Anitirpsin Deficiency diagnose.. - British Lung Foun...

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Anitirpsin Deficiency diagnose..

Clamdigger
Clamdigger

Went to the Dr yesterday she gave me my readings and what they said about my FEV test.. When i got home looked over it .. On the report it said ...There seems to be antitrypsin deficiency... It was on my Pulmonary Report....I thought you needed blood work do get that done ... Can it show up on a spirometry test...Did any one found out through a breathing test...I have another appointment to asked about this report....

20 Replies
Hidden
Hidden

Sorry no..it must be an elaborate PFT! Saved you a blood test or maybe a compilation of all past tests?

Good luck x

Clamdigger
Clamdigger in reply to Hidden

I havn't had blood work for years .. I thought this was weird to have that on my report...

Hidden
Hidden in reply to Clamdigger

Is it your report for sure? Last time I got a density scan belonging to somebody else!

Clamdigger
Clamdigger in reply to Hidden

Yes it is.... Unless something came up on the CT scan that shows that or my spirometry test from my last one... My lung function went down by three percent.. And I don't smoke.... I'm confused about it all....

Hidden
Hidden in reply to Clamdigger

My ct scan showed damage at the bottom of my lungs which is the way alpha one antitrypsin usually goes. That may be where the diagnosis came from. A blood test is needed to be certain.

Mine was diagnosed by blood test

Hi

Blood test.

blf.org.uk/support-for-you/...

That is what my feelings were I needed a blood test.. The asthma clinic send the information to my Dr's a year ago telling them they wanted blood work done.. My Dr missed it put it was on the paper of my lung function test from last year.. I did look it up and it does come out on the blow test you do.. Not sure if read it wright...

My uncle died from COPD never smoked .. I get one visit a year to go over everything.. So in the end I don't know until I get my blood work done...

Hi Clamdigger. You need bloodtests to diagnose Alpha 1. Your family history and spirometry combined with your age, if young, may cause suspicion of the condition but cannot diagnose it. A test of your blood level will be done to start with - it it shows lower than normal levels then further blood tests will confirm the type of Alpha 1 you have. The first test results should be available within a week. Additional tests if needed take longer.

Clamdigger
Clamdigger in reply to zorro1

I kept saying to the Dr about this blood test the COPD clinic asked for me to get.....because she couldn't find the report she didn't give it to me.. She gave me my Pulmonary Report to show my lung capacity but didn't notice that part on the report .(.. There seems to be antitryspin deficiency .). That really cofused me why would it have it there... I got CT scans done four of them last year unless they put it on the same report... I go back in two weeks.. And I'm getting a hold of the Clinic to resend there report...I find you have to stay up on things...I know about have to get blood test but why that statement on the report unless they put on with CT report...

zorro1
zorro1 in reply to Clamdigger

I suspect your ct scan might have shown damage to your lungs that is consistent with alpha 1 deficiency. Alpha one related emphysema sometimes affects different parts of the lung to the damage that occurs from smoking. This pattern cannot diagnose Alpha one only a blood test can do that but it would certainly raise suspicions that would trigger the need for a test. In your place I would insist your gp order the test. You will know in days if you are deficient. All the best. Z

Clamdigger
Clamdigger in reply to zorro1

My uncle didn't smoke he died at 72 from it... But he is the only one I know our family is so spread out across Canada don't know if any one else has it....

I'm an Alpha --ie. I have the deficiency -- and it requires a blood test to be diagnosed.

All the Best!

JCL

From what I read about it yes you do ... The Dr when she gave me this Pulmonary Report it has this statement on it... I did have ct scans done last year unless you can see it in lung damage.... In two weeks I get to see her again.. I kept asking about the blood work but since she couldn't find didn't order it... I'll have to get a hold of the COPD clinic. get them to resend the information....

Anti trypsin is a blood test to see if there is a deficiency on the surface of your lungs that protect your lungs. At least that’s what I heard.

I find it is weird that it is on my report...I have to talk to the Dr I have had three in the past two years and things are getting missed..

I am Alpha 1. Determined by blood test. If you have never smoked and have COPD/Emphysema then this raises the red flag for Alpha deficiency.In simple terms, it's a protein that protects the lungs. Depending on what your genetic results are , it will show how much and what type of deficiency you carry.

Clamdigger
Clamdigger in reply to Dee233

Thanks for the information I see the the Dr on the 19th...

did you every get a CT scan done and it showed up there ...

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