Consequences : Well all week my Spo2 as... - British Lung Foun...

British Lung Foundation
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Consequences

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Well all week my Spo2 as been round 90 ... and am not happy as am still living with consequences of GP’s actions.

Following my request for antibiotics given virul infection THAT went straight to my chest given my antibodies issues IGA & IGM.

So now it’s well lodged on chest AND only thing prescribed WEEK later is amoxicillin.

Needless to say when I see my farse of a lung doctor ALL being having strong words about HOW he as gp’s who do not know am

On inhalers managing my lung health and how they will NOT prescribe antibiotics WHEN I clearly need them.

After all who is expert and experienced in breathing difficulties.

Annoyed AND Annoyed at what damage this infection as done to my vanishing lung volume health.

30 Replies
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No advice to offer regarding illness, except maybe try to find a more competent GP. I do send you all good wishes for getting rid of the ailments attacking your chest. Best Wishes for a healthy 2019. Jan

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in reply to jmsutt73

Hi Jmsutt cheers n thanks I have loads at gp surgery but the all pull rank AND even my lung doctors not helped with daft letters send them.

No wonder you're annoyed. That's awful. Can you ask your lung doctor to send you to a different GP? Also can you ask for a rescue pack so you can start taking antibiotics when you know you need them. I hope things improve a bit with the amoxicillin. Sending you all best wishes.

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in reply to HungryHufflepuff

Hi Hungryhuff MY lung doctor after discharging me but the Can’t if have antibodies issues SO next best thing the do is nout

Nearly year since I last seen them

my o2 is often well always low 90s when I was in hospital again recently i was told anything between 80 & 90% were OK for me and that is how they treat me.

But, my GP has said to me, if I drop below 90% then I should call for an ambulance and get to hospital......................Who is right??? I dunno.

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in reply to tomc

Hi Tomc when mine drop to 90 I can’t walk or talk really

Usually mine are good but I suffer bad breathing hyperventilon and sats that low cause issues.

I think your gp is right tho

Oh dear JAS, sorry to hear things haven’t improved for you. Your doctors are supposed to help not hinder you.

I do wish you a better 2019 and am thinking of you and your dear dad. Xxxx

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in reply to sassy59

Hi sassy hope you n pete are good .. thinks not been to great here BUT am hoping things will improve.

sassy59
sassy59
in reply to Hidden

We’re doing ok thanks JAS. You take care. Xxxxx

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I’d go to a walk-in centre or somewhere to get what you need. Don’t give up x

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in reply to Hidden

Hi happylondon I Can’t walk really it’s too much AM a fart away from needing ambulance really

Antibiotics will not work against a virus. Your GP has taken the correct action in not prescribing them for a virus, despite any kicking and screaming. Prescribing antibiotics when not needed is a big part of the reason why there is such a massive problem with antibiotic resistant bacteria, which is something that affects us all, say no more.

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in reply to 2greys

Fine for ‘healthy’ people 2greys but those in our position need our best ab of use to act as a prophylactic against secondary infection which, unfortunately usually develops on the back of a virus in us. Too many GPs automatically take the position which you advocate through ignorance of our conditions and their proper treatment. Being slow to act can result in a nasty full blown exacerbation. This is why we keep rescue packs at home.

sassy59
sassy59
in reply to Hidden

Pete has to have a rescue pack and our doctors know that. Xxx

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in reply to sassy59

Me too. It’s in all of the guidelines for our different conditions and I despair that some GPs cause their patients such distress by refusing to comply.

2greys
2greys
in reply to Hidden

Understandable if you are a "Bronch" who are often on a maintenance course of abs . But the fact remains, antibiotics will only work against bacteria, not a virus.

It would be interesting to find out just how often a viral infection actually develops into a secondary bacterial infection. I have had 5 viral infections this past year without them developing into secondary bacterial infections. I have needed steroids for inflammation, but the jury is still out on the cause as all the occurrences of inflammation have been post radiotherapy.

Sharon works in a nursing home and often catches a virus, most of which I manage to avoid catching myself. I used to worry about this a lot, but 2 years on, I have learned that it is not the big threat that I had first imagined it would be. In fact, without putting the ju-ju on it, I have just gone a whole year without requiring any antibiotics at all (although I do take a high dose of vitamin D3).

I do doubt the need for antibiotics at the first signs of a sniffle, having gone through 5 such "colds" this past year without getting a bacterial infection, although as first stated, Bronchs are a totally different case to point.

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in reply to 2greys

Unfortunately exacerbations develop after a virus ( it begins whilst the virus is in full flow) more often than not in bronch and copd. We HAVE to take precautionary measures.I have talked to @ Jeff a lot and know that he runs this risk. Your situation is different and so you handle it differently to us. I have been around the block too many times and am not stupid enough to think that abs cure viruses. It is far more complex than that.

2greys
2greys
in reply to Hidden

"more often than not in bronch and copd".

Yet let me remind you that I do suffer with severe copd with an FEV1 of 31% (nearly very severe) but I will acknowledge that we are all different. I know that a bacterial infection is possible to develop from a viral infection, but not a given, I still maintain that abs are of no use without a bacterial infection being present, Bronchs are a special case whereas they can be permanently infected with infections that cannot be shifted at all.

If JAS has a diagnosis of a lung disease then the NICE standards of treatment should apply, so there has to be a reason why he does not have a rescue pack, or there is a case of malpractice. After almost 2 years, of being a member here, then the question of having a rescue pack should have been sorted out a long time ago, there is more to this than meets the eye.

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in reply to 2greys

From previous posts I would say that it is malpractice because the GP does not seem to be acting on the consultant’s advice.

Most copd patients on here have a rescue pack and as you can tell the question is often when they should be started. Not at a ‘sniffle’ That is a head cold. When a chest virus gets hold that is the time to consider it. Most people come to know themselves and when to head off the secondary infection. You mention chemotherapy. Have you been unlucky enough to also have cancer?

2greys
2greys
in reply to Hidden

I repeat, after almost two years the question of a rescue pack should have been resolved a long time ago. From a previous post of his, he was discharged from his Respiratory Department ???? Malpractice ????

healthunlocked.com/blf/post....

Cancer? Yes unluckily. Not chemo but radiotherapy (SABR), for non small cell lung cancer and luckily I am currently in reprieve, with the tumour shrunk by a half.

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in reply to 2greys

I don’t think that it is for us to discuss the veracity of @Jeff’s problems. Rather to support him.

I am so glad that you are currently in remission and hope that this continues.

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in reply to Hidden

Every virus I have had as caused lung infections BUT like you say doctors should be on ball especially if you have immunity issues.

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in reply to Hidden

So true. I do think thatyou are being failed by doctors who are not putting it all together.

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Hi Jeff, oh those b GPs. You have all of your records etc I believe. Somewhere in there should be a letter from your consultant to your GP instructing them of which ab to give you, in what dose and for how long. If you can find it take it to the GP and wave it under their nose. The GP should have it.

You may as well have a box of smarties as be taking amoxyll.

If you get nowhere and this develops into a full blown exacerbation or worse start the complaints process.

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in reply to Hidden

My lung doctor a tool really AND carries on like a smaked ass

Proactive treatment am still waiting

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It's almost as if GP is helping to keep the sick sicker.

I have some experiences (one is still ongoing re. the antibiotics) and they certainly care less as there is no legal protection for patients whilst they have full of all sorts of legal cover. No wonder they 'hide" away from patients who were outraged by their incompetence and those oblivious of damage they cause (shortening your lifespan or a kick to precipitate an early grave. One GP said, "I don't live where patients do". "Go figure".

Is it ethical to give medical professionals so much freedom not to care?

Who is giving them so much power not to care?

If something went wrong either one-off or over years, could patients claim the damage/job losses / permanent organ damage etc? No, not usually. This encourages irresponsible medics to proliferate and attract those who do not care into the medical industry except their fat paycheck.

Hi JAS,seems like your Christmas has been smothered by this vital infection you have. Blooming typical eh? 2greys is correct in that anti bid don't work for vital ones but also Hidden is correct in saying,very often for us "lungies" we can get secondary infections,which if caught early enough can be treated by our Rescue Meds,saving on any possible hospital admissions act etc. So the question is "why do you not have a supply of the necessary Rescue Meds,as set out by NICE.????

New Year,New Doctor if you feel your current one is just not giving you good care. It's terrible to read your post,knowing how same hard life is whilst being your dear father's carer and all the while you're having a terrible time too. I do pray that 2019 can only be an improvement for you! x

Hope you feel better soon, JAS.

Don't get too down. Happy New Year!

Hi Jeff, guess your Christmas was not good, I had a fairly quite one with hopes for a better year 2019. Hope next year improves for you too, best wishes to you and family.

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