Log in
British Lung Foundation
40,306 members47,229 posts

Lung Biopsy results in

After 7 weeks of been told I had lung cancer, after the lung operation where they took out two segments containing the tumors, there is significant signs of a lung disease called ASPERGILLUS. I have active chronic inflammation and fibrosis, fungal stains are positive, surrounding lung shows features of organizing pneumonia and fibrosis scarring. Off for another CT scan on Monday then 6 months of intense treatment of something like an antibiotic. Thank god it's not cancer so im blessed. Have anyone heard of this?

45 Replies
oldestnewest

Hi

Are involved in landscaping.

nhs.uk/conditions/Aspergill...

Reply

Thank's, I will read up on it however i exhibited no symptoms what so ever even my lung function test last month was good.

Reply

nhs.uk/conditions/aspergill...

it's mould Dave and i am sure they will work out an effective treatment plan as they have done for others.

Regards Ski's and Scruff's

2 likes
Reply

Thank you, thats what my lung specialist said, its a very very common thing and it's air born also. They say i could have had it for a few years, 6 months of antibiotics coming my way, still great-full, it could be worse.

2 likes
Reply

Not anti-fungals?

1 like
Reply

Sounds like you’ve gone the long way round for an accurate diagnosis, but you’re on the right track now....always hard to establish with lung problems.

John, my husband, who took the same route as you, through suspected lung cancer, is still struggling to improve his breathing. The doctors are saying COPD and Bronchiectasis now, with lots of antibiotics, steroids and new inhalers involved.

You now have a firm diagnosis with a clear treatment plan, as I’ve been reading from the helpful links given. I’m just wondering whether I should stop drying my washing indoors over winter now!!

Good luck, Penny xx

1 like
Reply

Use a good condensing tumble dryer and avoid those nasty condensation spots that welcome mould like a long lost friend.

Ski's with dry clothes and deep pockets for the extra electricity consumed lol :) xx

6 likes
Reply

By chance, that’s the new one we recently bought! Yippee!

Bought it because no outdoor wall available for a steam outlet, as we’ve had previously.

But because of the cost of running it, I’m tending to dry clothes on the airer, except for towels, sheets etc. I’ll mend my ways now there’s a good reason. Thanks, Skis 🎿💕

3 likes
Reply

Oh dear, I have been drying clothes on the radiators since the heating came on - didn't realise it was bad.

1 like
Reply

So where does the moisture go Skis if it cant go outside?

1 like
Reply

In a container within the machine Jean,a bit like the soap dispenser on your washing machine and you just pull it out and empty it when the machine tells you or the drying cycle is complete,gosh what an exciting life i lead. :)

washerwoman Ski's xx

9 likes
Reply

J, a bit like a dehumidifier, the water collects and pumped to the plumbing outlet. My daughter has a Bosch, the water collects in a reservoir to be emptied regularly.

2 likes
Reply

Had the flu in August hence why they did an xray, thats when the two tumors were found. Ahh well 6 months of treatment coming my way, thank god it wasn't cancer, i am so great-full and blessed.

7 likes
Reply

Sounds like six months of relatively easy treatment though, thankfully. After escaping a lung cancer diagnosis, you are really blessed 💙💕 Good luck!

2 likes
Reply

I stopped my wife drying clothes indoors as it is bad for us with copd. Added dampness humidity is not good and aides mould. She now uses a condenser tumble drier. Much better.

2 likes
Reply

Good to hear not Cancer mould spores are so nasty to lungs

1 like
Reply

I’ve certainly heard of it in dogs - all that rooting and snuffling with their noses around in leaves and rotten wood in the soil so that they can inhale the spores and it gets into their sinuses and respiratory system, not a good thing for those susceptible.

Aspergillus came back as my allergen on tests, so I avoid that type of gardening, and luckily have a fairly dry house with little mould, which I kill off with judicious use of bleach when it starts in a shower, for instance. (Bleach doesn’t agree with my lungs either!). And definitely a tumble dryer to avoid damp washing drying in the house.

Good luck!

2 likes
Reply

Wow! I'm a bit shocked for you. Shocked that they didn't find it sooner.

I've sort of heard of it. Five years ago when I was first 'under investigation' I had some dear neighbour's. I knew that she was under The Royal Brompton in London. On talking to the husband he warned me not to panic if they saw black patches on my lungs and suspected cancer. He explained that aspergillis looks like cancer on scans and was often mistaken for aspergillis. I never forgot that because that was one of the things coming up in my sputum tests.

I'm so glad for you 1968. I was told that aspergillosis is manageable with antifungals. Apparently children and adults with dodgy lungs should stay right away from areas where there are the spores IE compost, damp leaves, farm yards. Animals get it too.

Good luck with everything

5 likes
Reply

You (and your family) are entitled to breathe..............a big sigh of relief. I know how torturous being told you have lung cancer really is. So in 6 months you will be able to make long term plans once more without all that worry.

5 likes
Reply

Really pleased for you that its not cancer. Fantastic news. Get the six months over and start living your life again. Wish you all the very best

1 like
Reply

I'm so glad it's not cancer 1968 . I hope the other issues get prompt attention. Take care. xx 🌷

Reply

Thank you for all your comments and avice xxxxx

Reply

This is great news....enjoy it !!

Take care of you....take all your medications!

Meg

Reply

Move here to New Mexico where our humidity is usually in the single digits. Mold is non existent.

Reply

suitcase is packed and I'm on my way.....

Reply

I volunteer to carry your bags 😁🏜

Reply

😄🤗

Reply

So pleased for you 1968 that its not cancer, and though its not nice at least you now have the correct diagnosis and can get on with treatment. Good luck to you, I wish you all the best. Irene x

Reply

Thank you xxxxx

Reply

Yes I have Cystic Fibrosis and Aspergillus infection is quite common.I have had it and quite often grow it . Anti Biotics and anti fungal treatment would probably be prescribed. Glad to hear you don't have the big C . Must be a great relief.

1 like
Reply

I never even heard of this until now, i have however read up on it and it's very very common. I have no symptoms.

Reply

Aspergillus fumigatus is everywhere but only some with compromised lungs develop aspergillosis. It is treatable but can be nasty. Please read up about it if you can. Though in view of the trauma you have suffered recently, perhaps you need to relax and just enjoy the fact that you don't have lung cancer! The website of the National Aspergillosis Centre based in Manchester is a wonderful resource.

Reply

That's really good news. I had the same with a cyst that doctors were 99% sure was cancer - seven weeks later I had massive operation and a week after that I was told the cyst was benign - very happy days. Best of luck to you

Reply

Wow thats gnarly. Never heard of your newestdiagnosis but certainly glad its not the big C that we all have in rhe back of our minds

Reply

Great news it’s not cancer🐞

Reply

And hot on the heels of your post, this from the fountain of all knowledge (tongue in cheek!), the Daily Mail today:

dailymail.co.uk/health/arti...

Reply

Oooooft I've studied up on this and it's shocking, we always dry out stuff inside and use scented candles 😢😢😢😢😢 hospital tomorrow to start my treatment.

1 like
Reply

Good luck with your appointment.

Now you know a bit more about what to avoid, you can do all the right things along with your nutrition, exercise and treatments to help stop any further damage and get yourself well again. Don’t be disheartened, nor think you’ve brought it on yourself - it will take a while but you’ll be feeling better before too long. Plus we’re shortly heading back towards the summer months when everything is more manageable anyway!

Happy Christmas, and best luck for a better year health wise in 2019. 👍

Reply

Thank you, i will post a wee update after i see the lung specialist, full CT scan last week so be interesting to see the results before and after the operation.

1 like
Reply

Glad to hear from you, but the news is not all good I guess other than it is not cancer. Sounds like you have a long hilly road to go before you start to feel better. Hope those on here with this illness can help you . Stay positive I am sure things can only get better for you with the right treatment. Good Luck and Best wishes for a good recovery given time.

Reply

Thank you xxxxx

Reply

That's great news 1968.

Knowing you haven't got cancer, will help you get through the treatment.

I'm so pleased for you xx

Reply

Thank you, appointment tomorrow with lung specalist then treatment 😷

Reply

I’ll be thinking of you tomorrow and hoping everything goes as well as can be. 🤞

Take care Of Yourself (I have no idea why my iPad decided to put random capital letters there)

Reply

LOL i will post a wee update after my Hospital visit.

1 like
Reply

You may also like...