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British Lung Foundation
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Carbocisteine use!

Had anyone out there been put on Carbocisteine and if so what for?

I’ve gotAsthma/ Chronic Bronchitis and been told (NICE)guide lines don’t prescribe it.

I’ve excess mucus which causes frequent flare ups.

Recently bought NAC from Nature’s Best does anyone take this.

54 Replies
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They gave them to me to try and loosen the phelgm at the base of lungs I can feel.it but my problem is I cannot cough so taken tablets but they wont shift it

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If you don’t mind me asking what’s your condition.

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Hello Darceydoo .

I have Bronchiolitis Obliterans and have been on Carbocisteine for about four years. It helps to make sputum less difficult to bring up. I don't know if it helps me or not because generally my cough is always non-productive. That's one of the blessings of my condition. 😊

Have a lovely weekend.

Cas xx 🌞🌻

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Thank you for your reply, enjoy your weekend🙂

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Think I've been on it for 5 years now. 2 capsules 2 X daily, when ill can take 2 X daily. As soon as I find it stops working I'll go on to N- acetylene cysteine.

It softens the mucus in the lungs only making it easier to come up. It's still works for me, asthma and mild bronchiectasis.

If you've chronic bronchitis I'm thinking it's very important to get that mucus up and out.

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You are correct. Chronic Bronchitis comes under COPD. NICE guidelines say Carbocisteine should be prescribed for it.

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Not according to my GP and a friend of mine who’s an Asthma nurse/ ANP says not also.

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Do you take NAC whilst taking Carbo?

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Gosh no.

I've taken NAC in France and Croatia when I've run out of carbo though.

If I'm ever deprived of my carbo prescription from GP then I'll have to buy NAC here in the uk

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Yes - I take 2 x 375mg - 3 times a day and they do work for me

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Are they prescribed ?

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Yes they are - firstly in hospital and now by my GP

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In uk carbo is prescription only. NAC is bought over the counter or on line

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Do you mean Carbo or NAC?

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I have rsevere copd

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Is that severe?

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I take NAC twice a day and plenty of water as that helps to thin the mucus to make it easier to huff up.

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together with carbocistene?

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NAC is Carbocistene

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I have just been prescribed it and have taken only for 2 days so far no difference but at least no adverse reactions ! I was told by doctor on seeing the X-ray that I have Emphesemia- I then saw lung specialist 11 days ago and he said the same and said he would write to my doctor and send me a copy but nothing has come yet - he prescribed these and also 2 different inhalers but my own surgery has arranged for me to see their Asthma nurse on Tuesday for help in starting with the inhalers and answer any questions I have

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I've posted many times on the subject including results of trialling myself on both to determine which worked best for me. Search (top right of Health Unlocked web pages) on 'santisuk carbocytseine' and 'santisuk acetlycysteine. [Acetylcysteine is the active mucolytic ingredient of NAC].

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I have been on carbocisteine for 2 years. Found it not very helpful. My consultant told me to try NAC instead. To be honest I find it significantly better. Carbocisteine was on prescription. NAC is not. Just order it off Amazon. Much cheaper than Holland&Barretts etc.

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I had carbocisteine once .It helps to bring mucus up .Sometimes the mucus just sits there but carbocisteine helps remove it .

Good luck best wishes

Babs ❤️

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Hi Carbocystene thins your mucus to help you get rid of it, good luck J

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I've been taking carbocisteinee for a few years now, I feel it has reduced flare ups, I take 2 - 4 times a day when I feel the need, otherwise 1 2-3 times a day, it seems to wqrk for me!

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My consultant at the hospital prescribed this for me and it seems to work well. I sometimes use nac which is a little better. If your doctor wont prescribe this then get the hospital to write to your doctor.

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Hi what’s your Lung condition as I’ve.been told only for Bronchiectasis.

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I do have bronchiectasis, but would think it is for anybody who suffers from excess mucus. And why is your doctor referring to Nice quidelines all the time ??

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He isn’t,but if the guidelines say so they have to abide by them surely.

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See the reply from 2greys

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Hi Darceydoo I take Carbocistine for my bronchiectasis. It allows the mucus to get thinner, which helps me cough it up easier, I also use a flutter valve. I have bronchiectasis and asthma, so one affects the other.

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I take NAC if the mucous is bad, but I don't know whether it helps or just goes of its own accord. I will be asking my consultant on Friday about carbocysteine. I have complained about the mucous for years, but he just listens to my chest and decides there's no obstruction; I get the impression that carbocysteine is prescribed if the mucous is obstructing the airflow, otherwise they seem not to bother.

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NICE guidelines only allow for Bronchiectasis. Which is mad as mucus is the cause!

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I don't think this is right: the website (https://bnf.nice.org.uk/drug/carbocisteine.html) suggests that carbocysteine should be prescribed to reduce mucous viscosity, which is presumably why I haven't been prescribed it because my mucous clears readily (though there is a lot of it!). It is not prescribed for a particular disease, just the symptoms.

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Hi, ive been on them 2 twice a day to loosen phlem. They work for me. I have allergic asthma and a bug in my chest that antibiotics cant shift called haemophilus influenzae. Im on azythromycin for now dont know what they gonna do for me in long run. Its stopped my coughing so much so do feel better. The carbosisteine dont work for everyone but you wont know till you try. Hope you get to bottom of it. Karen. Xxx

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I’ve got HIB and a Lung Consult got me to have the vaccine for it.

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Hi, I have non typable which means i cant have the injection so dont know what my outlook is if they cant sort this. Makes me very ill. Doxycycline dont work for me and thats the correct antibiotic. Good kuck with yours. Karen. Xxx

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Just out of hospital with yet another serious chest infection, I’m on carbocistine

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Sorry, to break up phlegm, it’s starting to help. Lung function 33% very severe Emphysema

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Oh I am sorry, but happy that it’s helping you!

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Don't know if this is relevant to your condition but my mum (who has Bronchiectasis) started taking it as she couldn't cough anything up, her stats were low and she looked terrible much of the time but after the medication she has found it much easier to clear her lungs (with Active Cycle of breathing exercises and 0.9 saline nebuliser 2 times per day ) I've found her breathing in and blowing out as if blowing into a balloon helps a lot and the consultant said that blowing into a straw is good too. Hope this might be useful in your case.

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Thank you for your message, hope your mum feels better soon.

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Thank you.

To be on the safe side, (and even though my mum's on your C medication (the site doesn't let me input the name) ) please don't try these breathing excises without confirming with your respiratory professional whether they are appropriate for your condition - as if they are not they could do more harm than good. If yes, then hopefully you'll see an improvement.

All the very best wishes to you.

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I have COPD /asthma take carbocisteine and uniphyllin to help loosen and move Lucas.

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Sorry. That's mucas.

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My Drs said NICE guidelines don’t prescribe it only to Bronchiectasis patients.

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I was given carbocistine to soften and loosen phlegm which might be forming in and possibly clogging my airways

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Hi what’s your condition re the Carbo please.

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My husband is on it and carnocisteine is to thin the sputum so it can be coughed up.

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What’s your husbands condition re being prescribed Carbo please.

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Hi,

I have been on Carbesteine now for a couple of years and because my bronchitectisis flared up I am now on 7 capsules of 375mg, three in the morning one lunch time one at 5 another two in the evening, plus so many other tablets, I find that with the Carbesteine they loosen the phlegm on my lungs and make it easier to get rid of, before I had the tablets I was unable to rid my lungs of the phlegm and having asthma/bronchitis as will did not do so good. Without these tablets I would be very very ill, am unwell at the moment but just have to fight it and be glad that woke up in the morning. I do hope that it will help you and get your lungs working again, I am in my late 70s and have always had lung problems but still here at the moment and have two dogs that keep me mobile, dont always manage a walk with them but when I do they are wonderful company.

Take care x

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I have Bronchiectasis (with colonised pseudomonas) and I started on 2 tablets of Carbocisteine 375mg twice daily but now do it 3 times daily because it works better for me. Definitely noticed the difference. Clearing the mucus is the most important part of managing the condition, otherwise it just settles in the lungs and sets up an infection. Perhaps you could ask your consultant to instruct your GP in prescribe it? That works! Good luck.

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Hi Darceydoo carbosistene is used for loosening up the Flem. I hate that word😕😕 it did work for me and I was able to bring it up easier. Hope this helps

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my dilemema is, will there be any contraindictations between NAC and prescribed Carbocisteine?

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