Did anyone watch the program on BBC tonight with Angela ripping on antibiotics , near the end there was a lady talking about her bronchiecsatis spelling .she was saying how antibiotics were not working for her anymore ,she has to send for medication from another country ,a country that used different meds to us for bronchiecstases spelling again ,as Angela ripping says it seems madness that they don't use this medication in this country or words to that effect , a very interesting program on antibiotics , my complaint is bronchiecsatis fed up with antibiotics, wish I could get the answer of why this medication isn't used in this country, I think all countries should get there heads together on lung decrease, and other deseases, and I should learn how to spell bronchiecsatis lol
Antibiotics and lung disease - Lung Conditions C...
Antibiotics and lung disease
Hi
The particular medication mentioned comes from Eastern Europe ( Georgia) and is unlicensed for use in the U.K. it’s taken via nebuliser. Surprised it’s able to come through the post.
And Angela Rippon should learn how to say it! Bronch iec taysis is hysterical. I have been reading about phages for some time. I am going to research the drug that the woman was using, especially its use against pseudomonas. It is criminal that the UK just ignore the whole thing when it is obviously very effective.
What was the med called that the lady got?
Google phage treatment Georgia and the clinic page will come up. The drug isn’t named. I have registered with them and they have already sent me pages of information. Watch my posts about it if you are interested.
statnews.com/2018/06/21/fir...
"...When her husband was dying of a drug-resistant infection, Steffanie Strathdee had a last-ditch idea. They could try treating him with a virus that would kill the bacteria colonizing his insides. The method, called phage therapy, was popular in former Soviet republics, but had mostly been abandoned in the U.S. Researchers had to hunt for the right virus in Texas pigsties and sewage treatment plants.
That was 2016. Phage therapy is still very much experimental — but it’s come a long way since then. New companies have popped up, hoping to get approval to sell these viruses as drugs. A phage directory has come together, lab by lab, helping doctors figure out who has which virus.
Now, the U.S. is getting its first phage therapy center, at the University of California, San Diego. Its mission is to run clinical trials, but also to streamline the mad dash to secure the right phage before a patient dies...."
I have just put it on bbciplayer.. thank you 😊
Interesting because some doctors told me you are becoming resistant to those antibiotics as nothing works, so making you feel guilty on top of it of being sick, when in fact bacteria have developed their own resistance to antibiotics to the very fact they have been dispensing them like sweeties for years..
And now the patients who are very sick are lacking options..
What was the programme called?
I also watched the Programme on BBC 1, "The Truth about Antibiotics" it was quite Scary when you think your Azithromycin & Amoxyclav that has kept your Chest infections at Bay Could become Nil & Void ? What do you do. Nada. The fault has to lie With The Pharmacutical Companies who want Big Money to Research & Develop. The Scientist in Liverpool was doing a Grand Job, but how Long will it take ? I will carry on taking my Meds and By the time I come to the end, I Hope they have introduced New Antibiotics. We will See. Maybe Angela Rippon can use her Hand Bacteria to Create a New Type.
Maybe there could also be another line of defense as well. I just read about a medicine that you use in the nebulizer that breaks up mucus. Perhaps if we were better able to break up the mucus and get that out... there would be fewer infections. I don't think they gave the name of the medicine. I remember thinking I would have to ask my doctor. Has anyone heard of a nebulizer med that would help break up mucus in the lungs? When I use Mucinex....it makes my sinuses run as in post nasal drip that makes me choke constantly till I run out of air. Not fun!
It’s hypertonic saline. Works well with some people. You are right - better clearance can lead to fewer infections. Arguably, the NHS doesn’t pay enough attention to clearance education/medication/devices.
I am going to watch this today as I have bronchiectasis,asthma and copd.I take Azithromycin 3 times a week and feel it's not doing a lot .thank you for the insight Alice70
It has been known for a few years that the antibiotics are not working like before because the bacteria/viruses are getting resistant to the antibiotics.
Alice thank you for posting this I have Bronchiectasis and Emphysema and and will watch later as I often have to take 2to 3 it's if antibiotics when I have flare ups.I am seeing a specialist and going through tests for Azithromicin as it's supposed to protect from. Infections.
Like you Joan I have emphysema ,and bronchiectasis, like you lots of antibiotics . I was getting infection every six week or so ,I have been taking azithromicyn for 10 weeks now , one three times a week ,I am doing really well on them haven't had chest infection since ,I'm astonished ,my daughter and her family have been staying with me latterly they have all had colds and chest infections including my husband ,I swear I'm the only one that didn't get it only a little sniffle that didn't go on my chest carnt believe it ,I'm a bit worried that the Azithromycin will stop work I'll cross that bridge if it comes ,good luck
I missed the programme so thanks for the post, I will catch it later.
Instead of spending billions on medicine why not spend millions on research? Just a thought?
Yes! Saw it by chance. I found it very depressing until the end when the poor woman with bronch for whom antibiotics no longer work. She was shown to be doing exercise and looking after herself. Just wished all the way through that there was more emphasis on people with diseases who need lifesaving abs.
Good on Angela Rippon I say.
On the Georgia website it states that the superbugs listed and only to apply if modern medicine has proven unsuccessful ,the cost is between $3000 to $5000 dollars and this does not include travel to Georgia ,but if you can afford it good luck as they seem to work xx
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