Lung transplant

[MrsGeee]

This week my lung specialist asked me if I would want to have a lung transplant. So I am going to go to Toronto and meet with the transplant team and see what a lung transplant is all about. So my question for everyone is, if you had a chance to get a lung transplant would you get one done, and why ? Or why not ? Thank- you in advance.

[sassy59]

Hi, Pete says no as he wouldn’t want to put himself through that. He has heart problems too so is happy to live life as he is.

Wishing you well. Xxxxx

[MrsGeee in reply to sassy59]

Thank you

[Hacienda]

Not an easy Question Hun. I was on the Transplant List for a Double for 3 Years. Never received 1 call, went every 3 months to be told after all Tests I was "Still on the List". After having the Phone stuck to my ear and as I had just turned 67, After much deliberation, I decided with Hubby to come of the List and have a Life. I am Totally in favour of Transplant it is a wonderful thing and I wish you well. I do have a Lot of Pro Transplant Friends who had their Tx in their young ages of 40/50's. I have just put a Post on here this Morning for my Great Granddaughter arriving this Morning, this is a good enough reason, as I will be Going to Spain to see her in April. Stay Fit as You can, Stay Strong and stay Positive. I wish you all the Luck in the World. Keep us all Posted MrsGeee. XXXX

[MrsGeee in reply to Hacienda]

Thank you

[Caspiana]

Hello MrsGeee . 😊👋

I am am currently waiting for a single lung transplant. Transplants, as you know are offered only to patients for whom there is no other medical route and prognosis is poor. What is your diagnosis may I ask? I have Bronchiolitis Obliterans caused by having several autoimmune diseases.

I remember when I was first told I needed to have a transplant. It is incredibly difficult to fathom the complexity of the situation. The doctors will tell you all the risks that come with transplant (terrifying), and for a very long time I was in limbo as to whether to tread into the unknown and take on all the risks to extend my life. I suppose the alternative is much, much more straightforward. It was a dilemma not only for me, but for my family. However, it was a decision only I could make. It really took ages to decide to go for it. I think I have made the right choice, to go forward , but not without a whole lot of soul-searching. I know people who have decided not to go down the transplant route and those who have and done well, and those for whom the outcome has been tragic. But we all have one thing in common: We take all the information good and bad and accept that we have no way of knowing what our own outcome will be, and to a certain extent it's Que Sera Sera. My surgeons have said I am a good candidate and I passed all my tests well. But even then, they cannot guarantee how things will go. And I can accept that. 😄

Transplant is a treatment and not a cure. But it may give me a much better quality of life, as everything for me now is so difficult, from personal care, to cooking ,cleaning and going anywhere, just things I used to take for granted. I feel like I am constantly swimming upstream. So for me the risks are worth it if it means I can live a more normal, fulfilled life.

I dare say Toronto has a fine transplant centre. 😊 Do go armed with lots of questions. If you need to talk about it, please do message me. Wishing you all the best and sorry for my waffling.

Cas xx 🌿🌷🌿

[Hacienda in reply to Caspiana]

Well said my Dear Lung Buddy. You have worded it very well and with Much Thought. Hope MrsGeee, receives lots of helpful posts. Sending Love n Hugs my Dear Friend XXXX

[Caspiana in reply to Hacienda]

😘🌼

[sassy59 in reply to Caspiana]

Not waffling Cas, just speaking from the heart. Take care dear friend. Xxxx 💐😘💖

[Caspiana in reply to sassy59]

😘💕

[MrsGeee in reply to Caspiana]

Thank you

[simplesprout in reply to Caspiana]

If i wasnt in hospital i would be undegoing the 4 day assessment as we speak, but sadly double pneumonia and flu has stalled the process.

Casp couldnt have answered your question any better, but its a decision only you can make, believe me there will be much soul searching before your final decision, but all the best regardless of your decision.

[MrsGeee in reply to simplesprout]

Thank you

[Caspiana in reply to simplesprout]

I hope you get better very soon simplesprout . Hang in there! xx 🌿

[simplesprout in reply to Caspiana]

Thanks casp, im on the mend, slowly.

[1968 in reply to Caspiana]

What a lovely response, wishing all goes well for you and yes your 10000% correct, quality of life.

David1968

[Damon1864 Volunteer]

Hi MrsGeee, I have taken the opportunity to have a lung transplant, and or lung volume reduction.😊 Bernadette xx

[Alfiebax2]

I most certainly would .I had LVRS surgery in Oct 2018 and wish I had it done before . The difference is amazing and this was just on one lung .If you decide to go ahead ......as it is a hard journey I wish you all the best .

Much love and hugs Babs 💓💓💓

[Hacienda in reply to Alfiebax2]

Hi Babs, So Glad your valves are working well, mine are also holding their own and I do feel the help from them. I have Come Off the Transplant List now. Take care Babs. Love n Hugs xxxxxx

[Caspiana in reply to Alfiebax2]

Hi Babs 👋 Glad you are doing well. 😊 xx 💕

[Alfiebax2 in reply to Caspiana]

Hi Hun hope you are well too .

Hugs and love xxxxx♥️♥️♥️

[sibkev]

i had mine march 2016 never looked back if i wanted to live it was simples

[simplesprout in reply to sibkev]

You may have seen my recent posts and seen that i am the assessment stage, in fact my heart has already been checked so my assessment is only going to be 3 days. If i have any questions would it be ok to ask as you seem so positive with the whole outcome.

[sibkev in reply to simplesprout]

yes just ask away

[simplesprout in reply to sibkev]

Once ive had my assessment (hopefully next week ) if i do pass and am lucky enough to get on the list i will no doubt be in contact.

Many thanks.

[seyre]

I had a lung transplant 5 years ago and it gave me a life. It wasn.t straight forward and there are no guarantees but I would not be here today if I hadn.t gone ahead with it. Go girl, what have u got to lose. Good luck. Any questions you have I would be happy to answer. SueE

[goat-lady]

A slightly different angle. At the start of my treatment I was told I should seriously consider a lung transplant. Fortunately I have improved enough to avoid it for the present. But during treatment it became obvious I would not be a suitable transplant candidate. So an option has been taken away. It might be a helpful "thought exercise" to imagine that situation. As it was I would not have opted for a transplant. Good luck and every best wishe with your investigations and deliberations.

[Aircrash]

Most certainly would jump at the chance to to help give me quality of life even for a short time to experience a full lung ful of oxygen.