Finally got to see a lung consultant for my bronchiectasis just waiting for a ct scan at the end of the month but he thinks I had pneumonia that has now cleared up after 3 lots of antibiotics but haa given me a rescue pack if antibiotics steroid nasel spray also carbocisteine to help cough up phlegm.
A question haa anyone had side effects with carbocisteine lately I have been tired all the time cramp in my stomach drinking plenty of water.
Alsi consultant took bloods weigh me bmi 16 i feel so tired oxygen levels is 96 upwards all the time
Lina
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Lina-61
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Maybe I still have it I know my hubby had a few years ago and he was in hospital for 2 weeks I have an appointment with the nurse on Wed legs just feel so weak stomach always gurgling keep taking my oxygen levels hubby does not believe me.
Hi Lina-61 I’m sorry that you are feeling so rotten. Pneumonia can knock you off your feet for months, especially with bronchiectasis which is in itself very debilitating. I have never been able to tolerate carbocysteine. It makes me feel sick. I nebulise saline instead to thin the mucus.
Thanks littlepom I'm just not able to bring phlegm up with it gp just concerned about my weight loss as well I see him every month for a review even though I see s dietician maybe it doesn't suit me
Are you seeing a bronchiectasis specialist or a general respiratory consultant? It’s important that you have the bronch specialist as they tell your GP how to treat you. General respiratory consultants are not trained in bronch or have the experience in it as it is comparatively rare compared to copd. Bronch is very complex, we are all different and our needs change quite frequently. Your GP sounds very caring but maybe you need one of the other forms of treatment. I fight constantly to keep my weight up. I lost over a stone when I had the pneumonia in 2015 and have managed to put about half back on. It’s very frustrating isn’t it.
Yes saw a bronchiectasis specialist and he advised what medication to give to me gp gave me an inhaler but nothing mentioned in correspondence it was a steroid nasel spray so not used it now I have the nasel spray buy double checked with the consultant secretary and she confirmed but will see what nurse practitioner says on Wednesday
I tried it once and made me feel really sick and bad tummy cramps, I also have that if I try Benylin max chesty syrup too. I would speak to the dr, but sometimes once the body gets used to it the side effects wear off.
Thanks Shancock yes stomach cramps are bad just feel sleepy and tired all the time will mention it to the nurse practitioner on Wednesday
Lina
I hope they help though x I do hate side effects ☹️ almost all respiratory medication has them and usually its stomach cramps with me x hope you feel better soon 💕
Carbocysteine doesn't work for everyone Lina - I couldnt get on with it at all. It made me cough and get asthmatic, kind of the opposite of what you want!
Pneumonia can make you feel exhausted for months. You lose a lot of weight which makes it worse getting back to normal. You dont say what your normal bmi is but 16 is too low. You could ask your doctor for a referral to a dietician to help you put on some weight. Do hope you feel better soon.
I do see a dietician as I started loosing weight when I came off antidepressants after 21 years with help from the gp I put my weight loss down to my body getting back to normal but I have continue to lose weight since then I was only 8st before going on medication antidepressants make you put weight on my body had been messed up with lots of different meds through trial and error and nothing works even new antidepressants which gp put me since he I was depressed I wasn't just wanted to know what was wrong me I also have MS
Lina
I had to stop carbocysteine as without warning projectile vomiting would occur.......thankfully never outside !!!!! I haven't dared take it since. 😱
Thanks Annastatia I feel sick with everything at the moment will mention it to the nurse practitioner on Wed if I last that long with them I just push myself
Lina
LEt us know how you get on on Wednesday with the nurse. FIngers crossed you will feel better soon 😄
Hi Lina I have just started taking carbocisteine tabs 3 times daily. No coughing up anything at all but do feel so spaced out and tummy not quite right. thinking of stopping them actually.
Hi I can’t take carbocisteine the capsules make me shake uncontrollably which is very frightening and the liquid gives awful cold sweats. I do react to a lot of medication in fact I dread being prescribed anything new. Hope you feel better soon Barbs x
I too seem to get side effects from everything I take gp says I'm overloaded on anxiety but I haven't taken any more this morning stomach gurgling all the time
It’s not good when you react to medication especially when your re@ction is not on the patient leaflet. I recently was put on furosemide for swollen feet. My reaction was I felt extremely anxious and panicky almost like I couldn’t cope. I went to see my new doctor, this was the first time I’d met him, he went all through the stages of mental health, in fact by the time I left I believed I really had a mental problem. He gave me some Valium (not called that any more) and said he would see me in 2/3 weeks. Anyway I suspected it could be the new medication so I stooped taking it and low and behold I was right as rain within a few days. I went to see him 3 weeks later to introduce myself properly and explain it was the furosemide. He wouldn’t have it and still believed I had a mental problem. When I went home I researched “could Furosemide cause anxiety” and sure enough yes it can. I printed off the information and dropped it into the surgery. Needless to say I have changed my doctor. I wonder why some of these GP’s think they know your body better than you do. Sorry hope you like my story lol take care Barbs x
I feel better since not taking it still a bit tired when I told my hubby he said I was depressed and need meds to make me better in the morning I don't want antidepressants again and I'm not depressed yes docs first answer is antidepressants and referring you and they don't believe you with the sude effects from meds thsnks for sharing
I take Carbocisteine and it does give me stomach problems, seems to sit there like a lead weight plus have a lot of wind since taking it. Also if I have a bit of reflux just after taking it it really burns the inside of the mouth and no amount of drinking stops the burning for about half an hour.
I'm due a review in the summer so will see then what they decide about meds.
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