Valves

[1hopefuture]

Agreed to finally go ahead with the valves yesterday I'd been putting it off for the last two years. So only a fresh scan within the next 4weeks then it's all systems go.

Nervous and exciting times ahead

[sassy59]

Wishing you all the very best. Xxxx

[1hopefuture in reply to sassy59]

Tx

[Hacienda]

Hi Hun, I am so Glad I went ahead and had 4 Valves inserted last June, they are working very well for me. good Luck, all the Best. Carolina xxxx

[1hopefuture in reply to Hacienda]

Tx nervous but excited but excited too if that makes sense

[Hacienda in reply to 1hopefuture]

Yes Hun, I Remember feeling exactly the same, You will be Fine. XXX

[1hopefuture in reply to Hacienda]

Hugs I was offered a couple of years ago but was managing fairly well had regained weight and felt was too soon. But having bounced back a few times this time feels different been really struggling again. Starting desaturating walking and resting 02 averaging 92 so time to act. Been lucky enough to avoid oxygen so far

[Hacienda in reply to 1hopefuture]

I have been on Oxygen for over 3 years Now. transplant list for 3 years,( Will be coming off the list in March) Want to travel Abroad to see my family. Had my Phone glued to my Ear far too long waiting for that Call. , My Consultant suggested the valves, so glad she did, I am doing more now than ever Before, apart from running etc. I wear a Fit Bit, and love The challenges that I Face every Day. Off to my Exercise Class in a Mo, then Shopping with Hubby, Mobile Oxygen and Mother In Law , She's my Friend. Good Luck Hun in all you Do. Love n Hugs xxxx

[1hopefuture in reply to Hacienda]

Hugs I've been following your story your a inspiration xx it gives me and others inspiration and hope for the future. Keep doing what your doing it's working and keeping the flag flying for all of us there are options

[Damon1864 Volunteer]

Good luck hope all goes well for you.😊 Bernadette xx

[1hopefuture in reply to Damon1864]

Tx

[mikeadams51]

Good luck

[1hopefuture in reply to mikeadams51]

Tx

[Izb1]

That must have been hard, its a big decision to make, good luck to you xx

[1hopefuture in reply to Izb1]

A lot of soul searching but at the point its impacting so much on my daily life willing to try anything if that makes sense

[Ergendl]

All the best. Hope it does the trick.

[1hopefuture in reply to Ergendl]

Tx

[Diane11270]

Can I ask what are these valves? Thanks in advance xx

[1hopefuture in reply to Diane11270]

They are a bit like a stent. Very very basically one way valves are placed into the lungs collapsing the damaged parts of the lung so that the air reaches the good parts of the lung more efficientently.

Look up endobrocal valves for severe emphysema.

[Diane11270 in reply to 1hopefuture]

Thanks 😊 xx

[Dedalus]

All good wishes and best of luck. Please keep us updated x

[1hopefuture in reply to Dedalus]

Tx I will do definitely shared experiences support and shared knowledge is powerful x

[Catnip]

Greetings

Glad you decided to go for it. I'm sure all will be well. Good luck.

Catnip

[1hopefuture in reply to Catnip]

Tx

[Catnip in reply to 1hopefuture]

I had valves done last year -- you do know that they don't always work, don't you??

Catnip

[1hopefuture in reply to Catnip]

Yes it's why I waited until now felt was too soon as was managing fairly well

[jackdup]

Good luck and please let us know how it goes.

[1hopefuture in reply to jackdup]

Tx yes I will helps others who have oportunataties for same