Waiting for a Pet Scan result, how do... - British Lung Foun...

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Waiting for a Pet Scan result, how do we cope

Guy59
Guy59

I have COPD and on Oxygen for activity In 2016 September 12th I had a left lung lobectomy bottom half removed , because of two cancers on bottom of lung, operation was successful, recovered from that, today i just got home today from having to have a Pet Scan on the left lung again it is showing a lesion 12 mm long, i have fibrosis and emphysema , i am now waiting for the results could be another week at least before i hear, this is extremely difficult for me all this waiting, Stressed, depressed certainly having a huge effect on me, how do we cope with all this ?, Phew this is so difficult in coping. thanks

15 Replies
oldestnewest

I reckon that you cope because you are brave, a fighter and refuse to give in. Because of that you are an inspiration to others and help them to try to be the same.

Guy59
Guy59
in reply to Don-1931

Thanks Don , I prey for a positive result , at times it's like being at the bottom of a ladder , I do climb up , it's the coping with the unknown which is so so difficult. Been through it once , but twice seem to be so much diffucult.

As you probably already know Guy pet scans,because of their importance in diagnosis are normally reported on and acted upon quite quickly,hopefully the delay signifies that the lesion is benign or not particularly significant.

i can only repeat the words of our dear Don in that your bravery and fortitude is of great help and comfort to others on the site.good luck for the future.

Ski's and Scruff's

Been there twice myself with PET Scans, the waiting is not nice. What you have to remember is that no amount, little or large, of worrying will alter the outcome. I had radiotherapy last May, followed with 3 monthly CT Scans and the added waiting for the results with those as well, another 4 years of 6 monthly CT Scans (with more waiting) ahead of me. You will cope okay, the waiting for results does get easier. My worse time now, is when I am actually in the scanner itself and my mind runs amok just for a few minutes.

Guy59
Guy59
in reply to 2greys

Thanks, had the same problem today in the pet scan machine , my head was every where , not a nice feeling

I sympathise exactly with your position as it is the same as mine, I have a lesion in my left lung apex. Had a scan in October rapidly followed by PET scan, dxd possible infection. Another scan in February showing slight enlargement, but not yet properly checked. Could be cancer, like 2 greys will have to wait. So, like you, I know rather a lot about coping. So how do we cope? Well, as you know, we cope because we have to, and there are so many supportive people on this site, which I have found so helpful. I wish you all the best in the world and send many blessings for your future xxx

Guy59
Guy59
in reply to Carnival567

Thank you,I have just been told my appointment for results will be 18th March , so about 12 days still ,

My heart hurts for you, Guy59. The waiting is the worst! I had an HRCT the last week of January 2018, which did finally gets diagnosis. Then had to wait another eight months for follow up scan to learn of any change, Thankful for good report. The wait was very taxing on the nerves. Prayers, J..

Guy59
Guy59
in reply to jmsutt73

thank you kindly, every one around me get hurt too , they see it in me , parts of the day i cope and other times my mind wonder badly

Yes the waiting for the result is an awful time however as skis says they are usually acted on very quickly so fingers crossed for a benign outcome.

Guy59
Guy59
in reply to dickinson1954

results on 18th March

Hi Guy, what alot you have had to cope with and may I add keeping so positive at the same time, try not to let the waiting get you down, this is always the worst time, and really not that long to wait. I wish you all the very best for the future, chin up xx

Guy59
Guy59
in reply to Izb1

thank you for your kind words, i will hear on the 18th March results

Izb1
Izb1
in reply to Guy59

Keep us updated x

Guy59
Guy59
in reply to Izb1

thank you , i will

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