On Wednesday I had my first lung function tests since my pneumothorax back in January. Today I went through the results with my new consultant who told me the brilliant news that there had been no change to my lung capacity or transfer based.
The consultant also told me that based on Wednesday's results and the X-rays done during my lung transplant work up day that the pneumothorax had most likely disappeared.
All brilliant news but perhaps the best thing about today's appointment is that this consultant has a specialist interest in my type of ILD. He talked to me at length and with passion about some of the possible causes he was exploring. He also mentioned a donation that he had received to fund some research into my lung condition - a project that he is hoping to put through the BLF. This is the first time that I've ever heard of any frontline research being potentially done in to my disease and it left me feeling excited and with a real sense of hope.
I'm fully aware that any research is unlikely to benefit me in the immediate future but it's nice to know it might benefit others further down the line. In the meantime, I will continue to do everything I can to raise money and awareness of lung disease and to support my lung health as best I can. At the moment that's been a case of staying as active as I can as I know how important exercise is for people with lung conditions.
So a couple of weeks back I took part in the Colour Run at Wembley Stadium which while no more than a fun run was good fun. I've also been stepping up my efforts at the gym and I now need another challenge to work towards. If anyone has any ideas then I'm always open to suggestions!
lung transplant discussion
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