Severe copd

[Nik5769]

Severe copd is like a curse. As I sit here now I have no symtomes but as soon as I get up and try to do anything that's when it all gets distressing just to visit a neibour or answer the door feels like swimming a river but not being able to reach the the end its like drowning. So I sit back down. I can not arrange to go anywhere because I find I just can't breath. Someone ends up rushing me home or to A&E. I try all the exercise but mostly so exaustet it don't work. Just being near smells can start it off. If you have this condition get registered with a repriotry nurse and regular check ups and support even my doctor does not see how serious my condition gets. When I see him I only walk a few steps and sit on a chair in his room. I never got help but now I am very strong that I do need help and intend to get it.

[mikeadams51]

It would appear you need to have your oxygen levels measured. Anything below 88% for periods of time or on exertion then you may need ambulatory oxygen.

[Nik5769 in reply to mikeadams51]

Thank you I am now going to have a ct scan too.

[Ergendl in reply to Nik5769]

Good luck with that. Hopefully the medics will be able to suggest some treatments to help you feel a bit better. All the best.

[panda22]

am just the same when I see people while I'm sat down they can't understand what I go through. My illnesses is not seen by other people Maybe I should hang a sign on myself telling people problems i have

[Suze4212]

oxygen levels do not necessarily stop or increase shortness of breath, even on oxygen I still get short of breath. Certainly get oxy levels checked but also look into Pulmonary Rehab.

[hallentine47]

I know exactly what you mean. I get so fed up with people telling me how well i look which is probably all the steroids I eat, when really I feel awful.

[Nik5769]

I am at pulmory rehab now 6 weeks, I have been given disability and chose to have a car. The car helps do much that I feel I might be able to handle a little job now. Still out of breath a lot. Severe copd with emphasemia and bullae. Had an mri which shows pinched nerves. Diognosed with osteoporosis in my spine. Stopped smoking helps quite a bit. Tried to have a smoke and it was horrible. Only because my nerves are playing me up now feel nervous and anxious not smoking. I am 51 so I have to do something to try have a better life. Getting good support now but have to remember it's never going to go away copd it's nice to chat on here.

[Susan1200 in reply to Nik5769]

I gave up smoking 5 years ago it certainly wasn't easy as I smoked for 50 years I knew this time I had to give up.,otherwise I would be definitely dead by now,so please Nik5769 don't even try a puff.

I started eating gummi bears they really helped.

[Help_61]

I think most of us on here have been their sometimes it feels like it’s not worth going on. But be strong and do everything you can to improve