Today's the day: Greetings For all my... - British Lung Foun...

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Today's the day

Catnip
Catnip
β€’39 Replies

Greetings

For all my responses to other members here, this is my first "original" post. I thought I'd let you good people know that today, I'm going into hospital in preparation for endo-bronchial valve implants tomorrow. Eeek!!

Tomorrow will be the end of a long road; it's taken two years to get me to the point where I've been infection- and medication-free for a month. I've had all the pre-op assessments (they took about 4 hours, all told) and it's "all systems go". I expect to be in hospital and then in respite care for a week or so. I'll report back later...

Cheers

Catnip

39 Replies
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Hidden
Hidden

Hi Catnip can't wait to hear from you when your back home safe and sound from a successful procedure easy for me to say but we are all rooting for you best of health and luck πŸ–’Ger

Catnip
Catnip
in reply to Hidden

Thank you so much.

Hidden
Hidden

Good luck Catnip. I do hope that this makes a marvellous difference to your life.

Catnip
Catnip
in reply to Hidden

Thanks! The theory sounds wonderful - so the results could be spectacular

good luck catnip hope everthing goes well for you

Thanks, Jimmy. I'll be back...

Thinking of you for tomorrow Catnip. Waiting to hear how well it all goes. Lots of love. Xxx 😘😘😘

Thanks, Sassy. Starting to flap a bit now :)

annienell
annienellAdministrator

Understandable that you're a bit nervous today, but you can be confident you're in the best condition you can be to benefit from the procedure. Think of it as a 'holiday' from which you will return feeling very much better. You can relax knowing you're in safe hands and being well looked after.

We will all be thinking of you and looking forward to hearing from you when you're home again.

Good luck :)

Catnip
Catnip
in reply to annienell

Bless you. Hope to be home soon!!

Hi Catnip, I had 4 Valves on 7th June. Only 3 days in Hospital, each day after gets Better and now I feel Great, Still have to have 02,(16Hours) But I am not SOB. My Next Phase Hopefully is transplant, waiting 2 years , Now I can wait a Bit Longer.. Don't be so nervous, for me it easy, a Doddle and I was Borderline. Good Luck, I'll be thinking of you Tomorrow. Carolina XXXXX

Thanks, Caroline. For me, this is the only option so I'm hoping for a miracle but expecting something rather less dramatic. Anything to help has to be better than nothing, though :)

Good luck Catnip,it seems like it is valve season,you and Hacienda Caroline have beaten me to the starting line by at least a month.hopefully your stay in hospital will be as brief as possible,i think your expectations are very realistic and whatever we get is a bonus but still a life changing improvement.................love and best wishes Ski's and Scruffy x

Hacienda
Hacienda
in reply to skischool

Not long now Carino, you will be feeling so good Like me, Scruffita won't recognize you when your spritely self imerges as a play thing for her. Ha ha, and hopefully Babs & Catnip will feel the Benefits. Me voy , a me ejorcisios Esta tarde. Pasar Esta dia bien, con Ella. Besos y abrazos. πŸ‹πŸˆπŸ™ŒπŸ˜šπŸ˜˜xxx

Catnip
Catnip
in reply to skischool

Thanks, Ski -- you'll have advanced notice, then!

skischool
skischool
in reply to Catnip

You lot are my guinea pigs or pioneers,why should i, a mere man deny all you glamorous lady's from taking the first leap and gaining the stardom and acclaim,not to mention those extra percentages of lung function you shall enjoy from tomorrow onwards. thanks for leading the way.xx

Very best of luck and all best wishes xx

Catnip
Catnip
in reply to Dedalus

Thank you very much!

Flap ye not Catnip this is what you've been waiting for ! Hope all goes brilliantly ! Sheila xx

Good luck with that Catnip. Not that you will need it but wishing you it anyway. Will see you back very soon. x

Good luck . Soon be over and back home .Keep us informed.

Wishing you the very best of luck Catnip πŸŒ»πŸ’πŸ’•

That's the way to go Catnip ! Two years to tests,and anticipation that each letter or each phone call,may just be the one you so very much are waiting for!

I wish you all the very,very best with your procedure and once you are well enough,please come back and give us your PartTwo!!

Best wishes. X

Best of luck Catnip, sending positive vibes for tomorrow.

Good luck xx!

Best of luck x

Good luck hope all goes well for you .This should be the start of your new life .Keep us informed as to how you are afterwards .

Love Babs xxxc

Good luck and best wishes to u from this endπŸ‘πŸ€“

Good luck for today. Looking forward to hearing how you get on.

Wishing you all the best, hope all goes well. Xx

Good luck. I’ll be thinking of you today and for the next few days.

That's very good news , time will pass so quickly and you will soon be home all done and wondering why you were worried.

Looking forward to hearing from you when your back home.

With all best wishes . πŸ’

Jo.

Are valves and LVRS the same thing? If the procedure is successful, how much better can one expect to feel, breathing-wise? Obviously, there a lot of things about this disease that I don't know. I was diagnosed with "moderate" emphysema a little less than two years ago -- with a "touch" of asthma thrown in for good measure. I often feel OK (never great) but sometimes feel downright rotten, like right now. I am only on inhalers, and I try to exercise. I have a feeling I would not qualify for any surgical procedures now, but perhaps down the road, as I suppose I must expect my condition to deteriorate over time. The only person I actually know who has COPD is a neighbor who had a lung transplant in the last year or two. He's not a close friend, just someone I chat with occasionally while we walk our dogs. But I can say this. Previously, he would walk his little dog while pulling his 02 canister behind him. Now he walks with no oxygen at all. He says the surgery saved his life.

Catnip
Catnip
in reply to challny

Hiya.

No, valves are simpler -- my lungs are too bad for LVRS and I'd not survive the anaesthetic. The plan was for the surgeon to put a couple of valves in my right lung, but apparently it's just mush, so she put the in the left one instead.

Just to give you hope -- I've got 30% lung function, "end stage" emphysema. I assume you stopped smoking... just keep on trying to stay well. Don't let anyone who has a cold within 20 yards of you!!

Cheers

Catnip

Hacienda
Hacienda
in reply to Catnip

Wow, Hi Catnip,

here you are then, been looking for your Update. How do you Feel, Early days yet, Did you have 1 valve or More, Sorry your right lung couldn't take them. Like me I was Border Line, but they managed 4 valves as you know. I'm the opposite ,my Left is Mush so rely on the Right Lung. I still have to stay on 02 for minimum 16 hours, even though I am not as SOB as before. I manage through the night, but the days don't have enough hours in them....I now have 32 % Lung Capacity, whereas before it was 30%, so a little improvement here. Let us all know how you are progressing. love n Hugs Carolina xxxxx

skischool
skischool
in reply to Hacienda

i dream of the 30% club but good to hear that our friend catnip has at least had one lung done,as you read this dear catnip scruffy and i wish you a speedy recovery and some more %'s in the lung bank.....................Ski's xx

challny
challny
in reply to Catnip

Thanks for the reply, Catnip. I hope you are doing well and that the valves help. I've had several breathing tests since diagnosis. Doc said last one, in February, showed FEV1 of 71 percent. She actually said at that time that she thought we could improve that to 80 percent. Frankly, I don't see how that would be possible. I feel like I've slipped since then, even though I've been going to pulmonary rehab and all that good stuff. She'll test me again in September. I have tremendous anxiety about my condition, and my doctors can see it. As a result, I sometimes think they try to paint a rosier picture than what is actually going on, just to keep me from falling to pieces. I feel pretty crappy at my alleged 71 percent, so it pains me to think of those of you with 30 percent. Mine might actually be that; they're just not telling me! Ha, ha.

Also, best wishes to you, Catnip.

All the very best wishes to you Catnip, sorry for the delay, have spent a long weekend in Llandudno with my best friend and am only just reading my e mails. I am sure everything went well, please keep us updated, everybody wants to hear how you are doing. Irene xx

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