15 months ago I was rejected by Papworth for a lung transplant as they said my oesophagus was too damaged and I wouldn’t survive the operation!!!
Obviously, this initially felt like a death sentence as I felt that was it. Although the thought of going through a lung transplant scares the **** out of me!!! At least it was an option but this option got taken from me!!!
When I met with my Respiratory consultant - Dr ‘Rama’ at Barnet in March, she said I looked well. I told her the truth, my face masked the pain I was feeling!!! The upsetof everything and the fact that at the age of 49 (at the time) I’d been resigned to the scrap heap!
Rama was amazing, she contacted contacts at the Royal Brompton. I saw Dr Hull in May, explained everything to him, he said he’d look at my Papworth results, he could find no rvidence of damage so I had a Barium swallow at The RB. I got the resists yesterday, no damage, oesophagus is normal!!!!!
So, I’m going to be reassessed at the Harefield!!!
I’m not going to think about the outcome until I know the outcome, if that makes sense?
Love to you all and I hope things are going well.
Love Lynne ❤️❤️❤️❤️ Xx