Having a rare chronic lung disease, such as LAM for example, doesn’t mean life has to stop. I like the recommendations from
Susie, admin at the LAM Foundation. I read them on FB this morning.
It is uplifting 😊 I needed that this morning with my coffee ☕️!!
Have a good day xx
Fran
Me to Fran. Where does the pain during the night come from. Going to have many silly laughs today my friends daughter, who has 6 month old twin boys, is dropping by, gorgeous. Take care Jane x
That’s lovely Jane 😊 I saw the other day on tv they had a fete in Ukraine with just twins, all children, it was so funny/happy!! Have a good laugh, take care x
Fran
Morning Fran, what a wise and amazing lady! And a timely reminder from my point of view. It's an attitude we could all learn from. Lots of love, and enjoy that coffee 😊💞
Morning Anne 🌸💕
How are you today?
I was woken up by a text from Bea at 6.30 after my 2 am and 4 am when I finally nebulised. It was about Aria being sick again, I think she’s got IBS we have done all the possible tests imaginable..Anyway she took her to the vet so I got the Nespresso treat and went on FB and read my LAM Sis forum. Felt better!
Now I am going to paint my toes red as I usually do 😃 and Im going for my colour this afternoon! Colour I say is the theme of the day! 💙💖❤️
Fran xx
Oh poor.Aria! That's stress related isn't it? I hope you find a way of calming her and making her feel better.
And yes a bit of colour will definitelybrighten your day😊. Maybe I'll do the same today..obviously not the hair though 😂
I can't quite feel better this week. I start to get there then I dip again...it's a tease grr. I've had monstrous migraines the last couple of days and nerve pain in my face which is sudden and very painful...so not great. But I'm eating better so that's good 😊
It's raining today so a cosy day at home with the girls and lots of teeny tiny toys they can lose all over the house ha ha. Its only me and my youngest awake at the moment so we're having that quiet cuddle time 😊.
Lots of love to you and enjoy your day 💞 x Anne x
I don’t know if it it stress related..she had it when we were at home so it can’t be the move.. well Bea texted me she has had full blood work the worm, rabbies jab etc..oh she’s back. I’ll write more later..
Thinking of you as always 💖🌸
Oh ok, I hope you get to the bottom of it then...fingers crossed for her 💕😻 xxx
Hoping you have a bit better day, Anne, without the head pains. 💞 😘 I do feel for you. I’d better get on, babysitting day, and here for a change. Speak later 🌈🌤💑 xxxx
Hi Penny.yes my head has been a bit better today thanks 😊. I' trying to take it.easy (again 😩) Have a good babysitting day...don't let them run you ragged! 😂 xxx
Cat is on steroids!!
Well I was going to say what is it with all those migraines and nerve pains? Awful..can’t you get pain killers for that? Drink a lot a lot to wash all those toxic meds out of your system. Could be hormonal too..
Well when I go to the naturopath next week, I will ask her because she works mainly at the hospital in oncology.
Lots of love
Fran xx
Hi Fran, she'll be a bodybuilding insomniac cat then soon 😂. Seriously though I hope it helps.
I'm on all sorts of meds to try to deal with it...gabapentin mainly, but the triptans they gave me are now being reviewed as there's a danger of Serotonin Syndrome apparently. I don't know, they say the nerve damage and headaches are chemo side effects...and possibly stress. Who knows anymore! Any advice is very welcome thanks honey 😊. 💞❤
Ok will see what she says 💕
Thinking of you and the girls as always Anne. Those cuddle times are so precious. We are having our granddaughter (nearly 4) to stay on 7/9 so that will be special too. She’s a pickle.
Take care xxxx 😘💖💖💖💖
Hi Carole thanks honey, yes we must savour the cuddles...and the cheeky grins these pickles give us!! It's all special. My 4 year old is a pickle too...she needs school ha ha! Have a lovely day and thanks for the kind message 💞
My cat Tinker gets IBS from wheat carbs and home cooked chicken. It's take us a while to find commercial cat food for him that he likes and doesn't set his tummy off, has plenty of flavours so that he doesn't get bored, and doesn't cost a fortune.
That's come at the right time Fran struggling at the moment with breathing , unsteady on me pins and almost permanent sleeping,been on loads of steroids,on 9th box of ten and 2nd CT scan coming on Sept 3rd..but your inspiring post and that inspiring lady had shown me this is just a wee setback..Ger
Oh my dear Ger,
I bet you are looking forward to Sept 3rd to get some answers 😊
Glad Susie helped. She admitted me to the LAM forum run by the LAM Foundation, it is in the US but has an international base. She is a patient herself but so knowledgeable. There are 3 patient experts on this forum and they always put you in the right direction.
Take care x
Fran
It certainly is uplifting Fran and words we can all relate to in some way.
Have a wonderful day. Xxxx🌻😍💕😘
Thank you Carole xxxx 🌿🌷🍀🌹💕
i started with silliness this morning by getting up at this unearthly hour,then i saw your post and smiled my happy friend,if this is my journey then i want a return ticket at reduced cost.i will not be painting my toes today and Scruffy is under orders to retain all foodstuffs within her body...........have a happy Fran day.
Silly Ski's and no fur balls as yet xxx
Not painting your nails? Feel a cartoon coming on.
Haha..can I have one of those tickets please Skis 🎿
Scruffynounette sounds like a wonder cat!
Now we are having the problem of giving her the stuff she can sniff it out of her food. Cheeky!!
Well this time I am actually looking forward to go to the nursing home even the eye op will be a break!!
Roll on the footy
Xx
Fran
Your cat’s still missing? 😢
Not missing no, Told Skis I missed the match last night. No, our cat has had tummy problems for ages and she wakes Bea up at night who is worn out. I try to help out early in the morning so Bea can sleep so it has been difficult!
So I fall asleep early. Anyway now we have found a good vet surgery, we hope she will improve.
Thank you for asking xx
Fran
That’s good. It’s crazy that cats are being made ill by their food but so much rubbish is put in that I suppose it’s not all that surprising. My cats won’t eat the cheap stuff but I guess the medium range food isn’t great either. Your poor cat, I hope she feels better soon. 🐱💕
Good morning, Fran 💜💕💜
What a happy photo, and uplifting words....we can always rely on you to keep us on track and as happy as possible. A super friend! 🦋🦄🦋
Just prepping for the little grandchildren....they’re here today (much more work providing a safe environment out of our current untidiness!)....but hoping for distraction and some fun....and some cuddles from baby Molly, the almost school boy Arthur not so keen these days, but usually smiles when I hug him on arrival and departure!! Ha! These grannies! Tho I’m known to them as Ma! Don’t ask!
Speak soon, my friend. Busy times here at mo. I’m going for a home hairdo any minute. I’ll tell you about my near celeb hair do sometime, that nearly happened last week, as I looked in the mirror at my steroid thinned wispy hair.....your photo says no problem there for you!! 💁🏻♀️ Well done, Fran 🧚🏻♀️🧜🏻♀️
Love, as always, Penny 💕🦋☀️😘 xx
Good morning Penny!
Thank you 😊
Nice to have the grandchildren 💕
I have to look after my cat granddaughter lol she is not human but a handful 😂
My hair has thinned down a lot at the front! Not where I want it of course! Too much of it at the back 😅
💇🏼♀️💇🏼♀️💇🏼♀️
Lots of love 💕 💖🌷
Have a good day xx
Fran
Hi Fran, lovely to read, sorry to hear Aria isn't well hope you get it sorted soon, 😢 I like the Idea of painting your nails red. 😄 💅 Majt
Haha Majt yes bright red!!! No Aria is not taking her meds. I will have to find a kind of device or trick but she is looking at me like who do you think I am!!
Xx
Fran
Hi Fran, that's great got to keep up with the fashion 😀 sorry Aria won't take her meds. 😧 ours usualy take of and try to disappear. 😨 Majt Xx
Well we are managing some but she has 12 a day!!!!
Oh Fran that's alot, good luck poor Aria 😔 hope she's is better soon they are such a worry as they can't tell you how they feel. Majt Xx
Thank you Majt 😊
Yes she keeps on taking me to the door, like can you take me back home 😢
She has steroids, imodium type tablets, probiotics, a pain killer, they are small pills but because she is a big cat lol she has to have 2 of each, 6 in the morning and 6 in the evening.
Bea will have to go and get some more tablets at the vet because we have wasted some 😃
Anyway she had a bacteria in March, had 3 lots of antibiotics then had no more infection but has had tummy problems ever since. We have changed her food we have tried everything!
This new vet surgery said we try the steroids to see if it is an inflammation, or if it is a food intolerance, now she is on no gluten, no lactose food!
Apparently pets are getting food intolerances as well nowadays because of the rubbish put in cat food!
So we’ll see! Fingers crossed 🤞
🌸🌷xx
Fran
Poor Aria, it will be upsetting when she is going to the door, I hope she's a little better now. Take care Fran. Majt 😥💝🍃
Thanks Majt 🤗🌷
I have one I bought on line over a year ago, designed to be used by nurses, brand rossmax would not have been more than £20 and had no trouble with it. I check on family to see their levels are those which are expected for people whose lungs are in better condition.
Sorry about the above which obviously not meant for you seems to be popping up on others too. Like your positive post about your way of coping with illness and the need for a daily laugh xx
Congratulations on your attitude! Difficult to achieve sometimes when things look so bleak, but I shall keep on trying!
did you watch the match as it was very good?
Pseudomonas infection
COPD and general anaesthetic
Bed wedge recommendations please
My Condition and OP - Update.
