting my wonderful man home next week, taking steps to wrap our business up so he no longer has to work and keeping him fit and well for when that life changing call finally comes for real!!

Thanks for letting me vent everyone, I guess it’s only you guys who really understands the enormity of what our family is actually dealing with, and how difficult it is to make decisions on working, finances and what’s best to do for the future.

I’ll keep you updated......

thanks

Rachel xxx

[HungryHufflepuff]

It really is all going on! I'm sorry to know your birthday didn't turn out how you planned, but what wonderful news about your husband getting on to the list. I hope you hear soon 🤞 You can have a belated birthday celebration when your husband gets home next week? 🎂🎈🎉🎊🎇

[Rachelmcc80 in reply to HungryHufflepuff]

Thank you! It’s a strange bundle of emotions at the moment, both apprehension and excitement. Fingers crossed that it comes soon xx

[sassy59]

Wow Rachel! That’s some whirlwind you’ve been on! Sending good wishes to Paul and belated birthday greetings to you too.

Wishing you all better days ahead. Xxxx 💖💕

[Rachelmcc80 in reply to sassy59]

Thanks Sassy! I’m a long time lurker on this site and I know you’ve had a tough time too. Sending you lots of love also xxx

[sassy59 in reply to Rachelmcc80]

Thank you. Xxx 😘🥰

[chubby2x22]

Wow RACH, that's one birthday you'll remember, have the cake today you deserve it. Hope all goes well in the near future, stay strong Jane.

[Rachelmcc80 in reply to chubby2x22]

Thanks Jane xxx

Funnily enough my sister is coming to visit Paul today and she has promised cake, so I think we’ll be indulging! Ha xx

[Hacienda]

Great News Rachel, The QE is one of the Best for Transplant, been with them since 2016, No Transplant though. Dr. Richard Thomson is The Man everyone sees, he has a wicked sense of Humour, has to in his Job. You will get to celebrate your B.day soon under Good Circumstances with Partner Paul. Very Best of Luck to you all. Love n Hugs XXXX

[Rachelmcc80]

Thanks Hacienda, we met Dr Thomson and he was lovely, really nice chap and made us laugh!

I’m so sorry that you’re still waiting, fingers crossed that the call comes soon xxx

Just gotta keep moving forwards and keep as well as we can until that phone rings.

Bigs hugs to you too... here’s to happy endings 😉🌷💐 xx

[Hidden]

Sorry can't help, but wishing you and your's all the very best. 👍

[Rachelmcc80]

Thanks Don 😉 xx

[Caspiana]

Hi Rachel,

I'm sorry you and Paul have been unwell. I hope he gets the call soon. In the meantime he must try to stay as well and as fit as possible to face the surgery. Take good care.

Cas xx 🌿

[Shirleyj]

Wishing you and Paul a healthy contented future 💖xxx