Pulmonary fibrosis : Any body out there... - Lung Conditions C...

Lung Conditions Community Forum

55,052 members65,842 posts

Pulmonary fibrosis

Servicer profile image
4 Replies

Any body out there who has been prescribed NINTEDANIB for treatment for pulmonary fibrosis I would be interested in any comments regarding your experience of this drug thank you

Written by
Servicer profile image
Servicer
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Helen6 profile image
Helen6

Hi Servicer, I was prescribed Nintedanib when I could not tolerate Pirfenidone. I was fine with Nintedanib but after taking it for a year or so, my condition was still worsening so I asked my consultant about stopping it. He agreed that it didn't seem to be doing me any good I stopped using it.

Helen

Servicer profile image
Servicer in reply to Helen6

Thanks for your reply Helen6 I have been on Ńintedanib for about 6 months have not yet come to any conclusion , l look forward to seeing if we get any more replies , PS, are you also on carbocisteine ?

Helen6 profile image
Helen6 in reply to Servicer

I did try carbocisteine but found that it just irritated my throat so I gave up on that as well.

Posative profile image
Posative in reply to Helen6

Hi Helen 6 i have been on both of these tabs but both made me very poorly effected my bloods then took a few months to get them back to normal. I am also on Carbocisteine I get very horse but put it down to the dry weather

You may also like...

pulmonary fibrosis and pulmonary hypertension.

offer any suitable suggestions as to what it may be ,does anyone have similar symptoms and offer...

Advice re pulmonary fibrosis

my husband has been diagnosed with pulmonary fibrosis and is coughing dreadfully to the point he...

Brother in hospital with pulmonary fibrosis

worried. I think he has been protecting me re the severity of his condition. Google has been my...

Early Onset Pulmonary Fibrosis

with them until you can no longer travel if you get the drift? Thanks for any help you great...

pulmonary fibrosis

or night, there does not seem to be any particular triggers. Any advise on how to help him...