Hello my dear friends,
I suppose it wasn’t going to be an easy ride..
Today was a difficult day.
Tomorrow I’ll have my hair done and go to the ENO as planned.
Then on the 22nd we’ll see if I am getting that referral to the pain clinic but Morphine?? That’s a spiral..Bea said acupuncture and infrared..
Did I do the right thing to put Newsnight on? 😃
Now that is painful!!
Nighty night and keep all those bugs away from
Wishing you well xx
Response from Endocrinologist to RBH and results below:
«I understand your current difficulties to tolerate the decrease of Hydrocortisone to 20 + 15.
As expected unfortunately your cortisol level is undetectable in relation to your past “overdoses” of corticosteroid treatment responsible for an iatrogenic Cushing syndrome.
You are therefore in the same situation as patients with Cushing disease who presents this " drug withdrawal syndrome " with fibromuscular pain often disabling for a few weeks and improve over the weeks
A return to normal could be expected between 6 to 12 months depending on the initial impregnation.
I am well aware that these delays seem endless and that the return to prednisone could relieve your pain but at the risk of more insidious complications of excess cortisol.
The ideal would therefore be to be able to act on pain by non-steroids analgesic (to morphine if necessary or treatment of neurological pain (tricyclic), +/- sophrology.
It is probably better to consult a pain specialist to judge and adapt the best therapeutic combination
My answer is probably not satisfactory but I have no other.
«The cortisol result from this morning is 19 nmol/L (from your attachment, it seems that previous measurements were lower, i.e. 13 and 17).
19 nmol/L is still very low but you are taking hydrocortisone so you are getting replacement therapy.
See you next week»