Why ?why ?why ? are most newbies given the advice to stay away from the internet and google. I think one should want to weigh what is true and what is nonsense. Sure The internetcan be considered a two edged sword but one edge of it is wonderful and the information it provides is quite useful in understanding our disease and in many cases what is being done about via great university studies such as this very BLF as well as Johns Hopkins, Stanford , Mayo , Cleveland Clinic etc . Yes I agree there are some outdated archaic “websites that are full of doom and gloom but as adults we can be sure our power of reasoning can surely avoid them and weigh the difference as to what is legitimate and what is drama . To blatantly tell folks to avoid google or the internet is to me , folly because there is so much to learn rather than stick our heads in the sand like ostriches and steam the world is flat. My advice is to seek out knowledge and be responsible about it . You never know you just may learn something new. Me, personally I want to know as much as possible about my condition and what science is doing about rather than being told it’s only a matter of how you feel. I feel I want to know !