British Lung Foundation
36,529 members43,755 posts

Go on, I won't tell anyone!

When I read some ones post, I always want to know how old they are. Seems silly, but there is a big difference (to me anyway), between someone in the last stages who is say forty and someone who has lived his three score years and ten, and often a lot more. Can I suggest to HealthUnlocked that we add the age to our nickname perhaps like this: murphyman 81 (that's young, not old). Take care all.

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Hmmm.... If anyone is feeling very smart and on the ball, they can have stab at my age. I've been on here for few years now but the number on my username hasn't changed. So... give it a go oldmurphyman. And no, I am not 46.

I can see what you mean, but one of the joys of this forum is that we do not know how old we are, and we can hide our saggy bits, wrinkles, hearing aids, walking sticks. Just relying on our words is a great freedom.

Kate xx

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Hi

46 = 72 youngish

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There’s sharp. Well done stone-UK

Yup. Sometimes feels like twice that...

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Born 1946?

Smartarse Don xxx

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Can’t hide. Anything from you smart guys.

Love to you both

Kate xxx🦓🍁🍂🐕

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Well I can tell you that I would never have guessed by looking at you.😉xx

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Smart and greasing up as well? It’ll pay off in S&K pudding. Just off to get the ingredients.

Kx 🚗🏃‍♀️

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I’ll remark on how talented you are if there’s sticky toffee pudding for afters. 🐷xx

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72. Take care xxx

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And you? 71? A good generation, it must be said.

Kate x

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I think many of us do say how old we are. If you search my previous posts you will find it lots of times. Personally I don’t think that making age comparisons is useful, especially with bronchiectasis which I have. It’s where we are now and how support each other to go forward that is important.

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People have the option to show their age in their profile as I have done in mine. It's strange that you should be asking the age of others when you have not shown your own age in your profile.

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Can you tell me why it is strange? The 81 is my age, and for those who prefer it 1937.

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Because if you gave your date of birth on your profile the software would work out your age and update it each year. I agree with you that it would be useful information.

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In my posts i share everything. I want to know everything as it psychologically helps me try and guess what’s ahead. My intention is not to bore or offend. It is mentally helpful to know the age of those with alpha one for me. When they were diagnosed. The progression etc...but I’m not one to be easily offended. And age is what it is.....

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Hi

You can add as much or as little on your profile page and update as you see fit.

To add to your username click on your avatar top right of page. Click on settings. Scroll to bottom of page, change or add to your username you only have two goes so choose wisely remember to save changes.

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As others have said, most of us have our age in our profile.

Adding our age to our username would confuse the issue, as, like certain coy celebrities in years gone by, we would never age.

Our year of birth would be a better idea, if age bothers you.

However, some years ago I worked in our local hospital on the Elderly care ward.

Despite there being 100 bed spaces there was always a waiting list to be admitted. So to be there a patient had to be at least 75 and in need of their bed. Sometimes a poorly, frail, wrinkled and bent figure would be huddled in the bed, yet only just qualify for our ward. Another patient, , robust looking, full head of hair, own teeth and very alert would occupy a bed. They looked so well you had to know what they suffered from to believe they should be there at all, they were aged 104!

These are real cases (but of course I cannot tell you further details).

My point being, we all age differently, so really our age is not very important. Only in as much as, do we have a young family we should be supporting, are we young enough for consideration for transplants or do we have to accept that some of our frailties are just part of the aging process?

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Personally I feel sadder the younger the person is. Anyone my age I tend to think they have had a good innings. Why I think knowing ages is relevant.

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I'm Damon60, I think it's a great idea.

😊 Bernadette xx

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Great old Murphyman I think it’s a great idea and yes I do believe in adding our ages and stage info is a good idea . It will help more than hinder . I hate to be frank but when I read obituaries I always want to know what the folks died of . I know that sounds morbid but it’s my curiosity. I am tuning 65 years young.

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Physically 61- Mentally,, 2,,, that is what I have been told.....

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Sorry to have upset so many with a simple suggestion. The point I was making was missed by most replying. Having to go to a profile to learn a relevant detail that would effect how I would feel, would be a distraction for me, personally. Also one would be reading about nicknames, not a real name, so many comments would seem? I will refrain in future.

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Not upset by your comments at all, just joined in with my view. xx

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You haven't upset anyone I'm sure. Discussion is what forums are for and they soon die if nobody takes part in them. It's sometimes hard to get people to respond and to get a discussion going but you managed it and that's good. :-)

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Hi

Absolutely nothing wrong with you suggestion, the last one about adding country of origin I took up hence Stone-UK.

I actually would like all members to complete there profile by adding to there Bio, giving a brief description of themselves and condition.

This would reduce the number of trolls if it was mandatory.

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Hi oldmurphyman

I think its good idea has i have always wanted to know peoples age when i read there post but would never ask.

I am 61.

Music

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I wasn't up set by your question, I hope you didn't think I was being rude.. I was just being I thought funny.. Been told I act like a two year old... I can see how a person can question what there reading... because you think people should be much older getting lung problems... I'm shocked by how young some people are falling sick with lung problems.... Have a nice day...

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Hmmm, I have in the past declared my age, it is just a Number though, not that important, we may well all have the same Lung Diseases , it doesn't go with our Ages...I am A Great Granny of 66, My Hubby is a Great Grandad of 50. Today is our 19th Wedding Anniversary. Still need a Transplant Though...Ha Ha . XXXX

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Happy anniversary Carolina!!!! 💕💐🎈🎉

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Thank you Cas. XXXX Love n Hugs.

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Happy anniversary Carolina. Pete and I celebrate our 45th wedding anniversary on 3rd November. It seems like yesterday. Xxx 💕💖

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Thank you Carole, Yours coincides with my Amelias 5th Birthday.3rd November. Xxxxx

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Wishing Amelia a wonderful birthday. Xxxx🎉🎁🎂

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Happy anniversary Carolina 💞 💏🍸🌹 🎉

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Happy anniversary, have a lovely day 💖💕❤️🌹🌸🌼🏵️

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I’m 61. My hubby who is the sick one with alpha one is 57. I mostly type comments for him as he isn’t a techy....

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Hi well done on reaching the ripe old age of 81. I am a bit lary of putting my age out there because of privacy issues, especially as you haven't locked your post to this community so it could appear in full anywhere on the net.

If I put my age then inadvertently put my month of birth later then it makes it easier for con men to steal my details. x

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Don't tell them your name Bev! ;-)

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Noooooooooooooooooo.... :D xx

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I agree wholeheartedly Hypercat. Ain't noone's business but mine and close aquaintences, not thousands of strangers on an Internet forum!

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Agreed. I'm a very private person. My personal information is just that ...personal. I really enjoy this forum but if it changed so I was obliged to declare age and so on then I would leave. Simple.

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Don't worry, there aren't too many organisations who'd demand date of birth or age Annastatia. I'd be off too if they did!

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We are not Strangers on Here Hun, we are all Busom Buddy's with COPD and all lung Diseases.. As I have said many times, You are only in the Next Room. so get it off your chest, Numbers don't mean a thing. We are protected with The high Security of BLF...I Think. Take Care Hun. xxxxxx

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Hello oldmurphyman .

I understand your reasoning.😊 It does make sense.

My two cents for what it's worth. I think disease is such an individual experience. I am almost 45 and have end stage lung disease, on oxygen and waiting for a transplant that may possibly get me to 55, but maybe not. I have two friends one of whom is 35 and they other 50, both of whom are also at the end stages of lung disease. On the other hand, there are many people here who are decades older, yet remain stable and mild. Two people with the same disease will progress at different paces , although they have similar symptoms, and severity of symptoms too will differ.

I think everyone has a different opinion, and that's a good thing, I think. Sorry if I've misconstrued your post.

Warm wishes,

Cas xx 🌿🍂

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Exactly. That’s why I like to know the ages and progression. The information is very helpful knowing there are no definite ages. Lung disease is random. My hubby at 57 and 25% Fev1 last pft which was 7 mths ago still works full time. Easy job as he gets winded walking more than 200 feet max on level ground. No oxygen yet. But if you read all my recent posts it is interesting all the meds he takes and comorbidities. He is just getting over a chest infection and it has been the longest one yet to recover from. He was accidentally diagnosed ten yrs ago. Read the story in prior posts. We’ve been married 33+ yrs. as a teen he smoked, also weed, drank a case of beer a day many days. Took illegal drugs. Did all the bad boy party foolishness. Of course he had no idea that he had alpha one ZZ. I married him when he was 23 and within two yrs got him clean. He hasn’t smoked since. I do recall his wheezing when we first met but we just laughed it off saying he sounded like the cartoon quick draw mcgraw. We were so young and immature...

His liver amazingly is okay. Sats are 94 resting. Showering and adjusting himself in his adjustable bed wind him terribly. If he is walking slow on level ground he can go a couple hundred feet I’m guessing. But he’s definitely progressing. He never really gets worried. I do. He always says he hides things because he doesn’t want me freaking out. After the initial shock and ten yrs to adjust to this reality I must say it sucks getting disabled before retirement age. Just adds way more stress financially . Jus being real folks. I doubt very much he will be working much longer and he’s 57 ten yrs from retirement. Health insurance worries etc when he can’t work here in the USA.

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Hello Apeter7874 , 😊

I commend you for your great love and care of your husband. And I agree, getting so poorly at a younger age really does suck!! 😒 It's great that he still works, it does give one a sense of purpose. Since he is only 57 have they suggested a lung transplant?

Sending warm wishes to you both. xx 🍁🎃🍁

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He doesn’t qualify for several reasons. And he has always said why should I trade one set of problems for another? He’s so logical and I’m so emotional.

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Understood. Why is he not on oxygen may I ask?

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His sats are at 94 and his pulmonologist says he doesn’t need it yet...That’s all I know. I find it. Odd considering his Fev1 of 25%

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Has he had a second or third opinion from other Pulmonologists ? I’m on my second and possibly headed for a third lol ! All I’ve asked from any Pulmonologist was to break down my CTScan and PFT and explain the numbers. I’m beginning to believe they are not capable of reading the acronyms and figures

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We are on the second pulmonologist. First one told me I’d be dead 8 yrs ago. This new one is to laid back. I’ll be inquiring...

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I agree with you . I wholeheartedly agree with both sides as some want to stay private as for me I would rather learn by others results and stages as a gauge . As far as folks being trolled that’s being done whether you think your secure or not . I like the fact of your statement that lung disease is so random. Some folks on the forum would learn a great deal about progression and symptoms etc .right here instead of being frightened to death by strangers on internet. I for one have no problem with my age , National origin etc. I thought this forum was just that a forum to exchange experience on these hideous disease not a clandestine “I don’t want anyone to know my business forum” I think it can work if we share our personal highs and lows with one another. For those who believe their info is private that’s a laugh . Once your on the internet you have bitten the forbidden fruit whether we think so not.

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Well , 94 at rest? Or when walking? My sats drop only when I am mobile and I am on ambulatory oxygen. Has he done a six minute walk test before? 🚶

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At rest. They for certain drop upon any exertion. He does pursed lip breathing and gets quite winded!

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I don't understand why they haven't evaluated him for ambulatory oxygen. It can't be good for his organs to lack oxygen and perhaps it restricts his life quite a bit?

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I agree. I don’t understand either and I ask when we see the pulmonologist. He recently had a heart ultrasound. He’s on a med for pvc’s

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Please do ask. And you could always get a second opinion. 😊

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No he’s never done a six minute. He wouldn’t be able to do much of anything

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Hmmm... The goal is not to achieve six minutes of walking, the test is to assess whether the patient needs oxygen upon exertion and how much oxygen. So, even if he can't complete the test, they can tell for sure if he needs oxygen.

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Yes I know. I know he couldn’t do much without sitting so I’m thinking he should be on oxygen.

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It would be good to investigate the possibility. And I am still pretty surprised his respiratory consultant hasn't already done so. 😑

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As am I. I ask every time and I feel I’m irritating them.....but it’s damaging his organs not having enough oxygen upon exertion...ten yrs of questioning different Drs who don’t like being doubted...

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Ugh!! Awful. I'm sorry for your experience with impatient doctors. But I must say, there are brilliant doctors out there too. Maybe time to have a look around.

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Gosh, Apeter7874, I'm surprised by no 6-minute walk. I had one when first diagnosed by GP. I had a second when saw my pulmonologist. And a third when I started pulmonary rehab. I think it tells them a lot. This was all in a fairly short span of time.

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I went to my GP for joint pain that came on literally overnight in June of 2010. Was given pain meds and referred to a rheumatologist. The rheumatologist prescribed methotrexate and told me a side effect can be shortness of breath and if I started feeling this stop the meds immediately and call. Four weeks later I was hauling water to the horses and gasping. Went back to the rheumatologist who sent me to a pulmonologist where a ct scan was taken along with bloodwork. Three weeks later I get called back in and told I had alpha one ZZ genetic lung disease and would need a transplant within 18 mths or die. I decided against transplant as my research made me realize it’s rather Russian roulette and trading one set of problems for another. Having RA and emphysema I figured wasn’t going to make me an acceptable candidate for transplant anyway. The meds for my arthritis weren’t compatible with my lung condition. Since then many different cocktails of meds have been tried to control my arthritis pain without furthering my lung damage. In my opinion it hasn’t been a success. I’ve never been asked to do a six minute walk. In fact I wasn’t even offered a spirometry until two yrs later. In the last 8 years I’ve had 12 spirometry tests. Go figure. My last one was in March 2018 and my Fev1 was 25% down from 42% in 2010. I’ve never been offered pulmonary rehab. Odd right? I’ve learned to live with it and adjust my activities and breathing. I’m not on oxygen either as my pulmonologist recently told me I don’t need to be. That also seems odd. I’ve developed right sided heart weakness and pvc’s and am on meds for that. Cardiologist mentioned doing an eblation but in my research I knew the pvc’s would just be right back in no time do to my health issues so no point.

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Exactly! I want this to be a place of knowledge!

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Exactly ! Are you in USA

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Yep

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Hi, I’m sassy59 and that was the age I was when I joined HU. Pete is 67. Xxxx

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Wow kudos to you oldmurphyman and may I be bold as to ask you how long have you been dealing with COPD and at what stage and when you were diagnosed ?

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A friend of mine had his 50th birthday last week and has been invited to join a seniors group. I said to him, Are we senior at 50 now? I'm a few years until I'm 50 but even so, in my mind I'm still a non specific 20-something and I think, When did 40 happen? So maybe that's why some of us are reticent about full age disclosure.

I can't help thinking of that song (by Junior?) about a younger man acting an older age. Then when he's older he acts a younger age.

I don't really have a point here. And some people are happy to speak of their age. Pretty sure I've mentioned mine a few times. 🎰📆🔞💯 In a way it's all just numbers.

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Im 62 x

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I'm 66. Quit smoking at 42. Diagnosed at 64. I think age is relevant, but nobody should have to reveal anything they'd rather not.

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I admit to having similar thought...years wear and tear would seem to impact one's response to illness, longevity, etc..

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