On the 29th November my GP intends to expel me from his surgery, because I discovered by chance this time last year, I had Emphysema, and Pulmonary Fibrosis, two of over 16 different lung diseases! He and the COPD nurse were going to withhold my Consultants diagnosis from me, and just say I had COPD! Do not be fooled, if your GP or COPD nurse says you have COPD, you don't. You have lung disease yes, but what type of lung disease? COPD is a collective term for many lung diseases, and you have a right to know which you have!
A few weeks ago my GP wrote to me and said its time for my annual COPD checkup, and to make an appointment with the COPD nurse. I wrote back and said since I discovered by chance I had two life threatening, and incurable lung diseases both he and the COPD nurse were going to conceal from me, I no longer wish to be treated by both of them! He said my Consultant should have told me, I wrote back and said he referred me to a specialist Consultant, and after tests, she replied back to him with my diagnosis, which is the correct professional procedure! In any case my Consultant said she would only be able to see me once every 9 months to a year, during which I would have been left ignorant of my lung disease!
However, my GP had my Consultants diagnosis sent to him three days after she saw me, but he did not ask me to come in and have it explained to me, instead he referred me to his COPD nurse, 6 weeks layer, who wasn't going to inform me of my Consultants diagnosis either! I have a right to refuse treatment which is what I have done, on the grounds that if someone deceives you once, would you trust them a second time?
My GP has now said he is de-registering me from his surgery, where he is a senior partner, and told me to find another GP surgery. I have written back and said I have no intention of registering with another practice, and will be protesting in his waiting room if I no longer receive my medication because he has removed me from the practice. When said I refuse to be treated by him I meant him, there are 7 other doctors in the practice, and I wanted to be treated by one of them.
So watch this space, because I have drafted a leaflet I will be distributing in his waiting room, titled WATCH ME DIE! The first line is "My GP failed to inform me of my Consultants diagnosis as a matter of policy, according to letters I have from his Practice Manager, who said in answer to my complaint, with 10,000 patients it would be too difficult to copy Consultants diagnosis to them! So if your GP says you have COPD ask him which one of the 16 or more lung diseases you may have?