Cystic Fibrosis and Oxygen: My husband... - Lung Conditions C...

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Cystic Fibrosis and Oxygen

Soapdish1 profile image
15 Replies

My husband has cystic fibrosis and has been told he need oxygen 24/7 now. We are due to go to Germany in 10 days, where do we even start to organise plane oxygen and to organise oxygen when in Germany? Can anyone help?

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Soapdish1
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15 Replies
stone-UK profile image
stone-UK

Hi

At this short notice your only option may be to hire a portable or transportable oxygen concentrator depending on your requirements.

Check your airlines website or contact them direct. As to there policy.

You can’t take NHS equipment outside the U.K.

Very few airlines now carry inflight oxygen.

For hired equipment try

healthoxygen.com/rental-inf...

Soapdish1 profile image
Soapdish1 in reply to stone-UK

Thank you that's really helpful. My husband has taken this news really badly and it's made him really down, anything I can do to make this journey happen I will do.

corriena profile image
corriena

The blf help line will be able to advise you as well as your oxygen supplier. Safe journey

hypercat54 profile image
hypercat54

He might need a fit to fly certificate from his doctor as well so check this out, x

Soapdish1 profile image
Soapdish1 in reply to hypercat54

Thank you

maggiewhiteley profile image
maggiewhiteley

you will also need a fit to fly test to get a letter for the airline to allow you yo fly with oxygen ,and whether you will get that done in ten days I don't know.

Soapdish1 profile image
Soapdish1 in reply to maggiewhiteley

He is in the hospital now so can get Drs organised, I am waiting response from the airline now...doesn't help that it's the weekend of course!

maggiewhiteley profile image
maggiewhiteley in reply to Soapdish1

good luck . I do hope you sort it out,but don't get your hopes up just in case. Have you asked his doctor at hospital about flying ?

Soapdish1 profile image
Soapdish1 in reply to maggiewhiteley

Drs are fine with him flying and are happy to complete the relevant forms, have heard from the airline so we are on top of that. Just need the companies who hire the oxygen concentrator to get back to me. He's really down as he thinks life is not going to be the same at all...I need to try and show him it's gonna be ok. So need to make this happen!

HuwieHex profile image
HuwieHex

I think that you have left it far too late to organise anything. You will need to contact the Airline, who will advise about in-flight possibilities. You will also need to arrange oxygen at your destination. Are your travel insurers aware of the situation? If not, you will need to inform them

Soapdish1 profile image
Soapdish1 in reply to HuwieHex

We know it's late! We have only just found out he needs constant oxygen..hence the desperate ask!

Joy123 profile image
Joy123

Oh dear! Travelling with oxygen very hard and it seems all obstacles get put in our way. Have you considered a coach or train? I have a friend that comes most weekends to London by coach from Holland. I know it’s Germany that you want to visit, it’s only a suggestion. I really hope you can get sorted. Please tell your husband not to be too upset (I can imagine how he’s feeling) hopefully you can both sort something. x

Soapdish1 profile image
Soapdish1 in reply to Joy123

Thank you so much, the journey is too great for train or coach but we are closer now!

Soapdish1 profile image
Soapdish1

Thank you all for your assistance. We have now organised the oxygen, we have the certificate to fly and we are going to Germany!! Success

HungryHufflepuff profile image
HungryHufflepuff in reply to Soapdish1

That’s great news! I had nothing helpful to contribute but wondered how you were getting on with everything. I hope you have a good time in Germany. Best wishes to you and your husband.

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