Doctor has put me on Carbocisteine tablets to help with the gunge .. what we thinking of them? Do they work? Side effects? .. xx
Carbocisteine: Doctor has put me on... - British Lung Foun...
I suggest you search in the BLF forum on "carbocysteine" (it's normally spelled with a 'y' in the middle, though I have seen it with an 'i' on occasions). Questions similar to yours are regularly asked about this drug, which is why I guess that the usual suspects who post informative answers are not responding.
I've been on them for at least five years, four a day, no side effects. I stopped them for a month about two years ago and found I had to go straight back on them. I've only ever known them as Carbocisteine never seen it spelt with a Y! Maybe different countries have different spellings? Good luck with them.
I have been prescribed these by the lung
specialist at hospital and have been taking 2 a day for about 10 days now but - I have suffered with constipation for most of my life and found various ways of dealing with it - but since starting on these tablets - I go first thing on getting out of bed - and again shortly after every meal and although good consistency just a bit of a nuisance - making it difficult to eat out anywhere
They work a treat for me, 2 X twice a day and I can shift it the gunge great. No side affects. Hope they work for you too, love.
This drug was transformative for my elderly mum (who has Bronchiectasis and takes 2 tablets, 3 times a day). Now she can clear her lungs with Active cycle of breathing, whereas before she couldn't do this as easily.
Important - Keep hydrated - as this drug apparently makes the mucus less thick and needs the water. So do drink a lot of water (to a safe level though)
She has fortunately had no side effects although reading the comments her, she does tend to need to do "no. 2's" several times a day when she goes to the loo, whereas before it was just once. (Sorry for the bluntness)
I am 69 and have had bronchiectasis all my life (caused by whooping cough and subsequent pneumonia). I also have COPD.
3 years ago I needed 5 courses of antibiotics. 2 years ago I needed 7 courses. Since taking the drug, 15 months ago, I have been antibiotic free!
I started the drug 2 caps, three times a day and 4 months later I lowered it to 1 three times a day.
My theory for this working is this.... 3 years ago, when I started with a chest infection, I took a 7 day course of antibiotics. After taking them I felt great for about 4 weeks. During this time my sputem level dropped significantly and 2 to 3 weeks after that sputem levels were well down and I thought that's great. A week or so later I started feeling unwell and started with an infection all over again... more antibiotics. What I didn't realise is that sputem levels were not going down at all... it was still there but becoming too thick to clear so became a breeding ground for another infection. With the drug the sputem is a lot thinner, so I can now easily keep my lungs clear. Sputem levels seem to be higher, and at times cause a bit more embarrassment, but it's a price worth paying to avoid taking antibiotics.
Embarrassment how? Some time ago my doctor mentioned giving something to shift the mucus though as yet I haven't had medications for that, it hasn't come to that, and I wondered how it works. Like does carbocisteine simply thin the mucus to make it easier to cough up, or does the mucus start coming up by itself. I'm really only asking because I'm curious and I genuinely don't know how it works. Not meaning to ask a silly question here.
It's good news you've been avoiding the antibiotics. Long may it continue 👍
Yes, that's all it does... thin the mucus so it's easier to cough up. So, because the mucus is thinner, thinned down by the body with water there's more of it. That's why, as someone said earlier, you need to drink more water to feed the thick mucus... to make it more fluid. Because there's more mucus I need to cough / hough more and, in public, to me it's a little bit more embarrassing. To avoid the embarrassment I escape to a private place to get rid. Hope that helps?
Hello Candyred, have been on Carbocisteine for about nine months now and they work for me. I was on 3 x 2 a day and then after about six months told to reduce to 2 x 2 but my cough got worse (dry) so I have gone back to 3 x 2. Before I took them my teeth were getting really stained - the dentist said it was because my mouth was too dry due to the inhalers (I drink lots so that was not an issue). After about three days on the Carbocisteine my teeth were back to how they were before. Other than that wonderful one, no side effects. Good luck
This post is interesting as I have started C..ine a week ago to help my PF cough. The first thought was this is no good I am coughing even more, but I think it is the mucus coming out of my lungs. What is v good it seems to be thining the heavy mucus in my nasal passages and as I have a nasal cannula 24/7 that is good news. No side effects apart for more poos!!!
Hubby has been on these for years. He asked doc if there was an alternative med as he thinks his body had got used to them but computer said no !!!! No side effects really. He is also on a gastro resist tablet to protect his stomach which is brilliant. He used to eat Rennies like sweets but doesnt need them at all now. ...