PR

Attended today it was just an assessment of my level of stamina...just took my sats bp had to squeeze something with both hands filled out a questionnaire..and shuffle..walked ...I start in earnest Thursday

[sassy59]

Wishing you well for Thursday xxxx

[Hidden in reply to sassy59]

Thank you

[Whitechinchilla]

Good stuff.

[peege]

I recall my assessment in London, due to my answered to the questionnaire at my 2nd or 3rd session a very in pec lady turned up & asked if I could stay behind at the end. Turned out she was an NHS counsellor, offered me 6 free sessions of counselling if I'd like it for grief etc. Was bowled over at the whole service. I didn't accept the counselling (wish I had now) as it was a sunny summers day at the time 😃

PR is great

[Hidden in reply to peege]

Ok this is good to know as I was very honest about my feelings....I hope they do that as I have no intentions of having anti depressants and would like to express my fear....as I know that is getting in my way....honestly nearly didn't go today

[peege in reply to Hidden]

You silly Billy, you're your own worst enemy! Go, you'll learn so much useful information for a great future xxx

[Hidden in reply to peege]

I am a silly Billy I know I am perhaps my own worst enemy just so angry at myself for doing this to myself...anyway back there Thursday....I know getting on this course is hard so being given this opportunity is a blessing I guess

[peege in reply to Hidden]

Best stop beating yourself up about it, you'll only hurt yourself. What's past is done but we can change our present and future. 😘

PS you've already done something amazing for yourself in quitting the cigs 👏👏👏👏

[Hidden in reply to peege]

Thank you I hope it makes a difference

[Patsy164]

Good luck for Thursday xx 😊

[Hidden in reply to Patsy164]

Thank you

[Angelsstar]

Good luck 🍀

[Hidden in reply to Angelsstar]

Thank you

[corriena]

Well done thats the first hurdle over. Now comes the best bit. exercise that you carry on at home and information on breathing problems and tea n biscuits and a chatt with people in a similar situation to yourself.

But you must start to accept this has happened its NOT your fault but you have to deal with it best you can. The nurses at pr may be able to help you with this or at least point you in the right direction. Good luck

[Hidden in reply to corriena]

And here is my problem....I wake up scared mucus at the back of my throat then I panic I can't breath...then the fear of being rushed back into hospital unable to breath...scared out of my mind...then I think progressive this will get worse...seeing people at different stages scared me...kept thinking that is going to be me. And to say I am still not scared would be a lie...I want to believe I can slow this down but that little destructive voice keeps saying don't be stupid it's a progressive disease..you can't beat this...I actually thought I was making headway .....I am sorry this is how I feel

Thank you for your response I do appreciate it just not in a good place today sorry

[corriena in reply to Hidden]

You shouldn't be sorry its how you feel but please beleve me you can do this you can take controll. I think the more information you have about your illness the better you will be able to deal with it.

[Hidden in reply to corriena]

I understand my asthma and my triggers it understanding my copd and right now all I really know is it's stages and progressive and both scare me.it gets worse ..that is all I can see today

Thank you for being positive

[Hidden in reply to corriena]

I have just read you profile thank you feeling very very humble

[Blackbird6]

Well done good luck for Thursday it would be good to hear how you get on with it take care xx wear comfortable clothes also just a tip 😊

[Hidden in reply to Blackbird6]

Hi do not in a good place today...so so scared of the progression having attended with people at various stages....trying to overcome my fear but today scared me..very mucusy today so googled stage 2 and I am back to being scared

[Caspiana in reply to Hidden]

Stop Googling. It won't help you and everyone is different as is progression. If we all went by what is on Google and it was fact, I'd be dead by now and so would most of the people on this forum. Take full advantage of your good fortune to have pulmonary rehabilitation. Talk with the others and they will tell you how far they have come since diagnosis and how they are striving against all odds to keep going. Our approach and attitude to illness is so, so important. If you let it, it will happily rule every aspect of your life. Don't let it.

[Hidden in reply to Caspiana]

Unfortunately and I don't know why I have let it rule my life ....just today though don't know why ...was so getting positive now so bloody scared again....frightened of another hospital admission where j couldn't breath...I was actually looking and making notes for my assignment due 26th. Visited my aunt in hospital...even got excited about new job ...brought a bag new pens normal stuff I would do and now today have fallen flat

The spiriva has helped my breathing which is a ++++ now I am crying my eyes out .....

[Caspiana in reply to Hidden]

When and if you must visit someone in hospital , wear a mask and always carry hand gel.

Take a deep breath. Look around Emily, there are many good things in your life and you are taking the right steps to help yourself. This diagnosis is not a death sentence. Accepting your new reality will come eventually. Although it is not what you'd like, you may be surprised to find that you start to make positive changes to your lifestyle, changes you never thought you'd make before you got ill. Changes that will benefit you and your quality of life in the long run.

Try not to live in yesterday, or try to envisage tomorrow, live for the here and now and keep moving. You can and will be okay. xx 🌼🌱 🌈

[Hidden in reply to Caspiana]

It's things like that I take for granted...wearing a mask never entered my head as I work in the care sector and new job again in care setting.. can't wear a mask there. I have always been obsessed with hand gels..

You are right I still have not come to terms with this. I have 3 wonderful children grand children. An amazing sister husband. My dad God bless him mom. Actually going back to a job i left and regreted leaving.

My poor husband is so worried went to Dr with me and nearly had a breakdown because someone was coughing. Again the coughing o never gave it another thought..

Tomorrow God willing...I am going to start my research for my assignment, opticians and assignment.

Thank you for your kindness..I apologise for my current state of mind. Just fearful...my friend suggested applying for pip and that reinforced that I am no longer me

I don't want to be frightened of ending up in hospital. I don't want people having to do things for me..not sure how my life is going to change. I guess I am rambling

[Caspiana in reply to Hidden]

P.S. No apologies needed. As soon as you are feeling better and winter melts into spring, book yourself and your hubby a nice , lovely mini break somewhere pretty. Quality time is so good for the soul and body. xx 😊👍

[Hidden in reply to Caspiana]

Everyone I have told so far looks startled...my one friend said I now need to look after myself which has been the only real positive response....

I don't know how my life is going to change yet and people saying your life will change...I liked the life I had before the day I was given my diagnosis...I fought really hard to get back to some state of good health after my hospitalization...and just today feel I have no fight left in me.

[Caspiana in reply to Hidden]

Everyone has days like that Emily. The days when you see no point and the will to continue is weak. But you will get your fight back. I liked not being ill too, but since being ill I have met people I would never had met, tried things I never would and have a hobby I never knew existed. I found out who my friends are and who I would gladly offer a seat to at the table of my life. It helped me be rid of things and people who had a negative impact and I am better for it. In fact I think I like the person I am now more than the well and healthy me that I was. It's not all bad and not all negative.

I am waiting for a transplant without which I will not survive. But rather than thinking transplant as my goal, it is not the ultimate event that will give me happiness. Finding the positive and tiny little gems of joy no matter how tiny in every single day is the goal. If I can do that, I find I am given the resources to keep going.

You will be okay. xx 🌿

[Blackbird6 in reply to Hidden]

Leave Dr Google alone lol it's not the best thing to do . There will be days like today when you feel back to square one and it's like the never ending story .

We all have them and it's how you turn them around that counts always think the next day will be better stay positive 😍

[Hacienda]

I agree with Caspiana, I agree with Corriena, Good luck for Thursday, I do try to instill positivity to all that need it, I have tried Emily with you on many Occasions. Now, you have to put yourself in the Professional hands of our Wonderful PR Nurses. Just Try and let us all know how Good it was.

[Hidden]

I will update you

[Dilly2]

Good luck for Thursday

[jackdup]

Good luck and please keep us updated on your progress. Did you do the 6 minute walk test?

[Hidden in reply to jackdup]

Yes I did what was that for

[Hidden in reply to jackdup]

Had to do twice practice then again

[jackdup]

It is usually to see whether you O2 sats drop from with exertion and then they usually have you do it at the end of the PR course and to see how much improvement you may have gained from the PR course.

[Hidden in reply to jackdup]

Ok thank you for that

[Ergendl]

Good luck for tomorrow.